In this conversation, host Mykayla Lynn speaks with Alison Hayes, the creator of Thriving Well Disabled, about her journey with Functional Neurological Disorder (FND), the challenges of navigating disability benefits, and the impact of trauma on her condition. They discuss the importance of understanding ableism, the financial aspects of living with a disability, and the need for self-advocacy. Alison shares insights from her books and coaching services aimed at helping others navigate the complexities of disability and mental health.

MINI E-BOOK -> Should I apply for Disability?

Thriving While Disabled (Recognizing Bias) BOOK -> Thriving While Disabled: Recognizing Bias: Hayes, Alison: 9798991839563: Books - Amazon.ca

Custom Intro - @keekz

Guest - Alison Hayes | @thrivingwhiledisabled

Podcast Host, Editor, & Creator - Mykayla Lynn | @Chronitalk

This conversation delves into the personal journey of Brian McPherson, who - with all jokes aside, was really everyone's bestie, or Uncle B. This is someone who had navigated life as a paraplegic since a tragic accident. It explores themes of disability, illness, the impact of sports, the decision for medical assistance in dying (MAID), and the emotional complexities surrounding quality of life. Through heartfelt storytelling, Uncle B shares his struggles, triumphs, and the importance of family support, while also highlighting the need for open discussions about death and dying. The conversation concludes with a reflection on new passions that were explored, such as sim racing, that brought joy and purpose to life. This conversation delves into the complexities surrounding Medical Assistance in Dying (MAID), pain management, and the emotional struggles faced by individuals with disabilities. Uncle B shares his personal journey through the MAID approval process, the challenges of managing chronic pain, and the impact of opioid use. Family dynamics and the emotional toll of anticipated loss are explored, alongside reflections on relationships, legacy, and the importance of mental health support. Ultimately, the discussion emphasizes the need for accessible resources and the significance of making informed decisions about one's quality of life.

PLEASE LISTEN AT YOUR OWN DISCRETION - Discusses Assisted Dying. This podcast is created for storytelling and raising awareness. It is not intended to provide medical, legal, or mental-health advice. If you or someone you know is struggling, please reach out to local support services or crisis resources.

Chapters:

00:00 Introduction to Chronic Illness and Personal Stories

01:22 Uncle B's Journey: From Accident to Paralysis

10:40 Life After Paralysis: Struggles and Triumphs

18:33 The Impact of Sports on Life and Identity

23:31 Health Challenges and the Decision for MAID

32:01 Reflections on Quality of Life and Family Support

43:25 Celebrating 30 Years of Life and Accomplishments

45:46 Sim Racing: A New Passion and Challenge

55:22 The Process of MAID Approval

59:39 The Reflection Period and Its Challenges

01:00:52 Exploring Pain Management Options

01:05:33 The Struggles with Opioid Use

01:09:22 Family Dynamics and Decision Making

01:12:21 Quality of Life Considerations

01:16:55 The Emotional Toll of Anticipated Loss

01:20:47 Reflections on Relationships and Legacy

01:29:24 Pride in Accomplishments and Final Thoughts

*Podcast episode unedited*

Custom Intro -@keekz

Guest - Brian McPherson

Podcast Host, Editor, & Creator - Mykayla Lynn | @chronitalk

- Rest in peace Uncle B, I love you. -

In this episode of ChroniTalk, we sit down with Abigail Gagnon, host of The Beyoutiful Legacy Podcast, for a heartfelt and inspiring conversation. Abigail opens up about her journey living with chronic illness and how she defines her legacy, and the meaning of legacy. We explore the origins of her podcast, what drives her passion for storytelling, and the power of vulnerability in building community. Whether you're navigating your own challenges or searching for meaning, this episode is a reminder that purpose can be found even in the hardest moments.

Custom Intro -@keekz

Guest - Abigail Gagnon | @beyoutiful_legacy

Podcast Host, Editor, & Creator - Mykayla Lynn | @chronitalk

In this episode of ChroniTalk, host Mykayla Lynn speaks with disability advocate Zachary Weeks about his journey living with cerebral palsy, the importance of mental health, and the need for systemic change in accessibility. Zach shares his personal experiences, the impact of isolation on mental health, and the significance of community support. They discuss the necessity for stronger legislation to support individuals with disabilities and how everyone can contribute to advocacy efforts. The conversation emphasizes the role of caregivers, the power of social media, and the importance of kindness and understanding in creating a more inclusive world.

Custom Intro - @keekz

Guest - Zachary Weeks | @zacharyweeks

Podcast Host, Editor, & Creator - Mykayla Lynn | @chronitalk

MLA Accessibility Legislation FORM -(Edmonton, Alberta Area) https://win.newmode.net/barrierfreea/albertaneedsaccessibilitylegislation

In this episode of ChroniTalk, host Mykayla Lynn speaks with Kate, who shares her extensive journey with chronic illnesses, including POTS, ankylosing spondylitis and fibromyalgia. They discuss the challenges of obtaining a diagnosis, the importance of self-advocacy, and the mental health aspects of living with chronic conditions. Kate emphasizes the need for a supportive community, the significance of mindset shifts, and the complexities of navigating the healthcare system. The conversation also touches on parenting with chronic illness and the importance of compassion and understanding in the face of invisible disabilities.

Custom Intro - @Keekz

Guest- Kate Therrien | @fitness_chronicpain

Podcast Host, Editor, & Creator - Mykayla Lynn | @ChroniTalk

In this episode of ChroniTalk, host Mykayla Lynn joins psychotherapist Emma Novick, who shares her personal journey with hemifacial spasm, a rare neurological condition. Emma discusses the challenges of diagnosis, surgery, the impact of chronic illness on mental health, and the importance of self-advocacy in navigating treatment options. She highlights her experience with Botox treatments, the decision to undergo surgery, and the transformative effects of recovery. The conversation emphasizes the significance of support systems and the need for open communication in healthcare settings.

Custom Intro - @Keekz

Guest- Emma Novick |@emmanovick_lmsw

Podcast Host, Editor, & Creator - Mykayla Lynn | @ChroniTalk

In this heartfelt episode, Host Mykayla Lynn joins her friend Mianna in sharing her her early battle with bacterial meningitis and the profound impact it had on her life. As a baby, she faced the challenges of surviving this serious illness, which led to the loss of her leg and physical challenges. Now, as a young adult, Mianna shares her journey of adapting to life, highlighting the blend of humor, resilience, and support that has been integral to her experience.

She emphasizes the significance of education and awareness about disabilities, stressing that understanding and empathy are crucial in fostering inclusive communities. Mianna also delves into the interconnectedness of mental and physical health, discussing how each aspect influences the other in her daily life. Her love for swimming serves as a testament to her determination and the evolving advancements in prosthetic technology, offering listeners valuable insights into navigating life with a disability.

Join Mianna as she shares her story, shedding light on the importance of empathy, the power of community support, and the continuous evolution of prosthetic technology in enhancing the lives of individuals with disabilities.

Custom Intro - @Keekz

Guest - @lover_4_death

Podcast Host - @ChroniTalk

Creator, Editor, & Host - Mykayla Lynn | @chronitalk

In this episode of ChroniTalk, host Mykayla Lynn speaks with Karissa, who shares her journey of living with a CSF leak and hypermobile Ehlers-Danlos syndrome (EDS). Karissa discusses the challenges of navigating the healthcare system, the mental health toll of chronic illness, and the vital role of community support. She emphasizes the importance of holistic approaches to healing and the ongoing search for solutions to her health issues.

Throughout the conversation, Karissa’s resilience and determination shine as she advocates for herself and others facing similar struggles. She reflects on the difficulties of managing CSF leaks and various diagnoses, the need for the right specialists, and her ongoing pursuit of effective treatments. Karissa also highlights the value of holistic health practices-such as nutrition and intentional living.

This episode highlights the importance of advocacy and support in the chronic illness community, inspiring others to take an active role in their health and seek out effective solutions.

*Please note, unfortunately the hosts beloved Mac crashed during this episode, mind the errors in this episode, regardless we want to share Karissa's story, and go give her a follow!*

Custom Intro - Keekz | @Keekz

Guest - Karissa | @chronically_karissa

Creator, Host, & Editor - Mykayla Lynn | @chronitalk