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Tawnie, the Neuro Mermaid

Tawnie, the Neuro Mermaid

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 Tawnie the Neuro Mermaid bled into her brain for a week before the doctors in Ohio took her seriously. When the neurosurgeons began treating her they were shocked she was still alive. Still, the hemorrhagic stroke ended her dual career paths in in bar tending and special education. Naturally, Tawnie came up with an alternative. She became a mermaid, an entrepreneur, and an advocate and supporter of other members of the stroke community. In this long overdue Strokecast interview, Tawnie shares her story of trying to get treatment, how she got into mermaiding, her experience with cannabis, and the power of the stroke community. If you don't see the audio player below, visit the original blog post on the Strokecast website here. Click here for a machine-generated transcript Who is Tawnie, the Neuro Mermaid? As Tawnie shares: At 28 I had a hemorrhagic stroke go misdiagnosed for a week. That's right I was bleeding in my brain 🧠 for a week so I have been documenting & sharing my recovery. As a former special education teacher I'm interested in retraining my brain, biohacking, & helping others become 1% better everyday. Working from home & running a business from my phone gives me the flexibility & support I've always wanted. I enjoy helping others do the same! I love sharing tips tricks & my life follow along & ask any questions 🤗 I look forward to connecting Https://msha.ke/tawniethemermaid Medical Records One of the challenges Tawnie had in getting her stroke diagnosed was a GIGO problem -- Garbage In, Garbage Out. The initial doctor she talked to failed to recognize her symptoms as a those indicating a stroke, and he made the notes in her records. That was the first problem. It was the garbage in. Then, as Tawnie sought the advice of other doctors, they referred to her initial records, took the garbage in as truth, and failed to do their own assessment of Tawnie's symptoms, and produced recommendations based on that initial assessment. Garbage out. It took a nurse who hadn't seen Tawnie's medical records to recognize that she was having the medical emergency that would ultimately lead to a helicopter evacuation. In the US, at least, your medical records are yours. You are entitled to them. If you use the popular My Chart patient portal, you may have direct access to them. If not, you can reach out to your hospital, doctor's office, or other medical practitioners, and get copies of them. You can also get copies of your scans, X-rays, MRIs, etc. The most important reason to get them is so you know what is actually in them. Whether you can correct them is another matter, but if there is incorrect information in them, you should know about it so you can give that context in future conversations. The information in your records may impact future treatment. Nake sure it's not garbage. Migraines Migraines suck. I think we can all agree on that. So far I've only had one, I think. It was in the hospital after stroke. I felt my vision narrowing at the edges. It reminded me of how my vision would be impacted the flash cube in the Kodak Instamatic in the 1970s. Of course Tawnie's life long migraines were much more severe. She did get treatment for them, but no one checked for the aneurysm that was waiting to rupture. Tawnie powered through. Carmen De La Paz also experienced migraines for years before her stroke. She thought they were just dehydration so she would make a habit of drinking more water to address them -- until one day one of them ruptured. Sometimes the cause of a migraine is an aneurysm in a blood vessel. Caught early, aneurysms can be treated before they turn into debilitating hemorrhagic strokes. The patient needs to seek treatment, though. The doctor has to order tests, like an MRA, and the insurance company has to agree to pay for it. In Tawnie's case, the first two things happened. The insurance company failed by refusing to approve the scan that could have prevented Tawnie's stroke. You Look Fine! Many people will tell a survivor things like: You look great! You'd never know you had a stroke! Looks like you're all better now!! When people say these things they usually mean well. In reality, though, they can feel quite hurtful. Many survivors live with invisible disabilities -- cognitive, emotional, communication and other challenges that other folks can't see. Statements like those above ignore these challenges. After a few months, outward signs of the stroke may have dissipated, but internal struggles remain. Compliments like these invalidate and undermine the challenges that may still be part of our lives. They also make it easier for folks to blame us for being "lazy" when we have a high-neurofatigue day and simply need more sleep. Mermaids Tawnie embraced mermaiding. There is a community online of folks who put on tails and fins. They lounge around the pool or go swimming with their tails and celebrate ...
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