In this third episode of Getting Clear on Psoriasis, host Jilly Carter is joined by Heather, who lives with Generalized Pustular Psoriasis (GPP), and Dalton, her husband and care partner. Together, they discuss what life is like living with GPP and the impact it has had on their family. Heather talks about her journey to diagnosis, as well as how she organizes her life to best manage her GPP. The couple explores how their community has reacted to their situation and how Heather advocates for education around GPP. Dalton also offers advice on how to best support a partner living with GPP.

Disclaimer: The experiences and opinions shared in this episode reflect those of the participants and should not be considered medical advice.

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We want to hear what you think. Send your comments or questions to podcasts@ghlf.org

This podcast was produced on behalf of Boehringer Ingelheim and distributed by the Global Healthy Living Foundation. Discover more about GPP at patient.boehringer-ingelheim.com/gpp/

Learn more about the show at https://creakyjoints.org/getting-clear-on-psoriasis/

See omnystudio.com/listener for privacy information.

In this second episode of Getting Clear on Psoriasis, we explore the physical toll of living with Generalized Pustular Psoriasis (GPP). Host Jilly Carter is joined by Nerea Moran, a nurse living with GPP, and Dr. Peter van de Kerkhof, a dermatologist from Radboud University Medical Center for a candid discussion about how GPP flares manifest and disrupt daily life. Nerea shares her personal experience with the pain, fatigue, and unpredictability of flares, while Dr. van de Kerkhof explains how GPP presents clinically, and what patients can expect during a GPP flare. From struggling to walk or sleep to navigating interactions with medical providers, this episode sheds light on the challenges—and the resilience—of living with a rare chronic condition like GPP.

Disclaimer: The experiences and opinions shared in this episode reflect those of the participants and should not be considered medical advice.

More About the Show

We want to hear what you think. Send your comments or questions to podcasts@ghlf.org

This podcast was produced on behalf of Boehringer Ingelheim and distributed by the Global Healthy Living Foundation. Discover more about GPP at patient.boehringer-ingelheim.com/gpp/

Learn more about the show at https://creakyjoints.org/getting-clear-on-psoriasis/

See omnystudio.com/listener for privacy information.

In this first episode of season 2 of Getting Clear on Psoriasis, host Jilly Carter is joined by Nerea, a nurse living with Generalized Pustular Psoriasis (GPP), and Dr. Peter van de Kerkhof, a leading dermatologist and Head of Dermatology at Radboud University Medical Center. Together, they discuss the impact of GPP on daily life, the challenges of managing relationships, and the emotional toll of unpredictable flares. Throughout the conversation, Jilly, Nerea, and Dr. van de Kerkhof reflect on how GPP is a whole-body, lifelong condition, and why addressing mental health is just as important as managing physical symptoms.

Disclaimer: The experiences and opinions shared in this episode reflect those of the participants and should not be considered medical advice.

More About the Show

We want to hear what you think. Send your comments or questions to podcasts@ghlf.org

This podcast was produced on behalf of Boehringer Ingelheim and distributed by the Global Healthy Living Foundation. Discover more about GPP at patient.boehringer-ingelheim.com/gpp/

Learn more about the show at https://creakyjoints.org/getting-clear-on-psoriasis/

See omnystudio.com/listener for privacy information.