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Sickle Cell and the Mind - A Mental Wellness Podcast

Sickle Cell and the Mind - A Mental Wellness Podcast

De : European Sickle Cell
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Sickle Cell and the Mind – A Mental Wellness Podcast is a groundbreaking initiative by the European Sickle Cell Federation (ESCF). Our mission is to create a safe and open space where individuals across Europe and beyond can connect, share their experiences, and engage in honest discussions about the impact of sickle cell on mental health. Through real stories, expert insights, and community-driven conversations, we aim to break the silence, challenge stigma, and provide much-needed support to those navigating this journey.European Sickle Cell Hygiène et vie saine Psychologie Psychologie et psychiatrie
Épisodes
  • Transition: Paediatric to Adult Services
    May 30 2025

    The transition from paediatric to adult care is a pivotal moment for young people living with sickle cell. It’s a time filled with new responsibilities, shifting healthcare dynamics, and, for many, the challenge of advocating for themselves in unfamiliar medical settings. But how well are healthcare systems supporting this transition? And what needs to change?

    In this special episode, Novo Nordisk joins ESCF for a vital discussion on the gaps, challenges, and opportunities in bridging the paediatric-to-adult care divide.

    What does a seamless transition look like? How can young adults with sickle cell feel empowered to take control of their own care? And what role do healthcare providers, policymakers, and support networks play in making this journey smoother?

    Join Tonya Brailey, Lora Ruth Wogu and Jenica Leah for an insightful and solution-driven conversation.


    Sponsored by Novo Nordisk and Pfizer


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    39 min
  • Romance, Sex & Sickle Cell
    May 16 2025

    Love, relationships, and intimacy—topics that are often complex, but even more so when living with sickle cell. How do chronic pain, fatigue, and hospital stays impact dating and long-term relationships?

    In this episode, our guests open up about the realities of navigating romance with a chronic illness. From disclosing their condition to a partner, to dealing with the emotional and physical challenges of intimacy, we explore the highs, the lows, and everything in between.

    How can people with sickle cell build healthy, fulfilling relationships? What role does education and awareness play in breaking down stigma? And how can partners better support those living with the condition?

    Join host Imaarl Duprey and guest Manny and Miriam in this must-listen discussion for anyone in the sickle cell community—whether you're single, dating, or in a long-term relationship.

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    34 min
  • The Dread of Hospitalisation
    May 2 2025

    For many living with sickle cell, hospital visits are not just a possibility—they’re a certainty. But beyond the physical pain, hospitalisation can bring fear, anxiety, and even trauma. From being dismissed or misunderstood by medical staff to the emotional toll of frequent admissions, the experience can deeply impact mental well-being.

    In this episode, a patient and a carer share their stories of hospital stays—the good, the bad, and the truly difficult. How does repeated hospitalisation affect mental health? What needs to change in healthcare settings to better support sickle cell patients? And how can individuals and families prepare for these inevitable moments?

    Join host Leah Lewin and guests Hayley and Funmi for a raw and necessary conversation about the emotional side of hospital care.

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    36 min
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