Couverture de Staying Connected – Staying Connected

Staying Connected – Staying Connected

Staying Connected – Staying Connected

De : Katie Wright
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 with Vascular and Aortic Connective Tissue ConditionsTranslucent One LLC Hygiène et vie saine Maladie et pathologies physiques Sciences sociales
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    Épisodes
    • Bridgette

      Bridgette
      Apr 29 2018
      Welcome to the first episode of Staying Connected! I started Staying Connected as way to connect with other people diagnosed or impacted by vascular Ehlers Danlos Syndrome (vEDS). In today’s episode, I talk to Bridgette, who was diagnosed in her early twenties following an angiogram that went terribly wrong. She needed twelve surgeries to save …

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      33 min
    • Deborah and Soren

      Deborah and Soren
      May 27 2018
      In this episode I talk to Deborah, whose 9 year old son was diagnosed with Vascular Ehlers Danlos Syndrome (vEDS) at the age of five. We hear about the road to diagnosis, changes they’ve made to his daily life, and coping strategies. To learn more about Deborah’s books and to get one, visit http://www.amazon.com/author/daroach
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      28 min
    • Shannon

      Shannon
      Jun 24 2018
      Today I talk to Shannon, who was diagnosed with both the vascular and classical types of Ehlers Danlos Syndrome. She is just shy of 32 years old and has lived through 32 surgeries related to complications from EDS! If you would like to share your story with VEDS on this podcast, reach out to me …

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      53 min
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