File #007: Empathy & Equity: Redefining Clinical Trials with Patient Voices"
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File #007: Empathy & Equity: Redefining Clinical Trials with Patient Voices"
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In this compelling episode of Clinical Trial Files, hosts Karin Avila and Taymeyah Al‑Toubah sit down with Dr. Hillary Edwards from the University of Maryland’s Patients Program. They explore the evolution of patient‑centered and ethical clinical research—from historical wrongs like the Nuremberg Trials and Tuskegee to modern movements such as the formation of PCORI and the impact of COVID‑19 in increasing public trust and trial accessibility.
Dr. Edwards shares how the Patients Professors Academy fosters shared governance, continuous patient engagement, and a common research language to better enroll, retain, and serve participants. Through vivid metaphors (like comparing radiation therapy to spray versus stream) and personal anecdotes—from dentist relationships to international travel— illustrates how empathy, clarity, and inclusivity transform clinical trials into trustworthy, equitable, and human-centered endeavors.
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