Couverture de Champions for HD Podcast

Champions for HD Podcast

Champions for HD Podcast

De : Shelby Lentz
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À propos de ce contenu audio

Champions for HD is a nonprofit that fights to aid families and cure Huntington's Disease one family and one voice at a time. Our vision is to fight HD by contributing funds to local research while aiding HD families in need. This podcast will bring you stories from champions within the HD community as well as updates from the professionals in the field. This is a safe place to share freely and support one another. No one fights Huntington's Disease alone.

2026 Shelby Lentz
Economie Hygiène et vie saine Management Management et direction
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    Épisodes
    • A Raw Conversation About Living Gene Positive - with Charlotte Conn
      Mar 27 2024

      *Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.

      Follow Champions/External links:
      linktr.ee/championsforhd
      Website

      Follow Shelby:
      https://www.shelbylentz.com/
      linktr.ee/shelby_lentz

      In their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through social media and shared advocacy. They discuss managing anxiety, finding support, and coping mechanisms. The conversation covers HD testing, genetic diagnosis, and its impact on family dynamics. Balancing life choices and finances amidst uncertainty is also explored. They emphasize living in the present, gratitude, and the therapeutic value of music and exercise. Shelby and Charlotte highlight the significance of community, self-care, and supportive partners in navigating life with HD. Additionally, they address challenges like infertility, adoption, and the emotional toll of building a family in the context of HD. Overall, their dialogue underscores the importance of connection, resilience, and shared experiences in facing the complexities of HD.

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      1 h et 49 min
    • I wrote a children's book! Brave Breanna: How One Girl Smiled Her Way Through Juvenile Huntington's Disease
      Sep 8 2021

      Order Brave Breanna:
      https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1

      Follow Champions:

      https://www.championsforhd.org/

      https://www.instagram.com/championsforhd/

      https://www.facebook.com/championsforhd/


      Follow Shelby:

      https://www.instagram.com/shelby_lentz/

      https://www.shelbylentz.com/

      Support the show (https://www.championsforhd.org/donate)

      Support the show

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      23 min
    • An Open Conversation About Mental Health & Turning Adversity into Advocacy with @ImNotDrunkLifeStyleBlog
      May 16 2020

      **Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

      Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke. We discuss mental health with HD as a caregiver, setting boundaries, and talking the opportunity to educate against hurtful HD stereotypes and stigma. Ashley was inspired to begin her blog #ImNotDrunkLifestyleBlog after her father, who suffers from HD, was mistakenly called out in a crowd by a stranger for being "horribly drunk." Now she uses her blog as an outlet for her own mental health and as a learning tool for those who are misinformed about Huntington's Disease.


      Follow Ashley:

      https://www.facebook.com/imnotdrunkblog/

      https://www.imnotdrunklifestyleblog.co.uk/

      https://www.instagram.com/imnotdrunklifestyleblog/


      Follow Champions:

      https://www.championsforhd.org/

      https://www.instagram.com/championsforhd/

      https://www.facebook.com/championsforhd/


      Follow Shelby:

      https://www.instagram.com/shelby_lentz/

      https://www.shelbylentz.com/

      https://www.facebook.com/shelbylentzmusic/?ref=bookmarks



      Support the show

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      57 min
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