Couverture de EP 28 Namita Goyal

EP 28 Namita Goyal

EP 28 Namita Goyal

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 Dr. Namita Goyal — Diagnosing Hope: Advances in Myositis and Neuromuscular Care Description: In this episode of Rare Awareness Radio, host Richard Juknavorian sits down with Dr. Namita Goyal, Professor of Neurology and Director of Neuromuscular Medicine at UCI Health, to explore how advances in science and collaboration are reshaping the landscape for people living with myositis and related neuromuscular diseases. Dr. Goyal reflects on the case that sparked her two-decade passion for myositis care and research, explaining why early recognition, antibody testing, and a multidisciplinary approach are essential for improving outcomes. She also discusses: The five main subtypes of myositis and how they differ The ongoing “diagnostic odyssey” faced by many patients Evolving standards of diagnosis and treatment The promise of new clinical trials, IVIG therapy, and steroid-sparing strategies The critical role of physical therapy, respiratory care, and social support Her work with The Myositis Association (TMA) and its growing network of patient resources Through clinical insight and compassion, Dr. Goyal highlights why awareness, advocacy, and access remain at the heart of progress in rare disease care. 🌐 Learn more and connect with The Myositis Association at myositis.org 🎧 Rare Awareness Radio shares stories and expert perspectives that illuminate the realities — and the hope — of living with rare conditions.
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