Résultats pour "Rara" dans Hygiène et vie saine

Bienvenue dans “Le QG des Maladies Rares”, un podcast porté par l’association Margot pour la vie. Ici, nous donnons la parole à celles et ceux qui font vivre un projet profondément humain : un lieu d’accueil, d’écoute et d’accompagnement pour les enfants atteints de maladies rares et leurs familles. Guidé par la voix de Gilles Halais, journaliste et narrateur engagé, ce podcast vous plonge au cœur d’une aventure humaine faite d’émotions, de rencontres et d’espoir. Épisode après épisode, vous découvrirez les valeurs, les histoires et les énergies qui donnent vie ...

Rare Medium with Deb Snyder Celebrating life’s rarities, the people, places and experiences that just might be a little bit weird. This podcast explores all facets of our energetic connections…to each other and beyond We’ll dive into the depths of mediumship, psychic ability, intuition, near death experiences, afterlife research, healing modalities and more. Our focus is to bring you relevant and moving accounts with guests who share their authentic selves and their treks into Spiritual and energetic realms. We’ll learn how those experiences shifted their perspectives on life itself. ...

L'idée de ce podcast est de laisser les I.A. expliquer aux plus petits les maladies rares en la vulgarisant le plus possible mais en restant toujours scientifiquement correct. Chaque épisode, un nouvel enfant avec une nouvelle maladie sera expliquée. Hébergé par Ausha. Visitez ausha.co/fr/politique-de-confidentialite pour plus d'informations.

Rare Humans is a podcast about what it really looks like to live — and thrive — with a complex biology in today’s world. Hosted by Kevin and Jack, each episode explores chronic health, blood sugar, energy, mindset, and the daily realities of managing a body that doesn’t follow the “normal” playbook. Through honest conversations, personal stories, and practical insights, Rare Humans is here to help you feel more in control of your health — and remind you that being different might just be your greatest advantage.

Your Podcast for Rare Kidney Conversations Life with a rare kidney disease can be complex, isolating, and often misunderstood. Rare Kidney Source brings together voices from across the community to inform, inspire, and connect people living with rare kidney diseases such as C3 glomerulopathy (C3G) and primary immune-complex membranoproliferative glomerulonephritis (IC-MPGN). Through honest conversations and expert insights, we explore the realities of diagnosis, disease management, and everyday life to empower listeners with knowledge, perspective, and a sense of belonging to navigate their ...

The Rare Rebels™ Podcast shares unscripted conversations with patients, caregivers, advocates, and researchers who are changing the future of rare disease. These aren’t polished soundbites — they’re real voices from the front lines, revealing the humanity, heartbreak, and hope woven into the rare disease experience.Because change doesn’t happen through statistics alone — it happens through connection.Hosted by award-winning storyteller and advocate Melody Joy Paine, Rare Rebels™ brings lived experiences to the forefront, bridging gaps between families, researchers, nonprofits, ...

This podcast is dedicated to raising awareness and sharing the voices of people living with rare disorders in New Zealand.Around one in seventeen New Zealanders are affected by a rare condition. For many, finding answers and support can take years.Here, we speak with individuals, families, and experts to help build greater understanding, connection, and support for the rare disorder community.Thank you for listening and for being part of the Rare Aware journey. For more information, visit www.raredisorders.org.nz

In Rare Stories erzählen Menschen von ihren Erfahrungen mit seltenen Erkrankungen. Sie teilen ihre persönlichen Geschichten, geben wertvolle Alltagstipps und schenken Mut. Auch Angehörige berichten von ihren Erlebnissen, und Expert*innen liefern hilfreiche Einblicke. Jeden Monat eine neue Folge mit inspirierenden Geschichten und spannenden Insights. Hör mal rein und lass dich berühren!

What’s it like living with a rare blood or bone marrow disorder? Or parenting a child who is? This brand new podcast invites people living with these conditions to share their perspectives and advice for those facing similar challenges. How do you carry on feeling positive when someone you know dies as a result of the same condition? How do you explain why your child can’t go to a party? How do you speak up at the hospital when you think doctors need to do something different? Stories of strength and real, practical advice for super rare people and families. -------------------------------...

Fighting sarcoidosis as well as other rare diseases.

Rare Treasures is a podcast all about rare conditions and disabilities. Each episode will focus on a rare disability or condition. We will gather information and statistics as well as interview people affected by the condition.

Welcome to KCNA2 & Rare Epilepsy Podcast, a podcast created for the people living this journey and the people working to understand it. Each episode, hosted by Dr. Nancy Musarra, invites listeners into honest, generous, and sometimes vulnerable conversations with parents, researchers, clinicians, and board members to discuss the daily experiences of living with KCNA2, seizures, and other rare forms of epilepsy. You’ll hear stories, questions, and hopes from people who understand and are living with this disease. Our mission is to raise awareness, build connections and foster hope. This isn...

Programa Dedicado a hablar sobre las Enfermedades Raras, Platica con Pacientes, Familiares, Médicos, Fundaciones y Mas #EnfermedadesRaras #Rarediseases

🎙️ Dessine-moi un cœur – Podcast Le récit intime et courageux d’une battante face à un cancer rare. À travers ce podcast, je partage mon parcours contre une maladie peu connue : la maladie de Paget extra-mammaire secondaire. Quatre années d’errance médicale, de doutes, de douleurs, d’espoir et de combats. Ici, je mets des mots sur l’invisible. Je parle de la peur, de l’annonce, des traitements, de la vie de maman, de femme, et de l’impact d’un cancer rare sur le quotidien. Ce podcast est un espace de vérité, de vulnérabilité et de force. Un témoignage pour ...

Thriving in the Rare is a podcast dedicated to amplifying the voices of individuals living with rare diseases and complex chronic conditions. Through candid conversations with patients, caregivers, and advocates, this series explores what it truly means to move forward in the face of uncertainty, loss, and change.Each episode highlights personal journeys of adaptation—navigating diagnosis, redefining identity, managing invisible symptoms, and finding new ways to live meaningful, connected lives. Guests share how they have transformed challenge into purpose through advocacy, creativity, ...

In rarity we unite, connect and find our way to purpose.

A podcast focused on rare disease research, created by Share4Rare, an initiative by the Sant Joan de Déu Research Foundation that promotes collaborative research and connects patients and families affected by rare diseases worldwide, and by the Weber Foundation. In each episode, we delve into various topics related to advances in rare disease research, featuring expert insights, patient stories, and family perspectives. Let’s explore the Rare Horizons! Hosted on Acast. See acast.com/privacy for more information.

En este podcast entrevistamos a un genetista sobre una enfermedad rara particular, en la fecha en que se conmemora el día internacional o mundial de ese padecimiento, con solo 5 preguntas: ¿qué es? ¿cómo se diagnostica? ¿cómo se trata? ¿por qué conmemorarlo ese día? y ¿dónde buscar más información? Hosted on Acast. See acast.com/privacy for more information.

Dobro došli na podcast! Ovo je naše: “Zašto Rare & Share?”: Tokom lečenja sina od retke bolesti, a posebno nakon izlečenja imali smo prilike da upoznamo sjajne ljude i čujemo vrlo inspirativne priče. Ceo jedan svet sa svojim temama. Ovde ćemo pričati sa onima koji su pokretali lavine događaja, menjali okvire, pomerali granice do tada poznatog. Želimo da razgovaramo o temama koje su važne onima koji se suočavaju sa retkim izazovima kao što su pravni i zakonski okviri, aspekat psihološke podrške, medicinska dostignuća i nove studije. Planiramo razgovarati sa ekspertima, ...

À propos : "RARE à l'écoute" est un podcast dédié à la sensibilisation aux maladies rares et au soutien des personnes touchées par ces affections. Créé par un groupe passionné de professionnels de la santé, le podcast vise à informer les professionnels de santé et fournissant des informations sur les dernières avancées médicales et scientifiques dans le domaine des maladies rares, et inspirer les patients et leurs proches en partageant des histoires de courage et de persévérance.Contenu : 🔍 "RARE à l'écoute" sensibilise les professionnels de santé et le grand public aux...