Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder

This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like for those with one of the most common single gene disorders in the world. It is useful for healthcare professionals who encounter patients with sickle cell, giving them some perspective of what the condition is like for the person they are treating.

In this series of short, bitesize podcasts, Andrew talks frankly about how sickle cell has affected different aspects of his life, from his first crisis when he was 5 years old. In discussion with Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’, Andrew talks about his experiences growing up as the only child in his immediate family with sickle cell, describing what having a crisis feels like and the impact the disease had on his professional life as a pharmacist. Their discussion turns to other aspects of the condition, which are not often openly discussed, including the toll priapisms (painful, unwanted, protracted erections, which are sickle cell crises of the penis) have, and how Andrew managed relationships and intimacy with sickle cell priapism.

*Andrew has shared his honest views, which are his own personal experiences, as part of his desire to improve awareness and understanding of sickle cell disease and priapism. To protect his identity and at his request we have not used his real name.

In this episode :

9. Improving management of sickle cell – highlighting the need to raise awareness of all aspects of sickle cell disease among patients from an early age, as well as among healthcare workers and the public.

Series Credits:

Interviews by Majed Shabbir, Consultant Urological Surgeon, Guy’s and St Thomas’ NHS Foundation Trust, London

Editing by Anthony Emmanuel, Consultant Urological Surgeon, The Freeman Hospital, Newcastle upon Tyne

@SickleCellUK
https://www.sicklecellsociety.org/
Charity no. 1046631

Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder

This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like for those with one of the most common single gene disorders in the world. It is useful for healthcare professionals who encounter patients with sickle cell, giving them some perspective of what the condition is like for the person they are treating.

In this series of short, bitesize podcasts, Andrew talks frankly about how sickle cell has affected different aspects of his life, from his first crisis when he was 5 years old. In discussion with Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’, Andrew talks about his experiences growing up as the only child in his immediate family with sickle cell, describing what having a crisis feels like and the impact the disease had on his professional life as a pharmacist. Their discussion turns to other aspects of the condition, which are not often openly discussed, including the toll priapisms (painful, unwanted, protracted erections, which are sickle cell crises of the penis) have, and how Andrew managed relationships and intimacy with sickle cell priapism.

*Andrew has shared his honest views, which are his own personal experiences, as part of his desire to improve awareness and understanding of sickle cell disease and priapism. To protect his identity and at his request we have not used his real name.

In this episode :

7. Priapism: Sex and relationships – Looking at the significant effect priapisms had on relationships, and considerations for starting a family.

Series Credits:

Interviews by Majed Shabbir, Consultant Urological Surgeon, Guy’s and St Thomas’ NHS Foundation Trust, London

Editing by Anthony Emmanuel, Consultant Urological Surgeon, The Freeman Hospital, Newcastle upon Tyne

@SickleCellUK
https://www.sicklecellsociety.org/
Charity no. 1046631

Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder

This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like for those with one of the most common single gene disorders in the world. It is useful for healthcare professionals who encounter patients with sickle cell, giving them some perspective of what the condition is like for the person they are treating.

In this series of short, bitesize podcasts, Andrew talks frankly about how sickle cell has affected different aspects of his life, from his first crisis when he was 5 years old. In discussion with Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’, Andrew talks about his experiences growing up as the only child in his immediate family with sickle cell, describing what having a crisis feels like and the impact the disease had on his professional life as a pharmacist. Their discussion turns to other aspects of the condition, which are not often openly discussed, including the toll priapisms (painful, unwanted, protracted erections, which are sickle cell crises of the penis) have, and how Andrew managed relationships and intimacy with sickle cell priapism.

*Andrew has shared his honest views, which are his own personal experiences, as part of his desire to improve awareness and understanding of sickle cell disease and priapism. To protect his identity and at his request we have not used his real name.

In this episode :

6. Priapism: Sleep studies and therapies– Andrew and Majed discuss different therapies, and how oxygen therapy transformed Andrew’s experience of priapism, and its impact on his life.

Series Credits:

Interviews by Majed Shabbir, Consultant Urological Surgeon, Guy’s and St Thomas’ NHS Foundation Trust, London

Editing by Anthony Emmanuel, Consultant Urological Surgeon, The Freeman Hospital, Newcastle upon Tyne

@SickleCellUK
https://www.sicklecellsociety.org/
Charity no. 1046631