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Girls with Grafts

Girls with Grafts

De : Phoenix Society for Burn Survivors
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Girls with Grafts is a podcast hosted by Amber Wilcox and Rachel Kudlak, Burn Survivors, and supporters of the nonprofit, Phoenix Society for Burn Survivors. The Girls with Grafts podcast is for burn survivors, caregivers, hospital staff, and corporate partners in the burn community. Hear in-depth conversations about burn survivor stories, gain resources for managing a burn injury, hear up-to-date information about Phoenix Society for Burn Survivors community news, and listen in on burn prevention and advocacy information.

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  • When Scars Become the Scare: Halloween and Hollywood Stereotypes

    When Scars Become the Scare: Halloween and Hollywood Stereotypes
    Oct 27 2026
    In this special episode of Girls with Grafts, we're resharing a recent webinar hosted by Kelsey Ferrill of AboutFace Canada, who welcomed Phoenix Society's own Rachel Kudlak alongside Phyllida Swift, Charlene Pell, and Dr. Lise Deguire for an important conversation about Halloween costumes, facial differences, and the harmful stereotypes that continue to shape public perceptions of people with scars and visible differences. 🎃Together, the panel explores why portraying scars, burns, and facial differences as frightening or villainous is more than just harmless entertainment. They discuss the real-world impact of these portrayals, the research behind appearance-based bias, and how movies, television, and Halloween costumes can reinforce harmful misconceptions about people who look different.The conversation also highlights the advocacy efforts of the Coalition for Authentic Representation of Disfigurement and Difference (C.A.R.D.D.) and Face Equality International, the importance of authentic representation in entertainment, and practical ways we can all help challenge stereotypes, spark conversations, and create a more inclusive world. 🧡#BurnSurvivor #GirlsWithGrafts #Podcast #SurvivorPodcast #BurnSurvivorStories⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using #GirlswithGrafts and tagging Phoenix Society for Burn Survivors! Meet Our GuestsKelsey Ferrill is a facial difference advocate, communications professional, and Communications Officer and Program Manager at AboutFace, a Canadian nonprofit supporting people with facial differences. Born with Moebius syndrome, a rare neurological condition that causes facial paralysis, Kelsey has used her lived experience to advocate for greater inclusion, understanding, and authentic representation. She holds a master’s degree in Intercultural and International Communication and has been active in the Moebius syndrome community for many years. Through her professional work, public speaking, and advocacy, Kelsey works to challenge assumptions based on appearance and create a more inclusive world for people with facial differences.Phyllida Swift is an appearance activist and CEO of Face Equality International, an NGO working to end the discrimination and indignity experienced by people with facial differences worldwide. After sustaining facial scars in a car accident in 2016, she became an advocate for changing the negative narratives surrounding scars and disfigurement. Her work focuses on improving representation, challenging stigma, and advancing face equality across media and society. In her TEDx talk, Phyllida explores the harm caused by the disproportionate portrayal of people with facial differences as villains or vulnerable characters on screen and calls for more authentic, inclusive representation.Dr. Lise Deguire is a clinical psychologist, author, speaker, and burn survivor. A graduate of Tufts University, she earned her doctorate in clinical psychology from Hahnemann/Widener University. She is the author of the memoir Flashback Girl: Lessons on Resilience From a Burn Survivor and writes about psychological resilience for Psychology Today. Dr. Deguire has appeared on NPR, NBC, ABC, FOX, SiriusXM, and numerous podcasts, and speaks nationally on resilience, trauma, and recovery. She lives in Bucks County, Pennsylvania, with her husband and is the mother of two daughters.Charlene Pell is a plane crash survivor, advocate, author, and founder and executive director of Facing Forward, a nonprofit empowering people with facial disfigurement through peer support, education, and communication skills training. After sustaining burns to 64% of her body, she dedicated her work to advocacy, education, and community building. Charlene also co-founded the Coalition for Authentic Representation of Disfigurement and Difference (C.A.R.D.D.), which works to transform how people with facial differences are portrayed in media and entertainment. She holds a master’s degree in communication studies and is the author of the award-winning memoir In This Altered Body: A Survivor’s Story of Resilience and Love.Links Join the C.A.R.D.D. Facebook group: https://www.facebook.com/groups/carddcoalition Read “Scars are Not a Halloween Costume:” https://www.phoenix-society.org/resources/scars-are-not-a-halloween-costume Learn more about About Face: https://aboutface.ca/ Learn more about FEI: https://faceequalityinternational.org/ Watch Lise’s TedX Talk: https://www.youtube.com/watch?v=zD9KhXQOED8
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    59 min
  • Your Physical Health Depends on Your Mental Health with Ivan Francisco Ruiz Gamez

    Your Physical Health Depends on Your Mental Health with Ivan Francisco Ruiz Gamez
    Oct 20 2026

    In this episode of Girls with Grafts, Rachel sits down with burn survivor Ivan Francisco Ruiz Gamez for a powerful conversation about recovery, grief, mental health, and finding purpose after life-changing loss. 🎙️

    Ivan was just 11 years old when an RZR accident left him with burns on more than 90% of his body and took the life of his father. He spent seven months in the ICU at Shriners Children’s Northern California and has undergone more than 50 surgeries. Ivan shares what it was like to navigate both physical recovery and grief at such a young age, return to school, adjust to unwanted attention, and lean on his family—especially his mom—through some of his hardest moments.

    Now 20, Ivan is studying psychology with plans to work with children and is giving back through Spanish SOAR and burn survivor camps. He and Rachel talk about the connection between mental and physical health, the impact of connecting with people who understand, and why Ivan wants other young people to know that life can still hold so much possibility after trauma. ❤️

    Ivan leaves listeners with a message he continues to live by: keep doing what you love, even if you have to find a new way to do it, and keep looking for something beautiful in life worth holding onto.

    #BurnSurvivor #GirlsWithGrafts #Podcast #SurvivorPodcast #BurnSurvivorStories

    ⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!

    Meet Our Guest

    Ivan Francisco Ruiz Gamez is a 20-year-old burn survivor from Mexico, where he continues to live today. His burn injury occurred on June 18, 2018, when he was 11 years old. While traveling with his father in Baja California Sur, they were involved in an RZR accident that resulted in the loss of his father. Following the accident, Ivan was transferred to Shriners Children’s Northern California, where he spent seven months in the ICU. He sustained second- and third-degree burns over 90% of his body and has undergone more than 50 surgeries over the past eight years. Throughout his recovery, his mother has remained by his side, providing ongoing support. Ivan is currently in his third year of studying psychology and hopes to specialize in working with children.


    Links
    • Get connected or learn more about Spanish SOAR: https://www.phoenix-society.org/spanish
    • Learn more about burn survivor camps: https://iaburncamps.org/


    Podcast Sponsor

    Today’s podcast is powered by the National Fire Protection Association! NFPA is a nonprofit that seeks to save lives and reduce loss with information, knowledge, & passion. Learn more about fire safety and explore their educational resources by visiting www.nfpa.org.

    Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.

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    42 min
  • Progress Doesn’t Have to Look Perfect with Amarion Hally

    Progress Doesn’t Have to Look Perfect with Amarion Hally
    Oct 1 2026

    In this episode of Girls with Grafts, Rachel sits down with burn survivor Amarion Hally for an open conversation about recovery, mental health, and learning that you don’t have to have everything figured out. 🎙️

    Amarion shares how his life changed after sustaining severe burns at age 19 and opens up about some of the most difficult parts of his recovery, including losing his fingers, adjusting to changes in his appearance, and navigating the emotional impact of his injury. He also reflects on the life-changing support of his burn care team and how being treated as a person, not just a patient, helped shape his recovery.

    Rachel and Amarion also talk about the pressure to achieve and how social media can make it seem like everyone else is succeeding while you’re falling behind. Amarion shares why he began posting his story and dancing online, and the message of hope he wants others who are struggling to hear. 🫶

    #BurnSurvivor #GirlsWithGrafts #Podcast #SurvivorPodcast #BurnSurvivorStories

    ⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!

    Meet Our Guest

    Amarion Hally is a young burn survivor whose life changed at age 19 after sustaining severe burns to much of his body and face. Throughout his recovery, Amarion has navigated significant physical and emotional changes, including finger amputations and adjusting to his changing appearance. Today, he is continuing his recovery while openly sharing his experience, positivity, and message of hope with others through social media.


    Links
    • Follow Amarion on TikTok: https://www.tiktok.com/@str8to_mars
    • Learn more about Amarion’s recovery: https://www.wbrz.com/news/spray-on-skin-offers-new-hope-for-burn-patients-in-louisiana/


    Podcast Sponsor

    Today’s podcast is powered by the Bert Martin Foundation! The Bert Martin Foundation was established to assist those who help others and provide financial support for nonprofit organizations. We’re honored to have the Bert Martin Foundation as a long-standing Phoenix Society Partner.

    Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.

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    55 min
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