Couverture de Zebra Butter: Spreading Awareness for Rare Medical Conditions

Zebra Butter: Spreading Awareness for Rare Medical Conditions

Zebra Butter: Spreading Awareness for Rare Medical Conditions

De : Sree Nidhi Bethanapalli
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Across the world, 400 million people suffer with rare medical conditions. Every diagnosis impacts each person differently. In this podcast, I interview people with these conditions, exploring the impact on their daily lives. This is an initiative to spread both awareness and comfort to the millions out there that live with these conditions.

Episodes will be posted monthly.

Cover Art by Vanessa Hasty

Sree Nidhi Bethanapalli 2026 Hygiène et vie saine Maladie et pathologies physiques Psychologie Psychologie et psychiatrie
Épisodes
  • A Rare Look at Rheumatic Heart Disease in the US

    A Rare Look at Rheumatic Heart Disease in the US
    Aug 24 2026

    In this episode, I interviewed Sophia, who was diagnosed with rheumatic heart disease. She talks about living with her condition, and her unique experiences in doctors' offices and in school.

    She talks about how she was diagnosed, testing accommodations, questions she gets asked, and limits she overcame.

    You can find online support for rheumatic heart disease below:

    • World Heart Federation - https://world-heart-federation.org/our-impact/policy-advocacy/global-advocacy/rheumatic-heart-disease/
    • Heart Foundation - https://www.heartfoundation.org.nz/your-heart/heart-conditions/rheumatic-heart-disease

    Please subscribe, rate, and leave a review on your favorite podcast platform and share this episode with someone who needs to hear Sophia's story!
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    18 min
  • Living Flexible - The Ups and Downs of Hypermobile Ehlers-Danlos Syndrome

    Living Flexible - The Ups and Downs of Hypermobile Ehlers-Danlos Syndrome
    Jul 23 2026

    In this episode, I interviewed Lucy, who was diagnosed with Ehlers-Danlos Syndrome in 6th grade. She talks about living with her condition, and the struggles she faces in athletics and with other people.

    You'll hear about:

    • The diagnostic process
    • Navigating athletics with accommodations
    • How people react to hearing about her EDS
    • Invisible symptoms and struggles

    You can find online support for EDS below:

    • The Ehlers-Danlos Society - https://www.ehlers-danlos.com/
    • EDS Awareness - https://www.chronicpainpartners.com/
    • Connective Strength - https://www.connectivestrength.org/

    Please subscribe, rate, and leave a review on your favorite podcast platform and share this episode with someone who needs to hear Lucy's story.

    You can find the episode transcript in this Google Doc:

    https://docs.google.com/document/d/1aadh8lRaW_cLh1JeWdTxn_DEGWbjVJls4KpCFk2z1fQ/edit?usp=sharing
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    12 min
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