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What if the most powerful lever for your child’s growth isn’t another appointment, but how you care for yourself? We sit down with neuropsychologist Dr. Dawn Ilardi to connect the dots between CHD, early brain development, medical trauma, and the everyday choices that help families thrive. From prenatal influences on cognition and behavior to the protective force of stable routines and responsive parenting, we translate research into practical moves you can make this week.

We explore why CHD outcomes are shaped long before surgery and how heterogeneity makes each child unique, yet still able to benefit from adapted tools used in the general population. Dr. Ilardi explains how family factors—predictable structure, warm communication, and realistic challenges—can buffer stress and build resilience. We also address the quiet weight of medical trauma for parents and teens, outlining small, affordable supports like gratitude journaling, micro‑breaks, and CHD‑savvy counseling, alongside the healing power of honest community.

You’ll also hear about a new resource: Parenting Kids with CHD, an on‑demand library of short videos and monthly live Q&A designed to bridge the gap between science and everyday life. Topics range from ADHD meds and evaluation paths to tackling anxiety, early language delays, and transition to adult care. As Anna announces a writing hiatus, we highlight where to find archives and why the broader HUG network continues to amplify CHD stories and support.

Subscribe for more conversations that blend empathy and evidence. If this episode helped you feel seen—or gave you one concrete tool to try—share it with a friend, leave a review, and tell us the next question you want answered.

Dr. Ilardi’s other episodes:

Season 1: What is Normal Child Development in Children with Complex CHD? https://www.buzzsprout.com/62761/episodes/852321

Season 19: Unlocking Neurodevelopmental Breakthroughs: Impact of CHDs and Parental Influence https://www.buzzsprout.com/62761/episodes/15872291

Season 20: When Hearts and Minds Unite: Navigating Neurodevelopment in CHD https://www.buzzsprout.com/62761/episodes/16895529

Dr. Ilardi’s blog: https://pedneurocenter.com/author/dilardi/

Join the waitlist for the Parenting Kids with CHD: https://pedneurocenter.com/parenting-kids-with-chd/

The news article I mentioned at the top of the episode (Neurodevelopment in Congenital Heart Disease: A Review of Antenatal Mechanisms and Therapeutic Potentials): https://www.nature.com/articles/s41390-025-04360-y

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A month of movement—across states, across continents, and across ideas—shapes this episode of Heart to Heart with Anna, where personal connection meets the frontiers of heart medicine. We begin with gratitude, travel, and family updates, then explore two breakthroughs shaping the future of congenital heart care: a major open-access study using whole-genome sequencing to forecast outcomes after CHD surgery, and nanotechnology that turns everyday implants into infection-resistant, tissue-regenerating tools.

CHD News Article Referenced:
“Genome sequencing is critical for forecasting outcomes following congenital cardiac surgery,” published in Nature Communications (open-access).
🔗 https://www.nature.com/articles/s41467-025-61625-0

Our guest, Tom Webster, has spent more than two decades showing that the tiniest details can change everything. By adding nanoscale textures to already-approved implant materials, his teams have helped more than 30,000 patients—without a single reported implant failure. Tom explains how these nanostructured surfaces reduce infection without antibiotics, encourage heart and vascular tissue to heal, and speed up regulatory approval by keeping the chemistry the same while transforming the surface.

Together, we explore cardiac patches that act like “Band-Aids for the heart,” vascular stents that resist clotting, and lessons learned from nature’s own antibacterial designs. We also talk about emerging strategies that combine nanomaterials with stem cells—guiding differentiation without drugs and anchoring cells exactly where the body needs repair. And we look ahead to implantable nanosensors that may one day send real-time data straight to your phone, giving families and clinicians a continuous picture of heart health far beyond today’s occasional lab tests.

If you’re curious how genetics, materials science, and continuous monitoring could personalize heart care for people living with CHD, this is the episode for you. Press play, share it with someone who needs hope grounded in evidence, and subscribe for more conversations like this. If this episode moved you, please leave a review and let us know which ideas you’d like us to explore next.

Have a question for Tom?
He welcomes inquiries from listeners who are curious about nanotechnology, innovation, and heart health. Please send your question to Anna@HeartToHeartWithAnna.com, and I will be happy to pass it along to him.

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What does it take to learn to sit again, then stand, then chase the horizon at the Ironman World Championship? We sit down with endurance athlete and keynote speaker Elmar Sprink to trace the steps from sudden cardiac arrest and seven months on ECMO to a disciplined, data‑driven comeback fueled by routine, empathy, and stubborn hope. Elmar opens up about the invisible work of recovery—why he treated hospital life like a training plan, how a visitor spreadsheet kept his spirits up, and the role therapy and humor played when the outcome was uncertain.

We unpack the nuts and bolts of training after a heart transplant: threshold testing to set safe zones, the difference denervated hearts can make to heart rate response, and why indoor cycling and carefully staged swim returns protect against infection while rebuilding fitness. Elmar explains how steady training lowered his blood pressure and reduced medications, and he shares the small, daily wins—like a perfect cappuccino—that kept his motivation alive. Along the way, he reflects on gratitude for his unknown donor and the ritual of honoring that gift at every finish line.

Anna also spotlights creative sparks and community momentum: new children’s stories in the Living with CHD series that portray everyday family life with honesty, plus highlights from the SV-ONE conference where scientists, clinicians, and advocates collaborate for single ventricle care. We share upcoming inclusion goals, from an ASL episode to a new German episode featuring Elmar, and we talk candidly about organ donation advocacy—what messaging moves people, and how real stories can shift culture and save lives.

If you’re navigating CHD, recovery, or any long road back, this conversation offers a clear playbook: start small, be consistent, protect your body, lean on your people, and celebrate the quiet victories. Subscribe, share this episode with someone who needs a lift, and leave a review with your biggest takeaway—we’d love to hear what small win you’re chasing this week.

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Baby Blue Sound Collective

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