Have you heard of Kleine Levin Syndrome (KLS) or "Sleeping Beauty Syndrome"? In this captivating episode of The Medical Maze podcast, we sit down with Bethany, who bravely shares her journey living with this extremely rare condition that causes her to sleep for weeks at a time. Bethany discusses the challenges of getting diagnosed, the major impacts KLS has had on her life, relationships and ability to work and attend school, and how medication has helped manage her condition. She provides an honest glimpse into the realities of this often misunderstood disorder. Whether you're facing a medical mystery of your own or simply curious to learn about rare conditions, you won't want to miss Bethany's inspiring story of resilience. Tune in now and please share to spread awareness! #KleineLevinSyndrome #SleepingBeautySyndrome #RareDisease #Narcolepsy #SleepDisorders #MedicalMysteriesSolved #MedicalResearch #UnusualDiagnosis

Join us on a fascinating journey as we delve into the world of Jordan syndrome with Michelle and her daughter. Discover the unique challenges and triumphs faced by individuals living with this ultra-rare neurological disorder. #medicalpodcast #raredisease #disease

In this powerful and moving episode of The Medical Maze podcast, host Don-Ellen Ray has an intimate conversation with her cousin Brooke Abner about her son Jackson's courageous battle with a rare brain tumor called Pilomyxoid Astrocytoma. Brooke vulnerably shares the heartbreaking challenges and miraculous triumphs her family has faced over 12 years as Jackson defied all medical odds. From misdiagnosis to hemorrhages to chemotherapy to special needs, Brooke opens up about the unimaginable difficulties of navigating the complex medical system while fighting for her son's life. Yet through it all, her steadfast faith, unconditional love, and Jackson's indomitable spirit shine through. Brooke also shares words of wisdom for supporting families of children with cancer, disabilities or special needs. This unforgettable story will move you to tears, inspire you with hope, and motivate you to spread more compassion. Because no matter the prognosis, a mother's love knows no bounds. #PilomyxoidAstrocytoma #ChildhoodCancer #BrainTumor #SpecialNeedsParenting #MiracleChild #MothersLove #Autism #Faith #MedicalMaze #PodcastEpisode