Épisodes

  • 245: An Interview With High-School Senior Aarush Shah, Cofounder of the Rare Disease Platform OAI Nexus
    Oct 5 2026

    Larry Luxner, senior correspoondent for Rare Disease Advisor, interviews Aarush Shah, a high-school senior who, along with classmate Veer Chandwani, recently established OAI Nexus, the first public AI platform built exclusively for rare diseases.

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    13 min
  • 244: An Interview With Dr. Doug Flora on How AI Can Help Diagnose and Treat Cancer
    Sep 28 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Doug Flora, MD, about his new book, "Rebooting Cancer Care: Can AI Make Care More Human Again?"

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    14 min
  • 243: An Interview With Donna Appell, Founder of the Hermansky-Pudlak Syndrome Network
    Sep 21 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Donna Appell, founder and executive director of the Hermansky-Pudlak Syndrome Network. Patients with the most common type of this rare disease always develop pulmonary fibrosis.

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    9 min
  • 242: An Interview With Rich Savino, Grandfather of a Boy With Duchenne
    Sep 14 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rich Savino, a New Jersey grandfather of a boy with Duchenne muscular dystrophy. Savino, 71, is among a growing number of grandparents becoming advocates for patients affected by DMD.

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    14 min
  • 241: An Interview With Oncologist and Podcaster Kimberly Ku, MD, on 'Empathetic Communications'
    Sep 9 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kimberly Ku, MD, an oncologist with Illinois Cancer Center and host of the podcast "Val-You Based Care,"

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    14 min
  • 240: An Interview With Christine Clemson, PhD, of Entrada Therapeutics
    Sep 3 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Christine Clemson, PhD, senior vice-president and global head of medical affairs at Entrada Therapeutics, about exon skipping therapies in Duchenne.

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    12 min
  • 239: An Interview With Avril Daly, President of Eurordis-Rare Diseases Europe
    Aug 24 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Avril Daly, president of Paris-based Eurordis-Rare Diseases Europe, on how the EU is falling behind in clinical trials for rare diseases.

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    14 min
  • 238: An Interview With Jim Palma, CEO of TargetCancer
    Aug 19 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jim Palma, CEO of the TargetCancer Foundation, a nonprofit organization that focuses on finding treatments for rare cancers.

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    9 min