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Empowered EDS

Empowered EDS

De : Lauren Prince and Jason Cole
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Empowered EDS: Your Path to Living Well with Ehlers-Danlos Syndrome and Chronic Illness For those of you living with Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD), and other chronic health conditions or supporting someone who does, you know it’s more than just a diagnosis—it’s a journey. Hosted by Lauren Prince, MSW, FDN-P, and Jason Cole, DPT, founders of Connective Wellness, Empowered EDS is here to provide compassionate, expert guidance for managing EDS symptoms and the complex realities of living with a connective tissue disorder. Lauren intimately understands the personal challenges of EDS, having spent decades navigating symptoms without answers and struggling to understand her own body. Jason, a specialist in hypermobility and EDS care, brings deep professional expertise and a passion for helping patients better understand how to care for themselves. Together, they blend personal experience with in-depth training and evidence-based insights to offer you a new perspective on living well with EDS! Each episode of Empowered EDS explores holistic, sustainable approaches to chronic illness, from lifestyle medicine and pain management to mental health support and community-building. We’ll cover topics like finding the right EDS treatment options, coping with chronic pain and fatigue, understanding the EDS diagnosis process, and creating a personalized path to resilience. Expect to hear from medical experts, community members, and advocates who share tips, strategies, and heartfelt stories for thriving with EDS. Empowered EDS isn’t just about managing symptoms—it’s about empowering you to take control of your health and connect with others who understand. Join us on this journey toward greater well-being, because no one should have to face EDS alone. Subscribe to Empowered EDS for actionable insights, uplifting stories, and a supportive community dedicated to helping you live your best life with EDS!2024 Hygiène et vie saine Médecine alternative et complémentaire
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    Épisodes
    • Healing Through Understanding: Mind-Body Therapy
      Jun 11 2025

      Episode Summary
      In this heartfelt episode of The Empowered EDS Podcast, Lauren and Jason sit down with Dr. Jessica Leavell, PhD—a therapist and chronic illness advocate—to explore the complex connection between the mind and body in the context of long-term illness and pain. Dr. Leavell shares her personal journey with chronic illness and how it has deeply influenced her therapeutic approach.

      Together, they unpack the psychological toll of chronic conditions, the role of trauma and medical gaslighting, and the power of building a supportive care team. With honesty and empathy, Lauren and Dr. Leavell offer practical tools and perspectives on cultivating self-compassion, emotional resiliency, and a deeper sense of hope along the healing journey.

      Key Takeaways

      • Mind-body therapy can transform how individuals respond to chronic illness.

      • Understanding the nervous system fosters hope and clarity.

      • Medical trauma and gaslighting are common but often overlooked.

      • A strong, supportive care team is essential for long-term healing.

      • Self-compassion and mindfulness are powerful tools for navigating pain.

      • Emotional awareness helps break cycles of generational trauma—especially in parenting.

      • Empathy in healthcare can profoundly impact patient experiences.

      Sound Bites

      • “I think that’s huge.”

      • “I believe you.”

      • “It takes practice.”

      Episode Chapters
      00:00 – Introduction to Mind-Body Therapy
      02:50 – Understanding Chronic Illness and Pain
      06:07 – The Journey to Healing: Personal Experiences
      09:02 – Building a Supportive Team
      11:53 – The Role of Trauma and Fear in Chronic Illness
      15:04 – The Importance of Compassion and Self-Care
      17:56 – Psychological Challenges in Chronic Illness
      20:58 – Parenting and Generational Trauma
      24:52 – Understanding Emotional Development in Children
      26:56 – The Impact of Parenting Styles on Emotional Health
      28:54 – The Emotional Toll of Medical Gaslighting
      32:24 – Navigating the Complex Healthcare System
      34:52 – The Importance of Empathy in Healthcare
      38:51 – Building Empathy in Medical Practice
      42:48 – Tools for Emotional Resiliency and Self-Compassion

      Connect with Dr. Jessica Leavell, PhD
      Website: drjessicafindinglight.com
      Email: dr.jessicaleavell@gmail.com

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      51 min
    • The Power of Social Connections
      May 15 2025

      Title: The Power of Social Connections

      Episode Summary:
      In this episode of Empowered EDS, we dive into the powerful role of social connection in supporting resilience and well-being—especially for those living with Ehlers-Danlos Syndrome (EDS) and other chronic illnesses. From navigating isolation to communicating emotional needs, the hosts explore the highs and lows of building and sustaining relationships when managing a chronic condition.

      Together, they unpack how gender may influence social connectivity, how friendships shift over time, and why letting go of toxic dynamics can be a form of self-care. You'll also hear about the healing impact of community and the quiet strength found in online support spaces. This heartfelt conversation wraps with a gentle invitation: reach out and create one new connection today.

      Key Takeaways:

      • Social connection supports both emotional and physical health.

      • Chronic illness often brings challenges like isolation and misunderstanding.

      • Women tend to seek social connection more than men, but everyone needs it.

      • Communicating your needs clearly is essential for sustaining relationships.

      • Friendships naturally evolve; not all are meant to last forever.

      • Releasing toxic relationships creates space for nourishing ones.

      • Online communities can be lifelines of understanding and support.

      • Even one small act of connection can be deeply meaningful.

      Sound Bites:

      "We need connection."
      "Loneliness is an epidemic."
      "You don't look sick."

      Chapter Guide:
      00:00 – Why Social Connection Matters
      03:37 – Chronic Illness and the Experience of Isolation
      05:56 – Gender and Social Connectivity
      09:33 – Why Quality Matters More Than Quantity in Friendship
      15:05 – Community as a Key to Well-being
      20:57 – How Social Media Shapes Our Connections
      25:32 – What Builds a Genuine Relationship
      28:49 – Emotional Needs and Relationship Dynamics
      31:12 – Getting Clear on Personal Needs & Boundaries
      34:32 – How to Communicate More Openly
      37:44 – From Isolation to Connection
      40:53 – Releasing Toxic Relationships
      44:07 – Finding and Cultivating Supportive Community
      47:48 – Taking the First Step to New Connections
      54:26 – Self-Discovery Through Authentic Relationships

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      58 min
    • Sleep & EDS: How to Improve Sleep Quality and Fight Chronic Fatigue Naturally
      Apr 29 2025

      Struggling with sleep while living with Ehlers-Danlos Syndrome (EDS)? You’re not alone. In this episode of the Empowered EDS Podcast, Dr. Jason Cole and Lauren Prince explore the essential connection between quality sleep and overall health—especially for those navigating chronic fatigue and complex conditions like EDS. From understanding why sleep feels elusive to uncovering practical lifestyle medicine approaches, this episode offers science-backed strategies, tips, and fresh insights (including an introduction to our new sleep specialist!) to help you reclaim restorative rest.

      What if better sleep was the missing link in your wellness journey?
      In this illuminating episode, Lauren Prince and Dr. Jason Cole take a deep dive into the often-overlooked pillar of health: sleep. Together, they unpack the impact of disrupted sleep on people with Ehlers-Danlos Syndrome (EDS), share actionable strategies to improve sleep hygiene, and highlight how fatigue can become a chronic companion without proper rest.

      Whether you’re tossing and turning every night or wondering how to set up the perfect sleep environment, this conversation offers compassionate, real-life guidance and introduces a new sleep specialist who’ll bring fresh expertise to future episodes.

      Key Takeaways:
      • Sleep is foundational to recovery, health, and daily function.

      • Non-restorative sleep is a common struggle for people with EDS.

      • Simple sleep hygiene practices (like routine and environment tweaks) can make a big impact.

      • Your sleep environment—temperature, light, noise—matters more than you think.

      • Magnesium and other natural supplements may support better sleep.

      • Cognitive Behavioral Therapy (CBT) can offer long-term help for insomnia.

      • Tracking your sleep can reveal patterns and triggers worth addressing.

      • Addressing underlying health concerns is vital for sleep quality.

      • Small, consistent lifestyle changes lead to big improvements over time.

      Episode Chapters:

      00:00 – The Importance of Sleep
      11:14 – Challenges of Sleep in EDS
      15:31 – Improving Sleep Quality
      24:15 – Common Sleep Challenges for Chronic Illness
      31:04 – Addressing Fatigue and Sleep Disorders
      33:21 – Introducing a Sleep Specialist
      35:02 – Welcome to Empowered EDS
      35:06 – Health and Wellness Insights

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      27 min

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