• Season 1 Finale - Reflections, Q&A, and Next Steps

  • Jul 7 2023
  • Durée : 13 min
  • Podcast
Couverture de Season 1 Finale - Reflections, Q&A, and Next Steps

Season 1 Finale - Reflections, Q&A, and Next Steps

  • Résumé

  • Join us for the final episode of our first season as we discuss the importance of advocacy for children with Noonan Syndrome, provide answers to some pressing questions, and reflect on our journey so far. Shawna and I share personal updates, look ahead to next season's focus on RASopathies, and spotlight the incredible families from our SHOC2 episode.

    In our Q&A segment, we address topics like ongoing research on Noonan Syndrome at Stanford School of Medicine, dealing with unresponsive pediatricians regarding growth hormones, and communicating with educators unfamiliar with Noonan Syndrome.

    Teachers Guide: https://noonansyndrome.com.au/wp-content/uploads/2016/10/NSAA-Teaching-Strategies-for-NS.pdf

    - Stanford School of Medicine - Noonan Syndrome Research Study: [Link Here](https://web.stanford.edu/group/bridgelab/project/ns_study/)

    We also provide helpful strategies for parents on advocating for their Noonan Syndrome child, which is vital for their well-being and growth.

    During our hiatus, stay tuned for a special podcast episode featuring a Peace Corp Member from Alabama, stationed in Eswatini, sharing their unique experiences.

    As we prepare for the next season, our website will undergo some exciting changes, and our YouTube channel will see more updates. Keep an eye on our Etsy shop too, as we roll out new T-shirts and more soon.

    This season has been an incredible journey, and we couldn't have done it without you, our listeners. Your support fuels our mission, and we look forward to joining you again in the next season for more engaging conversations.

    --- Send in a voice message: https://podcasters.spotify.com/pod/show/noonan-syndrome-podcast/message
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