Part 3 of 3: A long-form conversation with Lauren Holder, host of the Help4HD podcast and a rare disease advocate, who lives with Huntington's disease. Lauren and Susanna talk about how they think and talk about the possible futures when living at risk, the difficult path to having children, and the judgement they've experienced from others especially medical providers.

Find the show notes for episode 20 here: https://www.geneticfrontiers.org/transcript-ep-20

This episode is brought to you by The Tell Me Project, a story archive and a listening project where we host conversations with people about the meaning of genetic information in their lives. Follow Genetic Frontiers on your favorite podcast app, leave us a review, and connect with Genetic Frontiers on LinkedIn or Substack to join the conversation.

Part 2 of 3: A long-form conversation with Lauren Holder, host of the Help4HD podcast and a rare disease advocate, who lives with Huntington's disease. In this episode, Lauren and Susanna dig into family silence, shame around genetic disease, walking head-long into vulnerability, which Brene Brown calls the path to whole-hearted living.

Find the show notes for episode 19 here: https://www.geneticfrontiers.org/transcript-ep-19.

This episode is brought to you by The Tell Me Project, a story archive and a listening project where we host conversations with people about the meaning of genetic information in their lives. Follow Genetic Frontiers on your favorite podcast app, leave us a review, and connect with Genetic Frontiers on LinkedIn or Substack to join the converation.

A long-form conversation with Lauren Holder, host of the Help4HD podcast and a rare disease advocate, who lives with Huntington's disease. In this episode (part 1 of 3), Lauren talks about how her family learned about their risk for Huntington's when Lauren was 15, her experience seeking genetic counseling and testing for Huntington's when she was 20, and the huge gap that still exists in getting previvors the support that they need, especially mental healthcare.

Find the show notes for this episode here.

This episode is brought to you by The Tell Me Project, a story archive and a listening project where we host conversations with people about the meaning of genetic information in their lives. Follow Genetic Frontiers on your favorite podcast app, leave us a review, and connect with Genetic Frontiers on LinkedIn or Substack to join the converation.