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Alopecia Life

Alopecia Life

De : Host: Deeann Graham
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Alopecia Life is here to provide you with support, accurate information, inspiring stories and life hacks to help you navigate the world of hair loss.You'll hear interviews with specialists in their field and parents who are helping their child move through life while living with alopecia areata, along with conversations with alopecia rockstars who are making a difference. Whether you’ve just been diagnosed or have had it for ages, Alopecia Life has been created to share all the information you may want or need to do alopecia your way.© 2023 Alopecia Life Art Développement personnel Hygiène et vie saine Réussite personnelle
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    • S7E1 From Clinic to Community: A Dermatologist's Mission, with Dr. Alanna Bree
      Sep 25 2025

      Welcome back to the podcast.I'm so excited to start Season 7 of Alopecia Life with a guest who has a passion for making the world a better place for children impacted by skin conditions and birthmarks. She also loves building relationships and collaborating with others since she believes we are better when we lift one another up so we can all become the best versions of ourselves. Dr. Alanna Bree is a Pediatric Dermatologist, Founder and President of Made A Masterpiece, Director of Pediatric Dermatology Collaboration at Sagis Diagnostics, as well as an Advisor and Speaker for CeraVe. In addition, she enjoys teaching about pediatric dermatology and raising awareness about the impact of living with a skin condition so the world can be a more understanding, accepting, and loving place for those with visible skin differences.

      I met Dr. Bree a few months ago, and was quite taken with how she spoke about patients and families, along with her dedication to creating resources to help people living with all skin conditions, including alopecia. She shares so much throughout this episode, including some of the best ways to take advantage of a dermatology appointment that you've been waiting months for. Made A Masterpiece is not only a website that provides endless free resources for all skin conditions, it's also creating a method that will revolutionize how we raise awareness with technology and interactive play.

      Thank you for sharing your time with Dr. Bree and me today. If you are looking to connect with Dr. Bree, find some of those amazing resources she shared with us today, and know more about the mission and passion behind Made A Masterpiece, those links are here in the show notes. If you are wanting to donate to the traveling museum, you can find those links here as well.

      https://www.madeamasterpiece.org/
      https://www.facebook.com/madeamasterpiece
      https://www.instagram.com/iwasmadeamasterpiece/

      Support the show

      Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

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      59 min
    • S6E7 Hairless But Fearless, with Arron Johnson
      Aug 7 2025

      Welcome to this episode of Alopecia Life. It's been awhile since I've published an episode. I've been working on some big projects, and life has had a way of getting reorganized as time goes by. Thank you so much for coming back and for listening today. I'm excited to introduce Arron Johnson as our guest today. Arron shares his personal alopecia story with us from the point he was diagnosed at the age of 15. Over the last 25 years, Arron transformed from a teenager hiding behind du-rags and hats to a confident IT professional, successful entrepreneur, husband, and father. His faith-based approach to resilience has helped him through every challenge, from navigating workplace environments without head-coverings to building authentic relationships and starting a family. His book, Hairless But Fearless not only chronicles his personal transformation, but also offers practical strategies for individuals and families facing similar struggles.

      Thanks so much for sharing your time with Arron and me today. To find Arron on social media, you can find him @therealarron, and find his book at http://www.hairlessbutfearless.com/. Those links can be found here in the show notes.

      Support the show

      Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

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      31 min
    • S6E6 2025 with the Children's Alopecia Project for Podcasthon
      Mar 20 2025

      Welcome to this episode of Alopecia Life. We are so happy to participate in this 3rd edition of Podcasthon! For one week, more than a thousand podcasts will highlight a charity of their choice, and today, I have the pleasure of welcoming back Jeff Woytovich with the Children's Alopecia Project.

      In this episode, we talk about what's new for CAP, JAK Inhibitors, along with the ongoing conversation about community and how we continue to be supportive and focus on education. We talk about his recent outreach with a family in the UK and some of those details, and there's a full 10 minutes of discussion that had to be omitted because of the heated conversation we had around it. Both of us get fired up about this type of thing happening in this day and age. Let's welcome Jeff back to Alopecia Life.

      That wraps up this special episode as part of Podcasthon. If you enjoyed it, feel free to visit http://www.podcasthon.org/ to discover hundreds of other associations through the voices of amazing podcasters. It's a pretty cool deal to be supporting charities of our choice. As always, CAP is the number one charity I choose to fund every year because camp and gatherings for kids and their families who have been diagnosed is something that means the world to me and has such huge benefits. The link for CAP's annual giving campaign is here in the show notes, along with the Children's Alopecia Project, camp, and so much more. If you want to schedule a get-together with Jeff in your city, that link is here too.

      For those of you who are wanting an update about the family in the UK, they've received tremendous support from almost a dozen dermatologists and specialists, but at this point they are still waiting for social services to close the case. We are keeping them in our thoughts, and we hope for a swift resolution, and an opportunity for this school to receive the education around alopecia that is clearly so necessary.

      https://childrensalopeciaproject.org/

      https://form.jotform.com/Knjoz/cap-kid-group-get-together

      https://alopeciapalooza2025.eventzilla.net/e/2138640318

      Support the show

      Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

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      1 h et 15 min
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