MUST WATCH: Prostate Cancer & the GBTQ+ Community

What Every Gay & Bisexual Man Needs to Know Before and After Treatment

If you are a GBTQ+ man diagnosed with prostate cancer — this conversation is for you.

Prostate cancer treatment discussions are often based on heterosexual data and erection-focused outcomes. But for many gay and bisexual men, sexuality, intimacy, identity, and role (top, bottom, versatile) matter in ways that are rarely addressed in clinic.

In this powerful and candid session, we discuss:

• Erectile dysfunction — beyond “can you get an erection?”
• Loss of ejaculation and what that means in the community
• Receptive anal sex after surgery vs radiation
• Penile shortening, climacturia, and real functional outcomes
• Hormone therapy and libido
• Sexual identity disruption
• Dating, disclosure, and relationship changes
• Treatment regret and mismatched expectations
• Psychological distress and isolation
• Why most existing research does NOT reflect gay men’s lived realities

We also examine the limitations of common tools like EPIC, which focus primarily on erectile firmness and frequency — while often missing libido, desire, sexual role identity, and psychological impact.

This session includes:
Dr. Christopher Wallis (Urology)
Dr. Rob Rutledge (Radiation Oncology)
Dr. Gabriela Ilie (Psychology & Digital Health Research)
And, most importantly — lived experiences from men in the GBTQ+ community.

One of the most important messages from this talk:

👉 Treatment decisions must align with YOUR priorities — not just cancer control statistics.
👉 Survivorship is not just PSA numbers. It’s quality of life, identity, and intimacy.
👉 If your physician is not asking the right questions — bring them yourself.

We are also actively studying and adapting survivorship care for GBTQ+ men through the PC-PEP program (supported by Movember), with early data showing meaningful mental health improvements when care is holistic and patient-centered. Please visit pcpep.org or pcpep.org/gbtq2-communities-and-pc-pep/ to learn more about the program or enrol.

This is not just a medical talk.
It is an advocacy conversation.

If you are newly diagnosed — watch this before making treatment decisions.
If you are post-treatment — you are not alone.
If you are a clinician — listen.

Please share this with any GBTQ+ man facing prostate cancer. To watch the You Tube recording of this talk go to: https://youtu.be/YxH5lOv6k0A

#ProstateCancer #GBTQHealth #LGBTQHealth #GayMenHealth #CancerSurvivorship #HealthEquity #Movember #PCPEP #SharedDecisionMaking

EMPOWER YOURSELF!

In this deeply human episode of the PC-PEP Podcast, Dr. Gabriela Ilie sits down with Mike and his wife Barb for an honest, unguarded conversation about what it really means to face prostate cancer together.

This episode brings something rare: the voice of the person diagnosed and the voice of the life partner walking alongside him. Not to offer advice or to “represent” anything beyond their own lived experience, but to share what happens when illness enters a shared life—and how two people stay close through uncertainty.

Mike speaks openly about his prostate cancer journey, including the long stretches of waiting, the emotional whiplash of appointments and decisions, and the ways treatment can affect daily life and identity. Barb shares the steady, often invisible reality of being a partner through it all—supporting without taking over, staying present without losing herself, and continuing to live while holding what’s hard.

Together, they reflect on:
- the shock and vulnerability of diagnosis
- the loneliness that can come from uncertainty and waiting
- how illness affects not only a body, but a relationship and a household
- and the quiet strength of showing up for one another, again and again

They also speak to the value of finding structure and support beyond the clinic—simple daily practices, grounding routines, and community. For them, empowerment isn’t loud or performative. It’s built through presence, consistency, and care.

Key messages of inspiration and hope:

1) Cancer is never only individual.
Illness is experienced in relationships. Partners are not on the sidelines—they are co-travellers.

2) Presence matters more than perfection.
There is no “right” way to do cancer. What helps most is showing up—imperfectly, steadily, together.

3) Information and routine can restore agency.
When the system feels overwhelming, small daily practices and credible guidance can help people feel less powerless.

4) Partners need care too.
Barb’s voice is a reminder that support must include the people who are holding the household, the fear, and the hope.

5) You are not alone.
Connection—through a partner, a trusted circle, or a supportive community—can be the difference between isolation and steadiness.

This episode is for anyone living with prostate cancer, loving someone who is, or trying to understand what truly helps when life is turned upside down. It is a reminder that people come before diagnoses—and that there is dignity in simply being human together.

🎧 Listen on Buzzsprout:
https://www.buzzsprout.com/2420283/

📺 Watch on YouTube:
https://youtu.be/nBfZpSt7eSw

Available on podcast platforms including Apple Podcasts, Spotify, Podcast Addict, iHeartRadio, Player FM, and more.


🌐 Learn more about PC-PEP: https://www.pcpep.org
For all cancers: https://www.cancerpep.org

This initiative is funded by Movember and delivered in partnership with PC-PEP at Dalhousie University.

Thank you for listening, and for holding this conversation with the same care it was shared.

EMPOWER YOURSELF!

In this deeply honest episode of the PC-PEP Podcast, Gabriela sits down with Wayne, a 63-year-old prostate cancer survivor who identifies as a gay man, to explore what it really means to receive “the big C” diagnosis in a world that is still profoundly heteronormative. Wayne walks us through his journey from a routine PSA check to a rapid PSA rise, biopsy, Gleason 7 diagnosis, and robotic prostatectomy—describing not only the medical events, but the psychological “dark night of the soul” that followed.
Wayne shares how he accidentally discovered PC-PEP in a tiny line at the bottom of an email—three months before surgery—and how the program became a true game changer: daily messages, pelvic floor exercises, strength training, monitoring, and, crucially, a gay men’s group where nothing is off the table. He speaks candidly about incontinence, doing Kegels three times a day, ongoing erectile dysfunction, and his decision to move forward with a penile implant—not as a luxury, but as a way to reclaim his sexuality and quality of life.

Together, Wayne and Gabriela explore why aftercare and empowerment are not “extras,” but essential parts of cancer treatment. They talk about the legacy of HIV/AIDS activism (“Silence Equals Death”), the power of speaking openly in gay men’s communities, and how evidence from PC-PEP shows that self-efficacy and patient activation can transform mental health—above and beyond urinary or sexual function alone. Wayne’s message is clear: men with prostate cancer need more than surgery and scans. They need tools, community, and a roadmap handed to them at diagnosis, not discovered by accident.

Key Messages of Inspiration and Empowerment for Men Diagnosed with Prostate Cancer:

1. A cancer diagnosis is a psychological earthquake—aftercare is not optional. Wayne describes the weeks after hearing “you have cancer” as a terrifying free fall. He reminds us that leaving men alone with Google and fear is dangerous—and that structured support like PC-PEP can be the “hand on the shoulder” after the consultation ends.

2. Silence equals death: talking openly can save your sanity and your life.
Wayne explains how speaking honestly about bodies, sex, fear, and identity is a survival skill. For gay, bi, and men who have sex with men, open conversation is not oversharing—it’s medicine.

3. Empowerment and self-efficacy change your mental health more than function alone. Wayne’s story echoes PC-PEP research showing that feeling informed, active, and in control explains much of the improvement in distress—not just better continence or erections. Small, consistent actions—like Kegels, exercise, and daily program tools—build a sense of “I’ve got this.”

4. You still deserve pleasure, intimacy, and a sex life after prostate cancer.
Wayne speaks movingly about grieving the loss of ejaculation, the shock of post-surgery erectile dysfunction, and his choice to pursue a penile implant. His message: you are not dead, not broken, and not selfish for wanting an active sex life at any age. Seeking solutions is an act of self-respect, not vanity.

5. Healthcare must hand you a roadmap at diagnosis—ask for it.
Wayne is clear: the urologist’s office is “where the rubber hits the road.” Men should leave with a simple sheet listing programs and trusted resources—PC-PEP, —so they don’t fall down the doom-scrolling rabbit hole alone. If you weren’t given one, ask.

6. Your story matters—and may be exactly what another man needs to hear. Wayne spent months wanting to keep his diagnosis private, then reframed that instinct as a missed opportunity to help others. His willingness to speak openly is a powerful reminder that every survivor’s voice can light the way for someone still in the dark.

🎧 Listen and Watch this episode on You Tube: https://youtu.be/0b-ivr9INas

EMPOWER YOURSELF!

Welcome to another episode of the Prostate Cancer Patient Empowerment Program (PC-PEP) podcast, proudly funded by Movember through a Health Equity grant awarded to Drs. Gabriela Ilie and Rob Rutledge and delivered in partnership with PC-PEP™ at Dalhousie University.

In this episode, Gabriela speaks with Richard from Ottawa, a warm and thoughtful stage 4 prostate cancer survivor who calls PC-PEP “the missing chapter” and “the missing leg of the chair” in his cancer journey.

Richard was diagnosed during COVID after months of crippling lower back pain, a trip to the ER, and an MRI revealing widespread metastatic disease. Given a prognosis of only a few years, he immediately became his own advocate—pushing for faster appointments, joining a clinical trial that included immunotherapy, and saying yes to anything that might help him live well for as long as possible.

But the most powerful parts of this conversation go well beyond treatment.

What Richard Shares in This Episode

1. The shock of a stage 4 diagnosis, delivered alone

With his wife listening by phone from home, Richard heard the words “lesions too numerous to count” in his lungs, bones, and prostate. The hospital was quiet and half-empty due to COVID. He was told he likely had 2–4 years to live.
He has already outlived that estimate.

2. The profound fatigue of treatment— and choosing adaptation, not resistance

Radiation and systemic therapy left him exhausted for months. Instead of fighting his body, he allowed himself to rest and recover:
“If this is my life right now, I’ll sleep. I’ll rest. I’ll work with it.”

3. The steadying power of faith and gratitude

Richard describes a deeply personal moment—feeling a hand on his shoulder and hearing the words “Everything’s going to be all right.”
This, combined with a daily gratitude practice, shifted how he related to fear, illness, and uncertainty.

4. Community, friendship, and rediscovering joy

Weekly buddy calls, dragon boat races, and the global PC-PEP family gave Richard a sense of purpose, camaraderie, and even playfulness:
“I felt like a teenager again—feet in the sand, under the tent with friends.”

5. PC-PEP as the missing chapter

After attending Gabriela and Rob’s talk in Ottawa in 2022, Richard signed up before the presentation even ended. PC-PEP gave him structure, strength, and connection through:

• Daily exercise and Kegels
• Breathing and meditation practices
• Nutrition and cooking guidance
• Relationship and social tools
• Meaning-making and spiritual reflection
• Monthly video conferences offering updated science and real community

6. Heart health and prostate cancer—an often-overlooked link

Motivated by PC-PEP’s emphasis on heart-health monitoring for men on ADT, Richard helped organize mobile cardiac screenings in Ottawa. Several men were referred to specialists—issues that otherwise would have gone undetected.

7. A radiologist’s advice that became a philosophy

One of his doctors told him something he’ll never forget:
“Every day, be good to yourself.”
For Richard, that means resting when tired, staying socially connected, understanding his medications, moving his body, and allowing himself joy—without denying the reality of cancer.

Key Takeaways for Cancer Survivors

• Be your own advocate.

“No one is more interested in your health than you.”
Ask questions, request second opinions, call the hospital, understand your meds, and bring concerns to your medical team.

• Adaptation is strength.

Fighting fatigue often backfires. Allowing your body to rest can be life-giving.

• Spirituality, gratitude, and inner grounding matter.

Whatever you

EMPOWER YOURSELF!

Welcome to Episode number 10 of our Prostate Cancer Patient Empowerment program (PC-PEP)!

This initiative is proudly funded by Movember through a Health Equity grant awarded to Drs. Gabriela Ilie and Rob Rutledge and delivered in partnership with the Prostate Cancer - Patient Empowerment Program (PC-PEPTM) at Dalhousie University.

This is a deeply moving conversation with David Johnston—a retired environment, health and safety professional, corporate director, passionate volunteer, and prostate cancer survivor—whose story brings us face-to-face with what it truly means to live through cancer, not just as a patient, but as a partner, a caregiver, and a quietly powerful advocate for change.

Diagnosed during the uncertainty of the COVID-19 pandemic, David’s journey included robotic prostatectomy, radiation therapy, and androgen deprivation therapy (ADT). But the real heart of his story isn’t just in the medical milestones—it’s in the way he held space for his wife’s own cancer treatment while recovering from his own. It’s in the beard he grew to reclaim his sense of self. It’s in the gratitude practice that helped him stay grounded. And it’s in the moment when one man’s mentorship helped him remember: he didn’t have to face it alone.

This episode is not just about side effects and survival—it’s about resilience in the face of role reversal, grace under pressure, and the quiet, steady power of showing up for yourself and others, even when life doesn’t go to plan.

Key insights from David’s story:

1. When the patient becomes the caregiver.
   While undergoing treatment, David supported his wife through her own cancer diagnosis, recovery, and hormone therapy—navigating dual roles of vulnerability and leadership.

1. Listening to your gut—and acting fast.
   David pushed for immediate surgery when diagnosed, even declining hormone therapy at first. He later underwent 33 days of radiation and a full course of ADT.

1. The unexpected toll of hormone therapy.
   With candid honesty, David shares how hormone therapy reshaped his energy, body, and sense of self—and how he fought to stay grounded.

1. Gratitude as a way through the darkness.
   Early in his diagnosis, David began each day by writing down ten things he was grateful for—without repeats. Over time, this became a natural way of seeing the world.

1. The power of one conversation.
   A single connection with another man who had walked a similar path made all the difference.

1. Living your values—even in treatment.
   David stayed involved as a patient partner at UHN and the University of Toronto throughout his treatment, lending his voice to improve health education and systems from the inside.

What This Episode Offers:

• A rare glimpse into the emotional complexity of being a caregiver and a patient at once
• Honest talk about hormone therapy, masculinity, and identity
• Insights into patient advocacy and navigating the healthcare system as an insider
• A message of perseverance, gratitude, purpose, and quiet transformation

This episode is for any man navigating prostate cancer—or anyone caring for someone who is. It’s also for healthcare professionals and policymakers who want to hear the lived truth behind the charts.

Listen to the episode on Buzzsprout:

EMPOWER YOURSELF!

This initiative is proudly funded by Movember through a Health Equity grant awarded to Drs. Gabriela Ilie and Rob Rutledge and delivered in partnership with the Prostate Cancer - Patient Empowerment Program (PC-PEPTM) at Dalhousie University.

In this powerful episode of the PC-PEP Podcast, we hear from Uli, a German-born man living in Canada, who bravely recounts his journey through prostate cancer as a gay man. From the shock of diagnosis to undergoing brachytherapy, hormone therapy, and external beam radiation, Uli candidly reflects on the emotional and physical toll—and the layers of silence surrounding men’s health and intimacy.

Uli’s story unfolds as one of profound transformation—from isolation to deep connection, from fear to empowerment. Through open conversations about masculinity, sexuality, vulnerability, and joy, he reminds us that healing is not linear, but deeply human. His story is a testament to the strength found in self-acceptance, community, and showing up for life—exactly as we are.

Key Messages of Inspiration and Empowerment for Men Diagnosed with Prostate Cancer:

1. You’re not alone—even if it feels like it.
Uli speaks about how isolating his diagnosis felt at first, especially as a gay man. But finding spaces like PC-PEP reminded him that connection is possible and healing is collective.

2. Healing starts with honesty—with yourself and others.
Uli’s turning point came when he began talking openly about his fears around sexuality, intimacy, and vulnerability. His message: don’t hide.

3. Speak. Others will meet you there.
It’s okay to grieve the losses—and still find joy.
Uli shares openly about the changes to his body, identity, and sense of masculinity. He also describes how new joy emerged from that grieving process, including deeper emotional intimacy and self-acceptance.

4. Showing up is powerful.
Uli didn't always feel brave—but he kept showing up. For his appointments, for his health, for this podcast. That’s courage. That’s power.

5. Your story matters—and might be the light someone else needs.
Uli’s participation is a gift to other men who might be quietly struggling. His willingness to share reminds us that every voice in the community counts.

🎧 Listen to the episode on Buzzsprout:
https://www.buzzsprout.com/2420283/

📺 Watch on YouTube: https://youtu.be/XL0bBkR5puQ

🌐 Learn more about PC-PEP:
https://www.pcpep.org

For all forms of cancer go to CancerPEP.com.

Together, we are not just facing prostate cancer—we are transforming how we live beyond it.

EMPOWER YOURSELF!

This initiative is proudly funded by Movember through a Health Equity grant awarded to Drs. Gabriela Ilie and Rob Rutledge and delivered in partnership with the Prostate Cancer - Patient Empowerment Program (PC-PEPTM) at Dalhousie University.

In this powerful and uplifting episode of the (Prostate Cancer - Patient Empowerment Program) PC-PEP Podcast, we sit down with Nick Aiken, a board member of the Prostate Cancer Foundation of New Zealand (PCFNZ) and a passionate advocate for men’s health from Napier, Aotearoa New Zealand.

Nick shares his journey through a prostate cancer diagnosis in his early fifties, just months after leaving a secure career to start his own practice. Facing emotional shock, uncertainty, and the realities of hormone therapy (ADT), Nick discovered not only what it means to advocate for your own care—but how community, information, and daily connection can transform survivorship.

We first met Nick at the 2024 PCFNZ Conference in Christchurch, thanks to the visionary leadership of CEO Peter Dickens and the growing collaboration between PCFNZ and PC-PEP. That meeting sparked an enduring connection—and this conversation is a testament to what’s possible when men around the world stand up for each other’s healing.

Nick reflects on:

1. The gaps in early detection in New Zealand—and what needs to change.
2. How the PC-PEP program offered the emotional support, structure, and information the medical system couldn’t.
🗣️ “You can’t let your diagnosis determine the rest of your life.”
🛠️ “I had to learn to be my own agent… not just sit back and let it happen.”
3. Why intimacy, adaptability, and agency are core to living well post-diagnosis.
4. The importance of normalizing conversations around prostate cancer—especially the tough stuff.

With humour, honesty, and insight, Nick reminds us that healing isn’t just about surviving—it’s about reclaiming life, one choice at a time. His voice is one of clarity, warmth, and deep compassion—and his insights will resonate with anyone navigating cancer, advocacy, or transformation.

🎧 Listen to the episode on Buzzsprout: https://www.buzzsprout.com/2420283/

📺 Watch on YouTube: https://youtu.be/h2Uv5WINEUs

🌐 Learn more about PC-PEP: https://www.pcpep.org/ or pcpep.org/nz

For all forms of cancer go to CancerPEP.com (available in New Zealand though the Southern Cancer Society of New Zealand).

Together, we are not just facing prostate cancer—we are transforming how we live beyond it.

EMPOWER YOURSELF!

Welcome to the Prostate Cancer - Patient Empowerment Program (PC-PEP) Podcast! 🎙️ Episode 7.

This initiative is proudly funded by Movember through a Health Equity grant awarded to Drs. Gabriela Ilie and Rob Rutledge and delivered in partnership with the Prostate Cancer - Patient Empowerment Program (PC-PEPTM) at Dalhousie University.

I’m so glad you’ve joined us for this powerful episode on healing, connection, and what it means to truly evolve through a cancer journey. I’m your host, Dr. Gabriela Ilie, a scientist devoted to developing evidence-based, whole-person care programs for cancer survivorship. In future episodes, I’ll be joined by my co-host, Dr. Rob Rutledge, a radiation oncologist and co-founder of PC-PEP. Together, we’ve built a program grounded in science, compassion, and the lived experience of thousands of men who’ve walked this path.

In this heartfelt conversation, I sit down with Kimble Meagher—a retired engineer, marathon runner, and prostate cancer survivor from rural Nova Scotia—who shares the deeply personal story of his diagnosis, robotic surgery, recurrence, and treatment. But Kimble’s story is about more than medical events. It’s a journey of transformation.

From early fear and emotional isolation to rediscovering joy, intimacy, and purpose, Kimble opens up about the profound shifts that occurred through his participation in PC-PEP:
✔️ Morning rituals with his wife Darlene
✔️ Peer-to-peer support calls and mentorship
✔️ A renewed connection to food, friendship, and faith
✔️ And perhaps most powerfully—the moment Darlene looked at him and said:
“Kimble, you’ve evolved.”

Key Messages of Inspiration and Empowerment for Men Diagnosed with Prostate Cancer:
1. You are not alone.
Kimble’s story reminds us that even in rural or isolated settings, deep connection is possible through shared experience and community. Programs like PC-PEP bridge the gap between clinical care and emotional healing.

2. You can be transformed—not just treated.
Healing is not just about procedures and pills—it’s also about meaning-making. PC-PEP helped Kimble reframe his experience, strengthen relationships, and find purpose after diagnosis.

3. Love and ritual are powerful medicine.
Small, daily acts—like morning moments with a partner—can foster resilience and connection, especially when fear or uncertainty loom large.

4. Mentorship matters.
Giving back by mentoring others isn’t just helpful—it’s healing. It turns pain into purpose and isolation into leadership.

5. Wholeness is possible—even after recurrence.
Kimble’s courage to keep showing up, even after recurrence, speaks to the enduring strength we all have within us.

6. You can evolve.
As Darlene beautifully recognized, transformation is real. With support, courage, and care, you can emerge not just surviving—but growing.

This episode is for anyone looking for hope, reflection, and the quiet power of showing up—for yourself and for others.

🎧 Listen to the episode on Buzzsprout:
https://www.buzzsprout.com/2420283/

📺 Watch on YouTube: https://youtu.be/sJIulvdYRvY

🌐 Learn more about PC-PEP: https://www.pcpep.org/

Together, we are not just facing prostate cancer—we are transforming how we live beyond it.

EMPOWER YOURSELF!