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Episode 9 starts with pirate patches and a nostalgic detour into Photios Brothers — Sydney’s legendary costume and fabric wonderland — before Lisa shares some genuinely good news: several key blood markers are finally moving back into normal range. From there it’s the usual Lisa and Portia mix of laughter, frustration with the medical system, and celebrating the small wins that keep you going.

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An eye sty, a half-built microphone, and Lisa recording from an actual zero-G “hospital bed” setup… and then we get into the big one: dead-end moments with ALS.

Lisa shares what hit hardest after a visit from MND NSW, why the system can make you feel boxed in, and how perspective can mess with your head (especially when you’re convinced you’re declining and your physio’s like, “Mate… you’re doing great.”)

They cover the tools that help: swimming, meditation, singing, sorting the mould, lowering the toxic load, and a surprisingly brilliant visual trick for not storing every emotion in your body.

Come for the banter, stay for the truth bombs.

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Thank you for listening to ALS - To the Moon and Back.
If this episode resonated, please share it with someone who might need it.
You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between.
Take care of yourselves — and each other — and we’ll see you next episode.

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ALS to the Moon and Back — Episode 7

This one is a classic wandering chat.

We start with biblical rain, leaking dams, and a surprisingly detailed conversation about vetiver (yes… the grass 😅), before moving into what’s really been on my mind lately.

We touch on the equipment block — that frustrating space where funding might exist on paper, but actually accessing the right consumables and support is a whole different story. It’s one of the realities of living with ALS that doesn’t get talked about enough.

But this episode goes much wider than that.

Portia and I talk about falls (including my very undignified leech-related incident), the ripple effect on carers, and the constant recalibration between independence and safety. We also dive into nervous system load, toxins, emotional stress, and why sometimes the work of letting things go — properly letting them go — matters just as much as anything physical.

Along the way there are greyhound stories, apartment dog advocacy, a few blunt truths, and plenty of laughs — because that’s just how we roll.

It’s honest, a bit messy, occasionally sweary, and very real.

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Thank you for listening to ALS - To the Moon and Back.
If this episode resonated, please share it with someone who might need it.
You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between.
Take care of yourselves — and each other — and we’ll see you next episode.