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On the tip of my tongue - talking about Aphasia

On the tip of my tongue - talking about Aphasia

De : Jonathan Hirons and Rob Edwards
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Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:

Jonathan's Experience with Aphasia


1. Initial Incident:


In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.


2. Medical Emergency:

He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.



3. Impact on Daily Life:


- Jonathan struggled with basic tasks such as speaking, reading, and writing.
- He had memory issues, recalling only his postcode but not his full address or other personal information.
- He faced challenges in understanding spoken language but could still sign his name.


4. Support from Family:

His wife, Ann, played a crucial role in his recovery:
- She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.
- This early intervention was vital for his rehabilitation.



5. Progress Through Therapy:

With the help of speech therapy, Jonathan made significant improvements:
- He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.



6. Advocacy and Awareness:


- Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.
- He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.



Understanding Aphasia


Aphasia is a language disorder that affects communication abilities, including:
- Speaking: Difficulty in forming words or sentences.
- Understanding: Challenges in comprehending spoken or written language.
- Reading and Writing: Problems with reading text or writing coherently.



Key Takeaways


- Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life.
- Early intervention and support are crucial for recovery.
- Awareness and education about aphasia can help reduce stigma and improve support for those affected.

Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.


Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved.


This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited.


For permissions or inquiries, please contact hello@buffalolounge.co.uk

© 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved. For permissions or inquiries, please contact hello@buffalolounge.co.uk Economie Hygiène et vie saine Psychologie Psychologie et psychiatrie Réussite personnelle Sciences sociales
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    Épisodes
    • Understanding Aphasia: Personal Stories and Community Support

      Understanding Aphasia: Personal Stories and Community Support
      Dec 9 2025

      Send us a text

      In this episode, Rob Edwards and Jonathan Hirons host Chris Greenhough, a stroke survivor with aphasia who leads support groups, and Lisa Thomas, a senior speech and language therapist with the NHS. They discuss the impact of aphasia, a condition affecting the brain's language capabilities, and the importance of community support and therapy. Chris shares his journey of recovery and involvement in running aphasia support groups, while Lisa talks about the challenges and successes in creating community communication groups. They also touch on the difficulties of raising awareness about aphasia and the need for better support from businesses and transport facilities to help individuals access group sessions.


      00:00 Introduction to the Podcast

      00:38 Understanding Aphasia

      01:16 Chris's Journey with Aphasia

      01:42 Lisa's Role and Contributions

      02:06 Chris's Aphasia Groups

      04:58 Lisa's Connection to Say Aphasia

      06:56 Challenges and Solutions in Aphasia Care

      10:36 Group Activities and Social Impact

      14:52 Transport Issues and Community Support

      22:06 Raising Awareness and Future Goals

      24:49 Conclusion and Resource

      https://www.sayaphasia.org/worcester

      Support the show

      Support the show: Donate Now

      This podcast is funded by https://www.bas.org.uk


      To watch Jonathan’s film: https://tipofmytonguefilm.com

      http://x.com/buffaloloungeuk
      https://www.linkedin.com/in/jonathanhirons/

      https://www.instagram.com/buffalolounge

      The Tavistock Trust for Aphasia website

      http://aphasiatavistocktrust.org
      Afficher plus Afficher moins
      26 min
    • AI and Aphasia: Overcoming Communication Barriers - S3 Ep 8 with Jez Hodgkinson

      AI and Aphasia: Overcoming Communication Barriers - S3 Ep 8 with Jez Hodgkinson
      Oct 22 2025

      Send us a text

      AI and Aphasia: Overcoming Communication Barriers

      In this episode of 'On the Tip of My Tongue' podcast, Jez shares his personal journey with Aphasia following a severe stroke in 2016. He discusses the challenges he faced in communicating and how he overcame them by starting a local Aphasia support group during the COVID-19 pandemic. Jez also delves into his long-standing interest in AI, dating back to the 1980s, and explains how AI has significantly advanced in recent years. He introduces an AI-powered app he developed to assist Aphasia sufferers in recalling words more easily. The conversation highlights the potential of AI to support individuals with communication difficulties while noting the broader implications of AI technology in society.

      00:00 Introduction and Guest Background
      00:15 Overcoming Aphasia: Personal Journey
      01:28 Community Involvement and Support Groups
      03:17 Introduction to AI and Early Experiences
      05:14 Developing an AI App for Aphasia
      15:41 Practical Uses of AI in Daily Life
      22:27 Challenges and Future of AI
      25:17 Conclusion and Final Thoughts

      Say Aphasia Group Winchester and Southampton

      https://www.sayaphasia.org/winchester


      Support the show

      Support the show: Donate Now

      This podcast is funded by https://www.bas.org.uk


      To watch Jonathan’s film: https://tipofmytonguefilm.com

      http://x.com/buffaloloungeuk
      https://www.linkedin.com/in/jonathanhirons/

      https://www.instagram.com/buffalolounge

      The Tavistock Trust for Aphasia website

      http://aphasiatavistocktrust.org
      Afficher plus Afficher moins
      27 min
    • On the tip of my tongue Series 3 Episode 7 - "Therapy Notes: Elizabeth Nightingale"

      On the tip of my tongue Series 3 Episode 7 - "Therapy Notes: Elizabeth Nightingale"
      Oct 15 2025

      Send us a text

      Transformative Power of Music Therapy with Elizabeth Nightingale

      In this podcast episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons are joined by Elizabeth Nightingale, a neurological music therapist. The discussion delves into the impactful role of music therapy across various fields, including stroke recovery, pediatrics, and palliative care. Elizabeth shares insights into the innovative programs at Chilton Music Therapy, which blend music with community outreach and online learning. The conversation also covers the specifics of music therapy for Aphasia patients, highlighting the cognitive and emotional benefits, the development of new neural pathways, and the creation of supportive communities. The episode emphasizes the nationwide accessibility of these services through online platforms, making therapeutic music interventions available even in remote and under-served areas.


      00:00 Introduction to the Podcast

      00:54 Meet the Hosts and the Topic of Aphasia

      01:49 Welcoming Elizabeth Nightingale

      02:23 Overview of Chiltern Music Therapy

      03:57 Impact of Music Therapy on Various Conditions

      05:22 The Science Behind Music Therapy

      07:23 Online Aphasia Music Therapy Groups

      09:13 Access and Participation Details

      18:23 Promoting the Online Groups

      21:24 Concluding Remarks and Resources

      For more info about Chiltern and Aphasia

      https://www.chilternmusictherapy.co.uk/stories/use-your-voice-aphasia


      Support the show

      Support the show: Donate Now

      This podcast is funded by https://www.bas.org.uk


      To watch Jonathan’s film: https://tipofmytonguefilm.com

      http://x.com/buffaloloungeuk
      https://www.linkedin.com/in/jonathanhirons/

      https://www.instagram.com/buffalolounge

      The Tavistock Trust for Aphasia website

      http://aphasiatavistocktrust.org
      Afficher plus Afficher moins
      22 min
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