Surviving the seizure wasn’t the end.

In this episode, we pick up inside the hospital after our four-year-old was rushed in following a prolonged, life-threatening seizure. This episode covers what came next, including the hours of waiting, the uncertainty inside the ER, and Stephen’s drive across state lines from Georgia to Alabama to reach our daughter after learning how serious the emergency had become.

We talk about the first moments of being reunited, the shock of moving from crisis to discharge, and what it meant to bring our child home without any medical monitoring equipment. This conversation explores the reality families face after severe pediatric seizures, including the absence of FDA-approved seizure monitoring devices for children under six, and the fear that doesn’t end once you leave the hospital.

We also share how life changed overnight, how sleep became fragmented and hyper-vigilant, and what it feels like to parent in constant alert mode when reassurance and safety nets don’t exist. This episode focuses on the aftermath, the unanswered questions, and the quiet, relentless fear that follows families home after a medical emergency involving a child and a permanent, life changing diagnosis.

This is not a resolution or a recovery story. It is an honest look at what comes after survival, when the danger feels ongoing and the responsibility to protect never lets up.

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Disclaimer: We are not medical professionals. The experiences, observations, and information shared in this episode reflect our personal journey and our understanding at the time, based on what we lived through and learned along the way. This content is not intended as medical advice and should not be used as a substitute for guidance from qualified healthcare professionals.