Living with Alzheimer’s – Losses, Workarounds, and Unexpected Gifts

In this heartfelt and hopeful episode, Janna, a self-described “Alzheimer’s Thriver™,” and her husband Larry open up about their journey navigating the losses and surprising gains brought on by Alzheimer's disease. Together, they explore how humor, adaptation, gratitude, and love have helped them cope with challenges and find joy in unexpected places.

Topics Discussed:

• Physical and sensory losses (vision, smell, taste)
• Memory loss (short- and long-term)
• Emotional regulation and self-talk
• The power of legacy and storytelling
• Using audiobooks as a memory aid
• Music, empathy, and increased emotional sensitivity
• Finding meaning in small joys (birds, children, fresh air)
• Using mental routines and daily disciplines to stay sharp
• Viewing Alzheimer’s as an “adventure” and not just a decline

Highlights:

• Janna describes how she manages low vision and memory changes with creative workarounds and positive inner dialogue.
• Larry discusses how the loss of one ability can give rise to another—like Janna's improved musical ear and increased empathy.
• The couple shares how listening to Janna’s own published audiobook has helped her preserve and reconnect with cherished memories.
• Emphasis on staying present, practicing daily gratitude, and focusing on what one still can do.

Supporting Articles & Research:

Here are related studies and expert articles to deepen your understanding of the ideas discussed in this episode:

1. Memory Loss and the Power of Reminiscence

• Title: Reminiscence Therapy for Dementia
  Source: Verywell Health
  This accessible article outlines how reminiscence therapy gently encourages individuals to recall and share positive memories using familiar prompts like photos, music, or meaningful objects. It presents evidence that the therapy can enhance memory, mood, and overall well-being, which aligns with the themes of connection and resilience that Janna and Larry explore.

2. Creativity and Self-Expression in Alzheimer’s

• Title: Art and Music Therapy in Alzheimer’s
  Source: Alzheimer's.org
  Music and art therapy sessions can be held in groups or individually.

3. The Power of Gratitude in Coping with Chronic Illness

• Title: Gratitude and Well-being: The Benefits of Being Thankful
  Source: Harvard Health Publishing
  Research supporting the mental and physical benefits of gratitude, even in the face of illness.

4. Maintaining Daily Structure with Cognitive Decline

• Title: Tips for Daily Routines for Alzheimer’s Caregivers
  Source: Alzheimer’s Association
  Suggests how daily structure, mental cues, and small goals can improve quality of life and reduce stress.

5. Audiobooks and Legacy Projects for Dementia Patients

• Title: The Benefits of Journaling
  Source: Bella Grove
  Examines how recorded personal histories can aid memory recall and offer emotional comfort.

Be sure to go to our website at alzheimersthriver.org to learn more about Larry and Janna's adventures.