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MDA Quest Podcast

MDA Quest Podcast

De : Muscular Dystrophy Association
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The official podcast for the Muscular Dystrophy Association2021 Muscular Dystrophy Association Développement personnel Hygiène et vie saine Maladie et pathologies physiques Réussite personnelle Sciences sociales
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  • 61: Episode 60 - Fashion for Every Body: Izzy Camilleri on Style, Function, and Inclusion
    Feb 24 2026

    In this Quest Podcast episode, we chat with internationally recognized fashion designer Izzy Camilleri, a true pioneer in adaptive fashion. She shares how her successful career in high-end fashion took a transformative turn when she began designing clothing for people with disabilities and partnered with Silverts—work that helped ignite today’s adaptive fashion movement. Izzy shares how to balances style with function, the importance of universal design, and the meaningful progress that the fashion industry has (and hasn’t) made toward true inclusion. Izzy shares her experiences, expertise and advice when it comes to what the future holds for adaptive apparel, customization, and technology as she shines a light on the power of fashion to help people feel seen, confident, and fully themselves.

    Transcript

    As an additional treat for you, our friends at Silverts and IZ Adaptive are offering a limited-time 15% discount on purchases over $50 for the MDA community! For Silverts, shop here, and for IZ Adaptive, shop here for your discounts.

    Thank you, Silverts and IZ Adaptive!

    Guests:

    Izzy Camilleri is one of Canada’s leading and most celebrated fashion designers, and a pioneer in adaptive clothing. Izzy first ventured into the world of accessible clothing after initially doing custom work for a wheelchair user in 2004. It opened her eyes to the huge necessity for this type of clothing in the world. In 2022, Izzy received 2 awards for her adaptive line. She won the Innovation Award from the Women’s Empowerment Awards and the Fashion Impact Award from the CAFA Awards. In 2006, she received CAFA’s Womenswear Designer of the Year Award. Her adaptive line has been featured in the Royal Ontario Museum. For more than 39 years, she has designed custom clothing for an international clientele, crafted gorgeous collections featured in fashion magazines from Vogue to InStyle, and dressed celebrities like Daniel Radcliffe, Mark Wahlberg, Meryl Streep, Angelina Jolie, and David Bowie. Since 2009, Izzy has focused on inclusive fashion through her brand IZ Adaptive, with the mission to make great looking and well-fitting clothes accessible to everyone.

    Connect with Izzy:

    • Website- https://izadaptive.com/
    • Facebook – https://www.facebook.com/izzy.camilleri.9/
    • Instagramhttps://www.instagram.com/izzy.camilleri/?hl=en

    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment, Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with spinal muscular atrophy (SMA) type 2, when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
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    39 min
  • 60: Episode 59 - Redesigning the Day: Accessibility and Mindset Life Hacks with Jax Cowles
    Jan 20 2026

    In this Quest Podcast episode, we chat with public speaker, consultant, and disability advocate, Jax Cowles. Jax shares an honest, thoughtful, and deeply creative conversation about daily life, independence, and problem-solving. She opens up about how creativity and “life hacking” became essential tools rather than optional skills, and how small, low-cost adaptations can completely transform everyday tasks. Jax shares her experiences, expertise, and advice when it comes to practical insight, encouragement, and a refreshing perspective on living creatively and fully—exactly as you are.

    Transcript

    Guests:

    Jax Cowles is a speaker, consultant, and disability advocate who uses her unique perspective and experience in creative storytelling, organizational strategies, and her expertise in architectural and fashion style/design to break the barrier between fearing versus embracing disability.

    Diagnosed with spinal muscular atrophy (SMA) at 20-months old, Jax began sharing her story at a young age, speaking at schools and events to show it’s OK to be different. From her early school days, to a 2024 Keynote Gala speaker, Jax has always been a proud member of MDA.

    Through her travels to cities like London, Paris, and Amsterdam; Jax highlights accessibility around the world and encourages others that nothing is impossible when you’re the writer of your own story. She believes accessibility should never be a question and that with the right tools, information, and mindset, we can build a more inclusive world—not just by thinking outside the box, but by breaking the box

    Connect with Jax:

    • https://www.jaxcowles.com/
    • https://www.youtube.com/channel/UCVhqq8GaKYLmFs-v4xQjkrw
    • https://www.instagram.com/jaxcowles/
    • https://www.facebook.com/jaxcowles
    • https://www.pinterest.com/jax_cowles/
    • https://www.linkedin.com/in/jacquelynncowles/
    • https://x.com/jaxcowles

    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment, Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with spinal muscular atrophy (SMA) type 2, when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
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    58 min
  • 59: Episode 58 - Wrapping up 2025 with Ira and Lily
    Nov 26 2025
    In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Lily S. and Ira Walker. Lily is a dedicated advocate finishing her first year as a National Ambassador. She shares her journey, why she believes it is important to advocate for yourself and others, and what she has learned along the way. As Ira wraps up his second year as a National Ambassador and prepares to start a career as a published author, he chats about how connecting with his community and sharing his story with others through MDA has been life-changing. These National Ambassadors join us to share their experiences, expertise, and advice.

    Transcript

    Guests:

    Lily Sander is 18 years old and lives with Charcot-Marie-Tooth (CMT) disease. Her passions include disability advocacy, female justice advocacy, and accessible education. She enjoys traveling with her family, having a good cup of coffee, and spending time with her dogs. Her hope is to inspire others to embrace a positive outlook(even in the face of adversity), encourage individuals to advocate for themselves and others, and make a meaningful impact on the world.

    Connect with Lily:

    • LinkedIn: https://www.linkedin.com/in/lily-sander-89b75a274/
    • Instagram: @la.sander / https://www.instagram.com/la.sander/
    Ira Walker is 39 years old and lives with spinal muscular atrophy (SMA). He’s an avid sports fan, cultural connoisseur of the arts, and an impressive cook who is constantly evolving his culinary abilities. He describes himself as a highly independent and active gentlemen who is living his dream and best life in south Florida while working an exciting career in HR. Ira loves exploring the sights and sounds of his environment in his sophisticated modified van.

    Connect with Ira:

    • Facebook –https://www.facebook.com/IraWalker321
    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment, Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with spinal muscular atrophy (SMA) type 2, when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
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    44 min
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