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It Happened To Me: A Rare Disease and Medical Challenges Podcast

It Happened To Me: A Rare Disease and Medical Challenges Podcast

De : Cathy Gildenhorn Beth Glassman and Kira Dineen (DNA Today)
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The mission of our podcast is to support you, our listeners and to create community, as you confront the toughest challenges in life. All of us will experience health hardships. The real question is how we adapt. That is the focus of It Happened To Me, which wants to help you overcome limitations and live a full and satisfying life. Drawing on their own health challenges, hosts Cathy Gildenhorn and Beth Glassman interview guests who share stories and research to help you succeed in the face of difficult health obstacles. It happened to me…I’m not alone and neither are you. We encourage you to learn more at ItHappenedToMePod.com. Please use the contact form on our website to submit your guest suggestions, comments, questions, ideas, and feedback for the show, you can also email us directly at ItHappenedToMePod@gmail.com. It Happened To Me is created and hosted by Cathy Gildenhorn and Beth Glassman. Steve Holsonback is our media engineer and co-producer. DNA Today’s Kira Dineen is our ...All rights reserved to the team: Cathy Gildenhorn, Beth Glassman, & Kira Dineen (DNA Today) Science
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  • #79 How Acupuncture Can Support Fertility
    Mar 2 2026

    Discover how acupuncture, traditionally rooted in Chinese medicine, is transforming fertility care today. Join us as Kirsten Karshmer, a pioneer with over 20 years of experience, shares insights into how integrative practices and AI technology are making fertility treatment more accessible, personalized, and effective.

    In This Episode:

    • The science and philosophy behind reproductive acupuncture
    • How acupuncture can enhance ovulation and IVF outcomes
    • The emotional toll of infertility and managing stress
    • Innovations in fertility tech: AI-driven platforms for personalized care
    • Common misconceptions about fertility treatments
    • Practical tips for young girls to foster a healthy relationship with their bodies
    • The importance of shifting narratives: treating overall health, not just infertility

    Resources:

    Conceivable Technologies

    ABORM - a reproductive acupuncture resource

    “If Men Could Menstruate" By Gloria Steinem

    Connect With Us:

    Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.

    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today’s Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.

    See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.

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    33 min
  • #78 Sudden Vision Loss and Giant Cell Arteritis: When “Healthy” Changes Overnight
    Feb 16 2026

    In this episode of It Happened To Me, we share a story that underscores how quickly life can change, even when everything seems perfectly healthy.

    Our guest, Kathi Lopez, was a retired business owner who felt active, well, and thriving when she suddenly lost vision in one eye. What began as a frightening visual disturbance quickly escalated into a medical emergency and led to a diagnosis of Giant Cell Arteritis (GCA), a serious inflammatory condition that can cause permanent vision loss if not treated immediately. Kathi was also diagnosed with Polymyalgia Rheumatica (PMR), a related autoimmune disease that causes widespread pain, stiffness, and fatigue.

    Kathi has permanently lost vision in her right eye, but she has not lost her voice. In this powerful conversation, she shares what it’s like to go from “healthy” to navigating chronic autoimmune illness, how quickly symptoms can be missed or dismissed, and why awareness of GCA can be life- and vision-saving.

    This episode is an important reminder that listening to your body, and acting quickly, can make all the difference.

    In This Episode, We Discuss:
    • The moment Kathi first noticed something was wrong with her vision
    • Early warning signs of Giant Cell Arteritis, including headaches, jaw pain, fatigue, and body aches
    • How rapidly GCA can progress from subtle symptoms to permanent vision loss
    • Receiving a life-altering diagnosis and processing irreversible vision loss
    • The emotional, psychological, and physical impact of losing sight in one eye
    • Adapting to monocular vision and changes in daily independence
    • Living with both Giant Cell Arteritis and Polymyalgia Rheumatica
    • Treatment approaches and how Kathi’s body responded
    • Where the healthcare system succeeds, and where it can fail patients with rare autoimmune diseases
    • Advice for newly diagnosed patients and what Kathi wishes providers understood
    • A message for anyone who believes, “This could never happen to me”
    Resources Shared by Kathi

    Kathi wanted to share the following practical, evidence-informed strategies for adapting to vision loss in one eye. These resources do not replace medical care but may help support rehabilitation and daily functioning.

    1. Structured Low-Vision Rehabilitation
    • Work with a Certified Vision Rehabilitation Therapist (CVRT) or low-vision occupational therapist
    • Learn techniques for reading, mobility, depth perception, and hand-eye coordination
    • Eccentric viewing training may help maximize use of stronger retinal areas
    1. Monocular Vision Therapy Exercises (Performed with the affected eye covered)
    • Monocular push-ups for focus and accommodation
    • Near-far focusing to improve visual flexibility
    • Brock string or Hart chart exercises for eye movement and coordination
    • Figure-8 eye tracing and directional eye glides
    1. Adaptive Skills Training
    • Tossing and catching a ball to improve spatial judgment
    • Motion-parallax head movements to aid depth perception
    • Practicing scanning toward the blind side when walking or navigating spaces
    1. Assistive Tools
    • Enhanced lighting, contrast markings, magnifiers, and large print
    • Electronic aids such as CCTVs or adaptive visual technology
    1. Expectations & Consistency
    • Adaptation often takes 6–9 months
    • Daily practice (10–20 minutes per exercise) is most effective
    • Patience and self-compassion are essential

    Important: Always consult your ophthalmologist or low-vision specialist before starting any new therapy, especially after GCA.

    Connect With Us

    Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.

    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today’s Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.

    See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.

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    38 min
  • #77 When Chronic Illness Changes the Tune: A Musician’s Journey Through Diabetes and Stroke
    Feb 2 2026

    In this episode of It Happened To Me, we share a powerful story of resilience, creativity, and determination in the face of serious health challenges.

    We’re honored to welcome Carolyn Routh, an award-winning musician, entrepreneur, and front-woman of the acclaimed bluegrass band Nu-Blu. With more than two decades on the road, multiple Billboard Top Ten albums, and appearances on platforms like CBS Sunday Morning, Carolyn has built an extraordinary career in music. What many don’t see is the parallel journey she’s been navigating behind the scenes—living with Type I diabetes and recovering from multiple strokes.

    Carolyn’s health challenges reshaped not only her life, but her art. During her stroke recovery, she taught herself to play bass, reinventing her role in the band and reclaiming her place on stage with a renewed sense of purpose. In this conversation, we explore what it means to pursue a demanding creative career while managing chronic illness, how music can become part of healing, and what resilience really looks like when the unexpected changes everything.

    In This Episode, We Discuss:

    • Carolyn’s early diagnosis with Type I diabetes and how it shaped her life before fame
    • Surviving multiple strokes and the recovery process
    • Learning to play bass as part of rehabilitation and healing
    • Returning to the stage after major health trauma
    • Balancing touring, recording, and performance with ongoing health needs
    • Making career accommodations without giving up on dreams
    • How lived experience influences Nu-Blu’s music
    • Navigating marriage, creativity, and entrepreneurship through serious illness
    • The power of community, music, and perseverance
    • Advice for anyone worried a diagnosis will limit their future

    Resources:

    • Carolyn's Band Nu-Blu
    • BlueGrass Ridge Syndicated TV Show hosted by Carolyn and Daniel Routh
    • FDA Drug Safety Communication: Updated information about the risk of blood clots in women taking birth control pills containing drospirenone (including Yasmin and Yaz)

    Connect With Us:

    Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.

    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today’s Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.

    See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.

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    47 min
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