Couverture de Hidradenitis SuppuraDIVAS

Hidradenitis SuppuraDIVAS

Hidradenitis SuppuraDIVAS

De : HS Connect
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À propos de ce contenu audio

Welcome!! We're glad you found us! If you have Hidradenitis Suppurativa (HS), or know someone who does, this is the podcast for you!

Join Brindley and Cyd who each have unique perspectives on what living with HS looks like, as we talk about life with HS. We'll cover common misconceptions, motherhood, talk with experts, mental health, sex and intimacy with HS, getting diagnosed, and everything in between!

If you have any questions or topics you would like to see covered please tell us here so we can be sure to cover what's important to you! We love your feedback!!

If you feel like you may have HS or know someone with Hidradenitis Suppurativa please know you’re not alone! Visit our Dermatology List here to find a dermatologist near you who is familiar with HS.

For more information on all things HS, please visit www.hsconnect.org.

Don’t forget to give us a follow + subscribe to our channels!

@HSConnectorg
@socialcydd

© 2026 Hidradenitis SuppuraDIVAS
Hygiène et vie saine Psychologie Psychologie et psychiatrie
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    Épisodes
    • Season 4 Finale: Questions We Carry, Boundaries We Choose
      Jan 21 2026

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      In the final episode of Season 4, the Hidradenitis SuppuraDivas sit down for an honest, unfiltered conversation shaped entirely by your questions.

      This finale explores what it really looks like to live with HS in everyday life—deciding when to show up and when to rest, how to respond to insensitive comments, and how to protect your mental health without shrinking yourself. The hosts talk candidly about boundaries, self-advocacy, grief, burnout, and the complicated emotions that come with visibility—especially in advocacy spaces.

      They also pull back the curtain on what advocacy actually requires: the emotional labor, the physical toll, the exhaustion behind conferences and travel, and the reality that meaningful change is slow, intentional work rooted in consistency—not virality.

      This episode is a reminder that:

      • You don’t owe anyone access to your pain
      • Letting people think what they want is sometimes the strongest choice
      • Advocacy comes in many forms—and all of them matter
      • Rest is not quitting
      • And showing up imperfectly is still showing up

      As Season 4 comes to a close, this conversation centers compassion, honesty, and permission—to take breaks, to speak up, to keep going, or to pause when you need to.

      Thank you for walking with us this season.
      We’ll see you in the next chapter.

      For resources, advocacy opportunities, and ways to get involved, visit hsconnect.org.

      This podcast was made possible by our sponsors UCB and Sanofi.

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      25 min
    • Postpartum, HS, and Showing Up as a Mom: The Truth We Don’t Talk About
      Jan 14 2026

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      In this candid and vulnerable episode of Hidradenitis Suppuradivas, hosts Brindley and Cydney are joined by Cara to dive into a conversation rarely discussed but incredibly important: what it’s really like to navigate postpartum life while living with Hidradenitis Suppurativa.

      Joined by Brindley in the studio (with her 18-day-old newborn making a few adorable guest appearances), the hosts share raw experiences about pregnancy with HS, changing flare patterns, breastfeeding challenges, postpartum depression, and the complicated feelings around body image, pain, and new motherhood.

      Together, they open up about:

      • How HS symptoms can shift during pregnancy and postpartum
      • Making difficult decisions around breastfeeding and flares
      • Asking for help—and the guilt that comes with it
      • What it means to show up as a mom when your body is hurting
      • Teaching kids empathy, compassion, and honesty
      • Why postpartum care for HS patients must include emotional support
      • How community makes all the difference

      This episode is full of laughter, real talk, tender moments, and the kind of honesty that reminds every HS mom: you are not alone, you are not failing, and your kids already think you’re enough.

      Listen in for a conversation that validates, empowers, and uplifts anyone navigating motherhood with HS.

      For more HS resources, tools, and support, visit hsconnect.org.

      This podcast was made possible by our sponsors UCB and Sanofi.

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      24 min
    • Nutrition, Not Restriction: A Real Conversation with HS Connect COO, Christina Curp
      Jan 7 2026

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      In this powerful and refreshingly honest episode of Hidradenitis Suppuradivas, hosts Brin and Cyd sit down with Cristina Curp, Chief Operating Officer of HS Connect, for a conversation every HS warrior needs to hear. Together, they unpack why the word “diet” can feel so triggering, the emotional weight so many carry around food, and how shifting the language to nutrition can open the door to healing rather than shame.

      Cristina shares her personal journey of putting her HS into remission, the truth about bio-individuality, why “what works for me” is not a prescription for everyone, and how she guides people toward sustainable, compassionate approaches to eating. From food journaling and mindset work to hormone insights and realistic goal-setting, her expertise brings clarity to an often confusing topic.

      The conversation also dives into food guilt, frustration, cultural expectations, family influences, and the pressure patients feel to “get it right.” Cristina’s grounded, human-centered approach reminds listeners that healing is not linear, nutrition is not morality, and you are not failing if someone else’s path looks different from your own.

      If you’ve ever felt overwhelmed by advice, ashamed of your eating habits, or unsure how nutrition fits into your HS journey, this episode offers validation, direction, and the reminder that you are not alone.

      Listen now and explore more HS resources at hsconnect.org.

      This podcast was made possible by our sponsors UCB and Sanofi.

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      30 min
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