Couverture de The Odyssey: Parenting. Caregiving. Disability.

The Odyssey: Parenting. Caregiving. Disability.

The Odyssey: Parenting. Caregiving. Disability.

De : Erin Croyle
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 The Odyssey podcast explores the unique journey we're sent on when a loved one has a disability. We dig deep into the joys and hardships. We celebrate how amazing the odyssey of parenting, caregiving, and disability are. But we don't shy away from the tough stuff either. Each episode will explore topics that hit a little different because of our life experience. Our guests' perspective will sometimes bring comfort and other times challenge the way we see the world. centerforfamilyinvolvementblog.org2023 Parentalité Relations Sciences sociales
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  • STEM-Ability Perception vs. Potential: Dismantling Barriers in Education

    STEM-Ability Perception vs. Potential: Dismantling Barriers in Education
    Sep 15 2026
    In Part Two of the STEM-Ability series on The Odyssey of Care, host Erin Croyle and guest Dr. John Fife (Director of the Center for Innovation in STEM Education at VCU) unpack how perceptions - and misperceptions - shape educational opportunities for students with disabilities. Drawing from both lived experiences as parents and professional expertise, Erin and Dr. Fife dive into the systemic challenges plaguing special education and STEM fields: from underfunded mandates like IDEA to deficit-based models that fixate on limitations rather than strengths. They explore why standard "inclusion" isn't enough and why creating a genuine sense of belonging, nurturing self-determination, and holding high-expectations are critical to helping neurodivergent and disabled students build their own identity and thrive. What You'll Learn: Identity Construction: Why self-advocacy and a strong sense of identity protect students against bias and othering. Belonging vs. Inclusion: Why true connection matters far more than just placing a student in a classroom. Systemic Hurdles: How underfunded mandates and under-resourced educators create systemic gaps for families. Strength-Based Support: Shifting from deficit-driven labels to talent-focused frameworks in STEM and general education. Show Notes and Links: Listen to STEM-Ability Episode 1: Designing a Future Where Everyone Fits Learn more about: Center for Innovation in STEM Education or CISTEME Dr. John Fife VCU RRTC: Rehabilitation Research and Training Center TRANSCRIPT: 01;00;13;21 - 01;00;16;18 Erin Croyle Welcome to the Odyssey of Care. 01;00;16;21 - 01;00;19;13 Erin Croyle I'm Erin Croyle, the creator and host. 01;00;19;15 - 01;00;29;23 Erin Croyle The Odyssey is the same as it ever was, just with a slightly shorter name. This podcast explores how our lives change when a loved one has a disability. 01;00;29;26 - 01;00;32;13 Erin Croyle I was lucky enough to head down this less traveled road 01;00;32;19 - 01;00;36;06 Erin Croyle when my first child was born with down syndrome in 2010. 01;00;36;09 - 01;00;39;26 Erin Croyle At the time, I was a journalist working in Southeast Asia. 01;00;39;29 - 01;00;45;28 Erin Croyle My career and life shifted dramatically after Arlo and then his two siblings entered the picture. 01;00;46;01 - 01;00;50;22 Erin Croyle Now I'm a communication specialist determined to help people with disabilities 01;00;50;25 - 01;00;51;24 Erin Croyle and their families 01;00;51;24 - 01;00;56;15 Erin Croyle get the help, support and validation they need. 01;00;56;18 - 01;01;00;16 Erin Croyle This podcast explores the triumphs and hardships we face. 01;01;00;19 - 01;01;06;09 Erin Croyle We celebrate the joys that the odyssey of parenting, caregiving, and disability bring. 01;01;06;12 - 01;01;09;04 Erin Croyle we don't shy away from the tough stuff. 01;01;09;06 - 01;01;16;11 Erin Croyle Navigating education and transitioning to adulthood is at the top of the tough list for many. 01;01;16;13 - 01;01;19;00 Erin Croyle part two of our Stem ability series, 01;01;19;07 - 01;01;23;09 Erin Croyle which is doing a deep dive into an exciting new initiative 01;01;23;12 - 01;01;27;04 Erin Croyle to improve employment outcomes for individuals with disabilities 01;01;27;07 - 01;01;28;25 Erin Croyle through evidence based training, 01;01;28;28 - 01;01;30;21 Erin Croyle emerging technologies, 01;01;30;23 - 01;01;32;27 Erin Croyle strategic employer partnerships. 01;01;33;00 - 01;01;39;21 Erin Croyle We're going to explore the role perceptions or perhaps misperceptions play in all of this. 01;01;39;24 - 01;01;42;17 Erin Croyle Joining me again is Doctor John 01;01;42;19 - 01;01;49;29 Erin Croyle associate research professor of Stem education and director of the center for innovation in Stem Education 01;01;50;06 - 01;01;58;12 Erin Croyle at Virginia Commonwealth University. 01;01;58;15 - 01;02;01;01 Erin Croyle Doctor Fife, welcome 01;02;01;04 - 01;02;03;13 John Fife Thank you so much. thank you for having me. 01;02;03;13 - 01;02;09;17 Erin Croyle For anyone who wants your full origin story, I highly recommend listening to our first episode in this series, 01;02;09;24 - 01;02;11;00 Erin Croyle which I'll link in the show notes. 01;02;11;06 - 01;02;18;01 Erin Croyle to summarize, can you give us a brief overview of what brought you here and your role with this initiative, 01;02;18;04 - 01;02;50;22 John Fife Absolutely. So as I mentioned before, I was born and raised in Trinidad and Tobago. And of course, Trinidad was impacted by colonialism and Trinidad was colonized by the French, the Spanish and then the English and gained its independence in 1962. And I think that's relevant to my story, because the story of colonialism is a story of the privileged versus the non privilege, and colonialism is perhaps the best universally understood tool of marginalization to really think about it in that way. 01;02;50;24 - 01;03;25;24 John Fife I was raised to ...
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    33 min
  • STEM-Ability: Designing a Future Where Everyone Fits

    STEM-Ability: Designing a Future Where Everyone Fits
    Jun 30 2026
    Welcome to the debut of STEM-Ability, a brand-new series from The Odyssey of Care. In this episode, we sit down with Dr. John Fife, Director of the Center for Innovation in STEM Education at Virginia Commonwealth University, to explore a new and ambitious five-year initiative. As the workforce shifts rapidly in the age of AI, how do we ensure students with disabilities aren't just included, but empowered to thrive? Dr. Fife and host Erin Croyle discuss the intersection of innovation, vocational rehabilitation, and the vital role that lived experience plays in shaping systemic change. Whether you are a parent, educator, or student, join us as we explore how this groundbreaking project is turning evidence-based research into real-world opportunity. What you'll learn: How to prepare for the "moving target" of the future job market. The essential role of vocational rehabilitation in the modern STEM and education/workforace landscape as a whole. Why your voice matters—and how you can help shape this research in real-time. SHOW NOTES: Learn more about: Center for Innovation in STEM Education or CISTEME Dr. John Fife VCU RRTC: Rehabilitation Research and Training Center TRANSCRIPT: 01;00;13;23 - 01;00;16;25 Erin Croyle Welcome to the Odyssey of Care. 01;00;16;28 - 01;00;19;10 Erin Croyle I'm Erin Croyle, the creator and host. 01;00;19;13 - 01;00;22;00 Erin Croyle The Odyssey is the same as it ever was, 01;00;22;03 - 01;00;24;18 Erin Croyle just with a slightly shorter name. 01;00;24;21 - 01;00;27;25 Erin Croyle This podcast explores how our lives change 01;00;27;28 - 01;00;30;15 Erin Croyle when a loved one has a disability. 01;00;30;18 - 01;00;36;13 Erin Croyle was lucky enough to head down this less traveled road when my first child was born with down syndrome in 2010. 01;00;36;16 - 01;00;40;14 Erin Croyle At the time, I was a journalist working in Kuala Lumpur, Malaysia. 01;00;40;17 - 01;00;46;18 Erin Croyle My career and life shifted dramatically after Arlo and his two siblings entered the picture. 01;00;46;21 - 01;00;49;00 Erin Croyle Now I'm a communication specialist 01;00;49;03 - 01;00;52;05 Erin Croyle determined to help people with disabilities and their families 01;00;52;08 - 01;00;56;03 Erin Croyle get the help, support and validation they 01;00;56;06 - 01;00;59;21 Erin Croyle This podcast explores the triumphs and hardships we face. 01;00;59;24 - 01;01;04;17 Erin Croyle We celebrate the joys that the odyssey of parenting, caregiving, and disability bring. 01;01;04;20 - 01;01;08;10 Erin Croyle we don't shy away from the tough 01;01;08;12 - 01;01;12;19 Erin Croyle Few things are more challenging than navigating through the school system 01;01;12;22 - 01;01;14;28 Erin Croyle the transition to adulthood. 01;01;15;01 - 01;01;18;29 Erin Croyle This episode is the first in our Stem ability series, 01;01;19;03 - 01;01;22;28 Erin Croyle which is doing a deep dive into an exciting new initiative 01;01;23;01 - 01;01;28;18 Erin Croyle to improve employment outcomes for people with disabilities through evidence based training, 01;01;28;20 - 01;01;30;14 Erin Croyle emerging technologies, 01;01;30;16 - 01;01;32;29 Erin Croyle strategic employer partnerships. 01;01;33;02 - 01;01;37;27 Erin Croyle This series has something for everyone students, professionals, parents, caregivers, educators. The list goes on and on. 01;01;40;15 - 01;01;44;08 Erin Croyle Joining me today to break this all down is Doctor John 01;01;44;11 - 01;01;47;17 Erin Croyle associate research professor of Stem education 01;01;47;19 - 01;01;51;12 Erin Croyle director of the center for innovation in Stem Education 01;01;51;15 - 01;01;57;12 Erin Croyle at Virginia Commonwealth University. 01;01;57;15 - 01;01;59;16 Erin Croyle Doctor Fife, welcome. 01;01;59;19 - 01;02;00;15 John Fife Thank you. 01;02;00;21 - 01;02;06;10 Unknown I'm so excited to talk to you about this initiative, but I want to start with your origin story. 01;02;06;12 - 01;02;08;01 Erin Croyle Your bio is so impressive. 01;02;08;04 - 01;02;11;21 Erin Croyle you've studied at VCU, which is of course in Richmond, Virginia, 01;02;11;23 - 01;02;22;23 Erin Croyle you've got your undergrad degrees in Boston, one of my favorite cities. Your work deals with so much intersectionality. Can you start by sharing a bit about how you landed where you are today? 01;02;22;25 - 01;02;47;29 Erin Croyle Thank you so much, Erin, and it's good to be here. Thank you for the invitation. Yeah. So currently, as you mentioned, the director of the center for innovation and Stem education, what we call systemic and the mission of our center really is to reach the missing millions by creating in the disciplinary research, outreach and training opportunities so that students can really develop their knowledge and skills to enhance the Stem workforce. 01;02;48;00 - 01;02;50;11 John Fife What we're also very interested 01;02;50;13 - 01;03;10;27 John Fife in providing professional ...
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    20 min
  • Bridging the Gap: Infant Mental Health & Early Intervention

    Bridging the Gap: Infant Mental Health & Early Intervention
    May 9 2026
    In this special joint episode, The Odyssey: Parenting. Caregiving. Disability. teams up with Meaningful Moments to explore the vital connection between infant mental health and early intervention. Hosts Erin Croyle and Lisa Terry bring together the personal journey of parenting children with developmental delays with the systems designed to support it. This episode covers: The Power of Lived Experience: How personal journeys with disability shape the way families navigate early childhood systems. Defining Infant Mental Health: Moving beyond clinical terms to focus on the emotional connection and well-being of both the child and the caregiver. Early Intervention: Why "being present in the moment" during home visits is the cornerstone of effective developmental services. SHOW NOTES/RESOURCES: Meaningful Moments Podcast The Odyssey Podcast Center for Family Involvement Virginia Early Intervention Professional Development Center (VEIPD) Partnership for People with Disabilties Virginia Department of Behavioral Health and Developmental Services Meaningful Moments Podcast The Odyssey Podcast Center for Family Involvement Virginia Early Intervention Professional Development Center (VEIPD) Partnership for People with Disabilties Virginia Department of Behavioral Health and Developmental Services TRANSCRIPT: Welcome to a special joint episode of The Odyssey: Parenting. Caregiving. Disability, and Meaningful Moments connecting infant mental health to early intervention. Both podcasts are brought to you by the Partnership for People with Disabilities at Virginia Commonwealth University. Meaningful moments is a collaborative effort with the Virginia Department of Behavioral Health and Developmental Services, brought to you through a contract with the Partnership. 01;00;33;00 - 01;00;42;09 The Odyssey is part of my work with the Center for Family Involvement. My name is Erin Croyle. I'm a journalist who's worked for National Geographic and Al Jazeera English, both in the states and overseas. When my first child was born with Down syndrome in 2010, my life changed in so many unexpected ways, including a career shift that brought me here working with the center for Family Involvement, where staff and volunteers with lived experience provide emotional and information support to people with disabilities and their families. 01;01;05;02 - 01;01;10;19 I started the Odyssey podcast to share the struggles and triumphs that families like ours face, as well as resources, because I know all too well how different this journey is through life. When you have a loved one with a disability. 01;01;18;22 - 01;01;27;22 Thanks, Erin, I'm so excited to collaborate with you. And my name is Lisa Terry and I really bring a lot of different experience and early intervention. 01;01;27;23 - 01;01;51;18 I've been a service coordinator, a supervisor, and provide developmental services. I still do that actually still go into the homes as a developmental services provider, which I love, being there and being present in the moment with the families. I am endorsed as an infant mental health mentor and research and faculty, and I co facilitate the Division of Early Childhood and Fit Mental health, community of practice. 01;01;51;21 - 01;02;21;12 And really my professional purpose I feel like has just been unwavering. I am so passionate about just fostering that connection and nurturing the emotional well-being of all families through meaningful and collaborative support. So I'm so excited to be here with Erin today, so we can really join our podcast together and really have a great discussion around infant mental health in the center for Family Involvement. 01;02;21;14 - 01;02;24;03 And, Lisa, I want to start right off; and I gotta ask, think about mental health, I think about my own. I think about adults, I think about older kids. But what exactly is infant mental health? Yeah, and that is a great question because I feel like there's really this huge stigma around the word right, even for mental health every time we talk about it. 01;02;43;01 - 01;03;04;27 So we're talking about young children and infant mental health. Like what does that mean. And people ask us that all the time. And first and foremost, I just want to say the foundation of infant mental health is all about relationships, right? It's that connection between the caregiver and that child. It's those meaningful bonds with all relationships that we want. 01;03;04;28 - 01;03;28;09 So even if I'm going in as a provider, that relationship is still just as important because we want to make sure that they're trusting relationships that are surrounding that family. Right. And we're all born to connect. We need those supportive, those nurturing relationships to truly thrive in our environments. And for me, I guess one of the most important aspects is supporting the social emotional well-being of all families. 01;03;28;09 - 01;03;31;25 And that's how I ...
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    27 min
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