Couverture de Rainbow Group - Live Well with Sight Loss

Rainbow Group - Live Well with Sight Loss

Rainbow Group - Live Well with Sight Loss

De : Antony Horner
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À propos de ce contenu audio

The Live Well with Sight Loss podcast brings you honest, informative, and inspiring talks about navigating life with visual impairment. Each month, we invite expert guests to share their knowledge, personal experiences, and practical advice during our live Zoom sessions, which are later released as audio episodes.


From medical insights on conditions like Charles Bonnet Syndrome, Macular Degeneration, and Glaucoma to practical skills such as cooking without sight and optimising lighting, our diverse topics address the full spectrum of visually impaired living.


We explore innovative treatments like gene therapy, discuss essential health considerations for conditions like diabetes, and highlight the creative and sporting achievements of visually impaired artists, poets, comedians and athletes.


Whether you're personally affected by sight loss, supporting someone who is, or working in the field, our podcast offers valuable information, emotional support, and a sense of community. Join our growing audience as we navigate the challenges, celebrate the triumphs, and discover new possibilities in living well with sight loss.


Our History


In March 2020, with the country in lockdown due to the Coronavirus Pandemic, 5 local sight loss charities faced the problem of how to help relieve the isolation faced by many blind and partially sighted people, made even worse by the restrictions in force due to the Pandemic.


The idea to hold a series of virtual events, where experts in various aspects of sight loss were invited to give a talk via the Zoom video conferencing platform, was born. In 2021, Visionary, an umbrella organisation that supports local sight loss charities, awarded the project its Rainbow Award. The Rainbow Award “highlights the organisations and individuals who have been a Rainbow in the pandemic, through being open and generous; sharing knowledge, challenges, their staff and practical information and examples of what has worked for them.” This is why we're called the Rainbow Group


The 5 Local Charities are:-


Sight Advice South Lakes - Cumbria
My Sight Notts - Nottingham
sight airedale - Airedale area, North and West Yorkshire
Support 4 Sight - Mid & West Essex
Sutton Vision - London Borough of Sutton
Outlookers - Huddersfield, West Yorkshire


Talks take place on the 2nd Thursday of the Month via Zoom starting at 10am. The New Audio Podcast will hopefully allow us to reach a wider audience.

© 2025 Rainbow Group - Live Well with Sight Loss
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    Épisodes
    • Charles Bonnet Syndrome: Busting Myths and Understanding Visual Hallucinations
      Jul 6 2025

      In this episode, we are joined by Dr Jasleen Jolly, who talks about Charles Bonnet Syndrome. Charles Bonnet Syndrome (CBS) is a condition where people with sight loss experience visual hallucinations. In this talk, Dr Jasleen Jolly talks about the latest research into CBS and busts some CBS myths before answering listeners' questions. Dr Jolly is an Associate Professor in Multidisciplinary Vision research at Jolly Vision Science LTD, based in the UK. During the talk, Dr Jolly mentions several resources and a questionnaire-based study into CBS. A link to all these resources are below.

      • Esme's Umbrella - https://www.charlesbonnetsyndrome.uk/
      • Charles Bonnet Study - https://tinyurl.com/sight-impairment-study
      • Aspectum | A Short Documentary - https://www.youtube.com/watch?v=s6CdM6XwX2I

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      30 min
    • How Does the Macular Society Support People with AMD in the UK?
      Jun 8 2025

      In this episode of the Live Well with Sight Loss podcast, Colin Daniels from the Macular Society talks about the support and services for individuals dealing with Macular disease, the primary cause of sight loss in the UK. Colin talks about the prevalence of age-related macular degeneration (AMD) and other conditions affecting central vision, emphasising the Society's commitment to emotional support and peer connections. Colin shares insights on their research initiatives aimed at understanding and treating macular diseases, as well as the establishment of a lived experience advisory panel to ensure that the voices of those affected shape the services provided. You can gain support from the Macular Society by calling their helpline on 0300 30 30 111 or visiting their website at www.macularsociety.org

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      19 min
    • Navigating Life with Sight Loss to Achieve World Champion Status - Lucy Hodges MBE,
      May 7 2025

      This episode features Lucy Hodges, MBE, a world champion blind sailor and advocate for disability sports. Lucy shares her journey from being registered blind at a young age to becoming a leading figure in sailing. She emphasizes the crucial role of support from family and community, highlighting how this shaped her resilience and passion for sports. Lucy recounts her introduction to sailing, the power of teamwork, and the transformative impact of competition on personal growth. She discusses the importance of accessibility in sports, urging listeners to seek opportunities and embrace their challenges. Ultimately, Lucy's message inspires hope and empowerment, encouraging everyone to pursue their dreams despite obstacles.

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      47 min
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