Couverture de Inchstones with Sarah | Autism Advocacy & Caregiver Stories

Inchstones with Sarah | Autism Advocacy & Caregiver Stories

Inchstones with Sarah | Autism Advocacy & Caregiver Stories

De : Sarah Kernion | Profound Autism Mom and Caregiver Advocate
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Inchstones with Sarah features autism advocacy, caregiver stories, and neurodivergent parenting, sharing real-life experiences from mothers and caregivers with profound autism. We provide insights into autism family support, autism coping skills, and caregiver burnout to empower special-needs caregivers.© 2025 Parentalité Relations Sciences sociales
Épisodes
  • Beyond the Autism Diagnosis: Seeing the Child Before the Label | Dr. John Gaitanis
    Jun 30 2026

    What if autism isn’t one condition to treat, but many different biological stories waiting to be understood?

    In this episode of Inchstones, Sarah Kernion sits down with pediatric neurologist Dr. John Gaitanis to explore why autism care should begin with understanding the individual child—not simply the diagnosis. Together they discuss autism advocacy, root cause medicine, caregiver experiences, neurodevelopment, inflammation, motor planning, and why families often recognize important patterns long before medicine does.

    Dr. Gaitanis challenges the idea that autism is a single biological condition, explaining why many children share a diagnosis while presenting with remarkably different medical histories, developmental pathways, and support needs. He shares why physicians should focus on understanding each child’s unique biology, why systemic inflammation and developmental regression deserve closer attention, and how artificial intelligence may help uncover patterns that families have recognized for years.

    The conversation also explores the emotional side of neurodivergent parenting. Sarah and Dr. G discuss maternal pattern recognition, caregiver stress, nervous system regulation, sleep deprivation, and why supporting parents is inseparable from supporting autistic children.

    Whether you’re navigating a recent autism diagnosis, raising a child with profound autism, searching for autism therapy options, or simply looking for thoughtful autism advocacy grounded in curiosity rather than certainty, this episode offers a hopeful framework for asking better questions.

    In this episode:

    03:10 — Why “autism” may describe many different biological conditions
    07:30 — Maternal pattern recognition and why caregivers often notice problems first
    10:05 — Systems thinking versus siloed medicine in autism care
    14:00 — Why two autistic children can have completely different biological profiles
    18:15 — Artificial intelligence and the future of autism diagnosis and personalized medicine
    21:05 — Whole-body dyspraxia, motor planning, and autism communication
    27:20 — How physicians can move beyond diagnostic labels to see the whole child
    35:45 — Caregiver burnout, chronic stress, and protecting parent health
    41:05 — Why trusting maternal intuition matters throughout the autism diagnosis journey

    Resources

    Learn more about Dr. John Gaitanis and Meadow BioSciences.

    Subscribe to the Inchstones Podcast for more conversations about autism advocacy, caregiver stories, neurodivergent parenting, profound autism care, and practical support for families raising autistic children.

    Read more caregiver essays on the Inchstones Substack.

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    40 min
  • Autism Fatherhood: When My Son Brought Me to My Knees | Tommy of Spectrum in Camouflage
    Jun 25 2026

    What does autism teach a father about strength? In this episode of Inchstones, Sarah Kernion sits down with Tommy of Spectrum in Camouflage for an honest conversation about autism fatherhood, faith, mental health, and how raising a nonspeaking autistic son completely transformed his understanding of success, purpose, and what truly matters.

    When Tommy’s son Wyatt began losing language around age two and a half, everything he thought he knew about fatherhood changed. As a construction business owner, husband, and father, he spent years believing strength meant fixing problems. Autism forced him to discover a different kind of strength: presence, surrender, and learning to live one inchstone at a time.

    Together, Sarah and Tommy explore autism parenting, profound autism, fatherhood, caregiver mental health, marriage, faith, and the quiet transformation that often happens inside parents long before anyone else notices it.

    This conversation explores:

    * autism fatherhood
    * nonspeaking autism
    * profound autism
    * caregiver mental health
    * autism parenting and marriage
    * faith during difficult seasons
    * living in the present moment
    * autism advocacy
    * parenting beyond societal expectations
    * finding joy in inchstones instead of milestones

    Tommy also shares his experience navigating anxiety, depression, and the realization that while he could not fix autism, he could become a different father because of it. His story offers encouragement for autism dads, caregivers, and families searching for hope grounded in reality rather than false promises.

    In This Episode

    00:00 – Introducing Tommy and Spectrum in Camouflage
    02:00 – Becoming a father after years of waiting
    04:00 – Wyatt’s autism regression and losing language
    06:00 – Anxiety, mental health, and feeling powerless
    08:00 – The mountain where everything changed
    10:00 – Why autism brought Tommy to his knees
    12:00 – Faith, surrender, and finding purpose through autism
    15:00 – Success versus significance in fatherhood
    17:00 – The hidden expectations parents carry
    19:00 – Why inchstones matter more than milestones
    21:00 – Learning to see growth differently
    23:00 – Autism, communication, and presence beyond words
    25:00 – Living where your boots are: staying present today
    28:00 – Parenting typical and autistic children differently
    31:00 – Mental health, nervous system regulation, and resilience
    33:00 – Speaking openly so other autism dads feel less alone

    Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, autism advocacy, profound autism experiences, neurodivergent parenting, and honest conversations that help families feel seen, understood, and less alone.

    Chapters
    • (00:00:00) - Inch Jones: June 1, Autism Dad
    • (00:00:44) - What Fatherhood Really Means For Me
    • (00:05:28) - Autism and Motherhood: Reorientation
    • (00:09:58) - Complaints about the World
    • (00:15:44) - The Search for Love in Modern Parenting
    • (00:20:58) - Autism and the Disability Wars
    • (00:21:25) - No One's Thinking About Me
    • (00:27:57) - The Importance of Parenthood
    • (00:28:50) - Mental Health
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    32 min
  • Why Autism Moms Never Stop Listening for Footsteps with Libby Hudson
    Jun 16 2026

    What happens when years of caregiving, hypervigilance, grief, and responsibility finally catch up with a mother? In this episode of Inchstones, Sarah Kernion sits down with Libby Hudson for an unfiltered conversation about profound autism, marriage, caregiver burnout, grief, and what it takes to survive when your family’s needs seem bigger than your capacity to carry them.

    Libby and her husband Tyler Hudson have become respected voices in the profound autism community, but behind advocacy and awareness lies a deeply personal story. As their son Lyric entered adolescence, a devastating family loss triggered profound behavioral changes, escalating aggression, and years of living in a near-constant state of vigilance and fear.

    Libby shares what it felt like to lose her father, watch her son struggle to process grief he could not communicate, and navigate the impossible reality of loving a child while simultaneously fearing what dysregulation might bring next.

    Together, Sarah and Libby discuss:

    * profound autism and adolescence
    * caregiver burnout and nervous system exhaustion
    * grief and autism
    * marriage under chronic stress
    * maternal hypervigilance
    * supporting autistic adults
    * emotional collapse and resilience
    * the importance of asking for help
    * finding purpose after survival mode

    The conversation also explores something rarely discussed openly in autism spaces: the cost caregiving can have on a mother’s body, identity, relationships, and health. Libby shares how years of accumulated stress ultimately contributed to a stroke and the difficult changes her family had to make to survive.

    This episode is for autism moms, caregivers, and families navigating profound autism, aggression, caregiver burnout, marriage stress, grief, and the emotional realities that often remain hidden behind advocacy.

    In This Episode

    00:00 – Living with constant hypervigilance and caregiving stress
    02:00 – Reading nonverbal communication through behavior and body language
    04:00 – The death of Lyric’s grandfather and profound grief
    05:30 – When autism, adolescence, and loss collide
    07:00 – Aggression, dysregulation, and fear inside the home
    08:30 – The emotional toll of surviving crisis mode
    10:00 – Why caregiving changed Libby’s health forever
    11:30 – A stroke, burnout, and the body keeping score
    13:00 – Marriage under pressure and redefining family roles
    15:00 – Learning to ask for what you need
    17:00 – Why flexibility matters in autism families
    19:00 – Autism, relationships, and nervous system regulation
    21:00 – The hidden emotional labor of autism motherhood
    23:00 – Why support systems matter more than services alone
    25:00 – Receiving an autism diagnosis 18 years ago
    27:00 – Grief, acceptance, and adapting to reality
    29:00 – The lessons profound autism has taught about life and love
    31:00 – What makes Libby most proud as Lyric’s mother

    Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, profound autism experiences, autism advocacy, and honest conversations about neurodivergent parenting.

    Chapters
    • (00:00:00) - Libby Hudson on The Inchstones Podcast
    • (00:01:18) - What Does Your Day-to-Day With Lyric?
    • (00:07:10) - On Working With an ASD Dad's Death
    • (00:13:24) - "What I Need" From My Love Letter
    • (00:15:06) - How to Get What You Need From Your Partner
    • (00:23:18) - On the Importance of Relationships for Autism Mothers
    • (00:25:37) - Autism Diagnosis: The Early Days
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    28 min
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