Eight Years Without Answers | Ep.120
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This week on Take a Pain Check, we’re joined by Ela Murray, a university student who has been living with Central Nervous System Vasculitis which an invisible, life-altering condition since childhood.Symptomatic at just 8 years old and diagnosed at 16 during the height of COVID, Ela shares what it was really like navigating years of uncertainty, MRIs, a brain biopsy, steroids, seizures, and university life while still finding her voice as a young advocate.In this episode, we talk about:• Delayed diagnosis and navigating complex medical systems• The impact of steroids on body image, confidence, and mental health• Living next to a hospital while trying to experience “normal” university life• Finding purpose through advocacy and youth representation• What it means to show up vulnerably on stage and in everyday lifeThis episode is a reminder that young patients deserve to be heard, believed, and supported both medically and emotionally. Watch now, share with someone who needs to hear this, and join us in prioritizing youth voices in healthcare.Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc...Vasculitis Canada: https://vasculitis.ca/Our socials:
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