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The Late Diagnosis Club

The Late Diagnosis Club

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The Late Diagnosis Club is a podcast by and for adults who found they were neurodivergent later-in-life. Hosted by Story Steward Dr. Angela Kingdon, this show features honest conversations with neurodivergent guests navigating the identity shock of late diagnosis or self-identification. Each episode explores neurodivergent traits through a cultural lens, debunks stereotypes, and offers solidarity for those processing family dynamics, unmasking, and reclaiming long-buried SPINs. Whether you’re self-identified or medically diagnosed, this club has been saving you a seat and helps you feel at home in your neurodivergent self.


🌈 Celebrate autistic voices with early access, ad-free listening, and our full archive at AutisticCulturePlus.com

🌐 Visit www.autisticculturepodcast.com

📲 Follow us on Instagram: @autisticculturepodcast

Hosted on Acast. See acast.com/privacy for more information.

Autistic Culture Institute Hygiène et vie saine Sciences sociales
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    Épisodes
    • How Sarma Realised She Was Autistic After Everything Fell Apart

      How Sarma Realised She Was Autistic After Everything Fell Apart
      Jan 23 2026
      In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Sarma Melngailis, a late-identified Autistic woman whose life unfolded in public long before she had language for her neurodivergence.Sarma was once a celebrated New York restaurateur and entrepreneur. Years later, she became the subject of global scrutiny following a highly publicised documentary that framed her story through scandal rather than context. She was not diagnosed as Autistic until age 51, after everything had already happened.In this conversation, Sarma speaks candidly about sensory overwhelm, being misread as cold or suspicious, vulnerability to coercive control, and how not knowing she was Autistic shaped her relationships, business decisions, and sense of self. This episode is not about scandal — it’s about what happens when a life is interpreted through the wrong lens, and what becomes possible when the right one finally arrives.🪑 AttendeesChair: Dr Angela Kingdon — Author, community-builder, and Autistic advocateGuest: Sarma Melngailis — late-identified Autistic author and entrepreneurYou: The Listener!🗒️ Meeting AgendaOpening remarks from the ChairMember introduction: Public success without private understandingDiscussion: Late diagnosis, vulnerability, and coercive controlBeing misread: affect, communication, and media narrativesSensory processing, burnout, leadership, animals, justice sensitivity, and belongingKey learningsClub announcements🧾 Minutes from the Meeting1️⃣ Opening RemarksAngela introduces Sarma as a member whose story was widely told before it was widely understood. While the public narrative focused on spectacle and suspicion, Sarma’s lived experience was shaped by sensory overwhelm, misinterpretation, and deep vulnerability — all without the context of an autism diagnosis.2️⃣ Member Introduction: Sarma’s StorySarma describes growing up feeling different without knowing why, gravitating toward misfits and animals, and navigating adulthood with intense sensory sensitivity and a strong drive toward justice and care.Her autism was first suggested not by clinicians, but by viewers of a documentary who recognised themselves in her, many of them late-diagnosed Autistic adults.3️⃣ Discussion HighlightsLate diagnosis at 51: Recognition after public life and collapseMisinterpretation: Flat affect, pauses, and Autistic communication framed as guilt or deceptionCoercive control: How Autistic trust and literal thinking increase vulnerabilityBeing “seen”: Why manipulative attention can feel like understandingPublic narratives: Harm caused by edited stories and missing contextSensory overload: Sound, scent, and cumulative exhaustion in high-pressure environmentsAnimals and connection: Deep attachment as regulation and groundingSafeguards: Learning to listen to trusted outsiders and name red flags4️⃣ Key LearningsNot knowing you’re Autistic can increase vulnerability to exploitationBeing articulate and successful does not protect against harmAutistic affect is often misread through a moral lensClarity does not erase the past — but it can soften self-blameCommunity and outside perspective are protective factorsHaving language for your nervous system changes what you tolerate📌 Notice BoardPeople Magazine — Sarma Melngailis on Autism DiagnosisSarma Melngailis on InstagramThe Girl with the Duck Tattoo — Book WebsiteSarma Raw — Personal Website📣 Club Announcements🎧 The Late Diagnosis Club is available on Spotify, Apple Podcasts, and all major platforms.💬 Join our online meetups and community at latediagnosis.club.📌 Check the LDC Notice Board for Member Contributions💜 There is a small charge — but no one is turned away for lack of funds.🌈 Celebrate autistic voices with early access, ad-free listening, and our full archive at AutisticCulturePlus.com🌐 Visit www.autisticculturepodcast.com📲 Follow us on Instagram: @autisticculturepodcast🎙️ Executive Producers: Amy Burns, Anamaria B Call, Andrew Banner, Anna Goodson, Ashley Apelzin, Audrea Volker, Ben Coulson, Brian Churcek, Cappy Hamper, Carley Biblin, Charlene Deva, Chloe Cross, Clay Duhigg, Clayton Oliver, Danny Dunn, Daria Brown, David Garrido, Emily Burgess, Eric Crane, Erik Stenerud, Fiona Baker, Grace Norman, Helen Shaddock, Jaimie Collins, Jason Killian, Jen Unruh, Jennifer Carpenter, Julia Tretter, Kathie Watson-Gray, Kenneth Knowles, Kira Cotter, Kristine Lang, Kyle Raney, Llew P Williams, Laura Alvarado, Laura De Vito, Laura Provonsha, Lily George, Nelly Darmi, Nigel Rogers, Rachel Miller, Tim Scott, Tyler Kunz, Victoria Steed, Yanina Wood.🎧 Producers: AJ Knight, Bobby Simon, Da Kovac, Eleanor Collins, Emily Griffiths, Hannah Hughes, Jennifer Kemp, Jonas Fløde, Kate F, Katie N Benitez, Kendra Murphy, Lisa Dennys, Logan Wall, Louise Lomas, Melissa Nance, Nicola Owen, Rebecka Johansson, Sam Morris, Sarah Hannah Morris. Hosted on Acast. See acast.com/privacy for more ...
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      1 h et 9 min
    • How George Realised They Were Autistic While Studying Autism

      How George Realised They Were Autistic While Studying Autism
      Jan 16 2026
      In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes George Watts, a neurodivergent researcher, parent, and PhD candidate whose path into autism research began before realising they were autistic themselves.George first studied autism from the outside, absorbing dominant behavioural frameworks and evidence-based models that promised to “help” Autistic people. It wasn’t until they encountered Autistic voices, community, and their own reflection in the literature that their understanding — and their life — fundamentally shifted.Together, Angela and George explore late identification, burnout, childbirth, internalised deficit models, the harm of behaviourism, and what becomes possible when Autistic people stop being studied in isolation and start building community together. This episode centres Autistic quality of life — not as an abstract metric, but as a lived, relational experience grounded in belonging, autonomy, and joy.🪑 AttendeesChair: Dr Angela Kingdon — Author, community-builder, and Autistic advocateGuest: George Watts — Autistic researcher, PhD candidate, and parentYou: The Listener!🗒️ Meeting AgendaOpening remarks from the ChairMember introduction: Childhood signs without diagnosisDiscussion: Burnout, childbirth, late identification, unlearning behaviourism and deficit-based modelsAutistic parenting and education research shaped by lived experienceKey learningsClub announcements🧾 Minutes from the Meeting1️⃣ Opening RemarksAngela introduces George as a researcher whose academic path into autism began long before they understood their own neurodivergence. Early training framed autism as a problem to be fixed — with behavioural intervention positioned as the solution.This episode traces what happens when that framework begins to crack.2️⃣ Member Introduction: George’s StoryGeorge returned to university as a mature student, studying autism after years of precarious work, burnout, and unrecognised neurodivergence. As they immersed themselves in autism literature, moments of resonance accumulated — until self-recognition became unavoidable.Childbirth, sensory overload, and years of misattributed mental health struggles came into focus through a new lens. What had once been framed as personal failure or psychological fragility was re-understood as the cost of navigating a world not built for Autistic nervous systems.3️⃣ Discussion HighlightsLate identification: Studying autism before recognising it in yourselfBurnout and childbirth: Sensory overwhelm and unmet support needsUnlearning behaviourism: Letting go of ABA as “help”Community as intervention: Autistic people supporting each otherQuality of life: Shifting research focus from causes and cures to belongingAutistic parenting: Reducing unnecessary demands and honouring regulationResearch from the inside: Autistic-led questions shaping the field4️⃣ Key LearningsUnderstanding autism can reframe decades of self-blameBehavioural compliance is not the same as well-beingQuality of life looks different for Autistic people — and should be defined by themCommunity and belonging are not extras; they are foundationalAutistic-led research changes what we ask — and what matters📌 Notice BoardGeorge Watts — YouTube talkAutism Studies (FutureLearn course)Research paper: A Certain MagicGrove Neurodivergent Mentoring and EducatingAutistic Quality of Life Measure (ASQoL)📣 Club Announcements🎧 The Late Diagnosis Club is available on Spotify, Apple Podcasts, and all major platforms.💬 Join our online meetups and community at latediagnosis.club.📌 Check the LDC Notice Board for Member Contributions💜 There is a small charge — but no one is turned away for lack of funds.🌈 Celebrate autistic voices with early access, ad-free listening, and our full archive at AutisticCulturePlus.com🌐 Visit www.autisticculturepodcast.com📲 Follow us on Instagram: @autisticculturepodcast🎙️ Executive Producers: Amy Burns, Anamaria B Call, Andrew Banner, Anna Goodson, Ashley Apelzin, Audrea Volker, Ben Coulson, Brian Churcek, Cappy Hamper, Carley Biblin, Charlene Deva, Chloe Cross, Clay Duhigg, Clayton Oliver, Danny Dunn, Daria Brown, David Garrido, Emily Burgess, Eric Crane, Erik Stenerud, Fiona Baker, Grace Norman, Helen Shaddock, Jaimie Collins, Jason Killian, Jen Unruh, Jennifer Carpenter, Julia Tretter, Kathie Watson-Gray, Kenneth Knowles, Kira Cotter, Kristine Lang, Kyle Raney, Llew P Williams, Laura Alvarado, Laura De Vito, Laura Provonsha, Lily George, Nelly Darmi, Nigel Rogers, Rachel Miller, Tim Scott, Tyler Kunz, Victoria Steed, Yanina Wood.🎧 Producers: AJ Knight, Bobby Simon, Da Kovac, Eleanor Collins, Emily Griffiths, Hannah Hughes, Jennifer Kemp, Jonas Fløde, Kate F, Katie N Benitez, Kendra Murphy, Lisa Dennys, Logan Wall, Louise Lomas, Melissa Nance, Nicola Owen, Rebecka Johansson, Sam Morris, Sarah Hannah Morris. Hosted on Acast. See acast.com/privacy for more ...
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      50 min
    • How Julie Understood Herself After Raising an Autistic Child

      How Julie Understood Herself After Raising an Autistic Child
      Jan 9 2026
      In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Julie M. Green, a writer, Autistic mother, and late-identified Autistic woman whose self-recognition unfolded through parenting. Julie’s story begins not with her own diagnosis, but with her son’s. As she learned how to support an Autistic child, she slowly began to recognise familiar patterns in herself — sensory sensitivity, rigidity, perfectionism, chronic illness, and lifelong shyness that had always been framed as personality flaws rather than neurodivergence.Together, Angela and Julie explore maternal guilt, masking across decades, self- and formal diagnosis, and what changes — and what doesn’t — when you finally have language for your nervous system.🪑 AttendeesChair: Dr Angela Kingdon — Author, community-builder, and Autistic advocateGuest: Julie M. Green — Autistic writer, Author, and motherYou: The Listener!🗒️ Meeting AgendaOpening remarks from the ChairMember introduction: Childhood signs without diagnosisDiscussion: Parenting an autistic child while recognising autism in yourselfMasking, perfectionism, and decades of mislabelingSelf-diagnosis, formal diagnosis, and imposter syndromeKey learningsClub announcements🧾 Minutes from the Meeting1️⃣ Opening RemarksAngela introduces Julie as a member whose story begins in a paediatrician’s office — not for herself, but for her son. What started as advocacy and research quickly became a mirror, reflecting traits Julie had carried since childhood but never had language for.2️⃣ Member Introduction: Julie’s StoryJulie grew up in the 1970s and 80s as a highly anxious, perfectionistic, and extremely shy child. Changes in routine triggered meltdowns, collections were rigidly organised, and sensory sensitivities shaped daily life — all framed at the time as personality flaws or the result of being an only child.In school, Julie was quiet, compliant, and high-achieving. Anxiety and perfectionism were invisible to teachers, while internal distress went unnamed.Years later, as a first-time mother, Julie struggled with sensory overload, shutdowns, and intense guilt. When her son was diagnosed with autism at age three, Julie immersed herself in research — first to support him, and eventually to understand herself.3️⃣ Discussion HighlightsMasking and mislabeling: Shyness, rigidity, and perfectionism framed as flawsMaternal guilt: Internalising blame for sensory overwhelm and burnoutSelf-recognition: Seeing autistic traits through parenting without immediately claiming identityDiagnosis decisions: Self-diagnosis, formal assessment, and imposter syndromeDisclosure: Navigating silence, validation, and scepticism from othersAutistic parenting: Modelling boundaries, regulation, and self-advocacy4️⃣ Key LearningsAutism can become visible through caregiving before self-recognitionCompliance and quiet achievement often hide distressFormal diagnosis may change nothing — and everythingSelf-diagnosis is valid; seeking assessment is a personal choiceModelling boundaries is a powerful form of parentingUnderstanding yourself can reduce shame across generations📌 Notice BoardLink for Julie’s book: Motherness: A Memoir of Generational Autism, Parenthood, and Radical AcceptanceJulie’s Substack: https://theautisticmom.substack.com/📣 Club Announcements🎧 The Late Diagnosis Club is available on Spotify, Apple Podcasts, and all major platforms.💬 Join our online meetups and community at latediagnosis.club.📌 Check the LDC Notice Board for Member Contributions💜 There is a small charge — but no one is turned away for lack of funds.🌈 Celebrate autistic voices with early access, ad-free listening, and our full archive at AutisticCulturePlus.com🌐 Visit www.autisticculturepodcast.com📲 Follow us on Instagram: @autisticculturepodcast🎙️ Executive Producers: Amy Burns, Anamaria B Call, Andrew Banner, Anna Goodson, Ashley Apelzin, Audrea Volker, Ben Coulson, Brian Churcek, Cappy Hamper, Carley Biblin, Charlene Deva, Chloe Cross, Clay Duhigg, Clayton Oliver, Danny Dunn, Daria Brown, David Garrido, Emily Burgess, Eric Crane, Erik Stenerud, Fiona Baker, Grace Norman, Helen Shaddock, Jaimie Collins, Jason Killian, Jen Unruh, Jennifer Carpenter, Julia Tretter, Kathie Watson-Gray, Kenneth Knowles, Kira Cotter, Kristine Lang, Kyle Raney, Llew P Williams, Laura Alvarado, Laura De Vito, Laura Provonsha, Lily George, Nelly Darmi, Nigel Rogers, Rachel Miller, Tim Scott, Tyler Kunz, Victoria Steed, Yanina Wood.🎧 Producers: AJ Knight, Bobby Simon, Da Kovac, Eleanor Collins, Emily Griffiths, Hannah Hughes, Jennifer Kemp, Jonas Fløde, Kate F, Katie N Benitez, Kendra Murphy, Lisa Dennys, Logan Wall, Louise Lomas, Melissa Nance, Nicola Owen, Rebecka Johansson, Sam Morris, Sarah Hannah Morris. Hosted on Acast. See acast.com/privacy for more information.
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      46 min
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