Épisodes

  • Accessible Living Solutions with RJ Adler and Alisa Brownlee - GOALS Podcast
    Feb 16 2026

    RJ Adler with Wheelpad joins the ALS United Mid-Atlantic GOALS Podcast to discuss accessible living solutions for people with ALS. In this episode, Alisa and RJ discuss how new technologies can help people by offering dignity and independence.

    Learn more about our programs and mission at www.alsmidatlantic.org

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    24 min
  • Commitment to Care with Director of Care Services Steve Spaulding, MA GOALS Podcast
    Feb 10 2026

    Director of Care Services Steve Spaulding, MA, joins the ALS United Mid-Atlantic GOALS Podcast to talk about the structure of our Care Services Department, the recent International ALS/MND Symposium, patient and family events, and more.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    39 min
  • Living with ALS: A Teacher's Story. Bryan and Lisa Rosica on the ALS United Mid-Atlantic GOALS Podcast
    Feb 2 2026

    Bryan Rosica is a teacher and father living with ALS. He now uses assistive technology to speak. In this ALS United Mid-Atlantic GOALS Podcast, Bryan and his wife Lisa discuss their ALS journey from diagnosis to today, including support from ALS United Mid-Atlantic care professionals, speaking at events like the Annual Celebration, and connecting with students to explain ALS.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    30 min
  • A Family History with ALS - ALS United Mid-Atlantic GOALS Podcast with Regina Shuster
    Jan 27 2026

    Regina Shuster joins the ALS United Mid-Atlantic GOALS Podcast to discuss her family's history with ALS and her work at events such as the ALS United Walk.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    19 min
  • Swallowing Issues and ALS - ALS United Mid-Atlantic GOALS Podcast with guest Daniel Kelly
    Jan 20 2026

    Daniel Kelly joins Alisa Brownlee to discuss the important topic of Swallowing and ALS to address concerns, safety, and best practices.

    Daniel Kelly, MA, CCC-SLP, AT, is a speech-language pathologist and assistive technologist at the Jefferson Weinberg ALS Center in Philadelphia. With nearly two decades of experience in medical speech pathology, he’s focused on swallowing assessment, communication technology, and clinical training across hospital and academic settings. Daniel has taught nationally on fiberoptic endoscopic swallowing evaluation, contributed to multiple clinical trials, and co-authored research on dysphagia and neurodegenerative disease.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    25 min
  • Respiratory Care and ALS - ALS United Mid-Atlantic GOALS Podcast with Dr. Simmons and Dr. Twomey
    Jan 13 2026

    Zachary Simmons, MD and Kathleen Twomey, MD join the ALS United Mid-Atlantic GOALS Podcast to share their work at Penn State Health Hershey Medical Center and their new innovations around respiratory care and ALS. Dr. Simmons has led the ALS Treatment Center at Penn State Health Hershey Medical Center for 30 years and Dr. Twomey is adding her expertise as a pulmonologist for ALS patients. O

    ur mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    36 min
  • Grief and ALS with Mark VandeBraak, PhD, FT, MT-BC ALS United Mid-Atlantic GOALS Podcast
    Jan 6 2026

    Mark VandeBraak, PhD, FT, MT-BC joins the ALS United Mid-Atlantic GOALS Podcast to discuss issues about processing grief for those impacted by ALS. Dr. Mark talks about the various forms of grief, expressing compassion and empathy, opening up about our concerns, and what help is available for everyone.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    34 min
  • Tim and Jeff Kurkjian join the ALS United Mid-Atlantic GOALS Podcast to talk ALS and Baseball
    Dec 16 2025

    Tim Kurkjian and his son Jeff Kurkjian are hosts of the baseball podcast "Is This a Great Game or What?" They also share a strong support for the ALS cause after their family's loss of Tim's brother Matt to ALS.

    Tim is the proud recipient of the 2022 BBWAA Career Excellence Award for his work as a baseball writer and journalist. In this episode of the ALS United Mid-Atlantic GOALS Podcast, Tim and Jeff talk about their family's history with ALS, their love of baseball, the support from the Philadelphia Phillies, and their experience at ALS United events.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    48 min