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Help 4 HD Live!

Help 4 HD Live!

De : Help 4 HD Live!
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Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.Copyright Help 4 HD Live! Economie Hygiène et vie saine Management Management et direction
Épisodes
  • Genetic Testing: Time to Test and Process
    Oct 1 2026
    In this episode of Help 4 HD Live, host Katie Jackson sits down with Wes, a certified genetic counselor and director of HD Genetics, to explore the complexities of genetic testing for Huntington’s disease. Now in its fourth year, HD Genetics provides remote genetic counseling and testing services for the HD community, supporting families as they navigate difficult decisions around predictive genetic testing. The conversation covers the personal journey of deciding when—or if—to get tested, the emotional and practical implications of positive, negative, or ambiguous results, and the importance of individualized support. Wes explains the different testing methods available, their accuracy, and what test outcomes mean for individuals and their families. The episode also delves into common misconceptions, the role of genetic counseling in managing expectations, and the significance of timing in the decision-making process. Whether you’re considering genetic testing, supporting a loved one, or simply want to better understand Huntington’s disease, this episode offers compassionate guidance and expert insights into one of the most personal choices facing the HD community.
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    16 min
  • Katrina and Jamie - Help 4 HD Toolkit Part 2
    Sep 24 2026
    To read/Print the safety planning chapter of the Help 4 HD Toolkit, click here: Help4HD Database
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    10 min
  • Katrina & Jamie talk about the Help 4 HD - HD Tool Kit - PT 1
    Sep 17 2026
    Please visit the Help 4 HD database to see/print the HD Tool Kit end-of-life chapter here:
    Help4HD Database
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    16 min
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