Today I’m joined by Meg Lewis – a passionate advocate and activist in the health space, making a profound impact in respiratory care and palliative health.

Meg shares her deeply challenging and complex journey with Hypersensitivity Pneumonitis, a rare form of Pulmonary Fibrosis that can cause irreversible lung damage. The condition is life-altering, with no cure, limited management options, and a severe lack of research, awareness, and available resources. It’s a reality that many struggle to even imagine, yet Meg offers an unfiltered, human perspective — shining a light on the physical, emotional, and social challenges that come with living with such an under-recognised illness.

She also speaks openly about the ripple effects of her diagnosis, including medically induced disordered eating. From the intense fear of food and choking brought on by her condition, to the emotional toll of weight gain from steroid treatment, Meg vulnerably explores the complex intersection between physical health, body image, and mental well-being.

And yet, at the heart of her story is a powerful message about what it means to truly live — even in the face of uncertainty. Meg reminds us of the importance of filling life with the things you love, embracing the “everyday magic” of small joys, and finding moments of laughter and connection despite hardship.

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