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The Joy Tax Podcast

The Joy Tax Podcast

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The Joy Tax Podcast is a conversation series for parents and caregivers raising a child or teen with complex, chronic conditions, such as dysautonomia, ME/CFS, Long COVID, PANS/PANDAs, MCAS. The normal parenting wisdom doesn’t fit the situations we are living through. This is a forum to share, affirm, and learn from each other. It's also a window for allies to listen in and gain deeper insight into the world we inhabit."

The show is named for one of the key symptoms of ME/CFS: post exertional malaise or PEM, or what our family calls “joy tax” which is simply a worsening of symptoms after physical, cognitive, emotional, or social exertion. Sometimes, the resulting crash can be mild, while at other times, it can lower a person’s baseline for weeks, months, or even years.

This podcast is not a substitute for medical guidance. We don't endorse specific treatments, and we encourage you to always talk to your healthcare provider before making any medical decisions.

If you have questions, comments, or are interested in appearing on the show, please email: joytaxpodcast@gmail.com

Copyright 2025 All rights reserved. Hygiène et vie saine Maladie et pathologies physiques Parentalité Relations
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    Épisodes
    • Ep. 2: "Harder Than Being a War Reporter"-Becky Diamond on Raising a Son with Long Covid

      Ep. 2: "Harder Than Being a War Reporter"-Becky Diamond on Raising a Son with Long Covid
      Jan 7 2026

      Becky Diamond is the mom of a son with Long COVID. In this conversation, she talks about the reality of isolation, the ongoing work of advocating for her teen, and what it means to be a "good mother" in impossible circumstances. Becky Diamond is an adjunct professor for NYU, a contributing writer to Psychology Today, and a former war reporter.

      You can find her articles here: https://www.psychologytoday.com/us/contributors/becky-diamond
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      58 min
    • Ep. 1: "Listen to Your Child"- a Conversation with Suzan Jackson

      Ep. 1: "Listen to Your Child"- a Conversation with Suzan Jackson
      Jan 5 2026
      Suzan Jackson is a seasoned voice of wisdom for parents raising kids with ME/CFS and related illnesses. In this conversation, she shares what it was like to be diagnosed with ME/CFS, and then shortly thereafter to have both of her sons begin exhibiting symptoms. She offers parents valuable insights on navigating school systems, the complexities of gratitude, and the thrill of watching her kids grow into adulthood. This conversation is a necessary reminder of the underlying hope for all kids and families living with chronic, energy-limiting conditions. Suzan Jackson's blogs, media, and book: Finding a New Normal: Living Your Best Life with Chronic Illness is available at www.suzanjacksonbooks.com www.suzanjackson.com www.livewithcfs.blogspot.com / suzanljackson / livewithmecfs / livewithmecfs / suejacksonde Produced by NAST Studios: naststudios.com
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      42 min
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