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Rare Care Podcast

Rare Care Podcast

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 Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.Copyright © 2022 Haymarket Media, Inc. All Rights Reserved Hygiène et vie saine Science
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    Épisodes
    • 208: An Interview With Wesley Michael, Founder of Rare Patient Voice

      208: An Interview With Wesley Michael, Founder of Rare Patient Voice
      Jan 21 2026

      Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Wesley Michael, founder of Rare Patient Voice. Since 2013, RPV has offered patients and caregivers opportunities to share their input with companies developing products to improve lives.
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      8 min
    • 207: An Interview With Katharine Provencher, Director of Patient Advocacy at IgG4Ward!

      207: An Interview With Katharine Provencher, Director of Patient Advocacy at IgG4Ward!
      Jan 12 2026

      Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Katharine Provencher, director of patient advocacy at IgG4Ward!, a nonprofit that advocates for patients and caregivers affected by IgG4-RD.
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      11 min
    • 206: An Interview With Cecilia Dueñas, PsyD, on Discrimination and Stigma She Encountered Before Getting Diagnosed With PBC

      206: An Interview With Cecilia Dueñas, PsyD, on Discrimination and Stigma She Encountered Before Getting Diagnosed With PBC
      Jan 5 2026

      Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Cecilia Dueñas, PsyD, on the PBC Research Foundation, and the discrimination and stigma she faced for years before getting diagnosed with the disease.
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      12 min
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