Interview with Paige Flamm of The Happy Flammily (Episode 11)
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Interview with Paige Flamm of The Happy Flammily (Episode 11)
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This week, we interview Paige Flamm of Utah. Paige is the mother to 7 year old Kinsley and she talks with us about Kinsley's diagnosis of Holoprosencephaly (HPE) and the CP that is a result of that diagnosis.
She also walks us through her daily life as a special-needs parent and her journey to getting her daughter approved for selective dorsal rhizotomy( SDR).
Paige runs a successful home, life, and special-needs parenting blog and Instagram. You can read more of her work at thehappyflammily.com or follow her on Instagram @thehappyflammily.
Important Links
The Hou To Guide
The Happy Flammily
2019, Advocating Moms Conference, Salt Lake City
Utah Parent Center
National Forests, by State
Legoland-California Resort, Disabled Guests
Seven Accessible Beaches in San Diego
Early Intervention: "New Guidelines for Eariy Diagnosis of Cerebral Palsy" article from The Cleveland Clinic
National Organization of Rare Diseases information on HPE
Willow's CP Journey
SDR Information
Families for Hope: Holoprosencephaly Support Group
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