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In the final episode of Season 4, the Hidradenitis SuppuraDivas sit down for an honest, unfiltered conversation shaped entirely by your questions.

This finale explores what it really looks like to live with HS in everyday life—deciding when to show up and when to rest, how to respond to insensitive comments, and how to protect your mental health without shrinking yourself. The hosts talk candidly about boundaries, self-advocacy, grief, burnout, and the complicated emotions that come with visibility—especially in advocacy spaces.

They also pull back the curtain on what advocacy actually requires: the emotional labor, the physical toll, the exhaustion behind conferences and travel, and the reality that meaningful change is slow, intentional work rooted in consistency—not virality.

This episode is a reminder that:

• You don’t owe anyone access to your pain
• Letting people think what they want is sometimes the strongest choice
• Advocacy comes in many forms—and all of them matter
• Rest is not quitting
• And showing up imperfectly is still showing up

As Season 4 comes to a close, this conversation centers compassion, honesty, and permission—to take breaks, to speak up, to keep going, or to pause when you need to.

Thank you for walking with us this season.
We’ll see you in the next chapter.

For resources, advocacy opportunities, and ways to get involved, visit hsconnect.org.

This podcast was made possible by our sponsors UCB and Sanofi.