Couverture de Aging with Down Syndrome

Aging with Down Syndrome

Aging with Down Syndrome

De : Jadene Ransdell Kristin Dailey Molly O'Toole
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Join a mother, a sister, and a niece as they share honest and heartfelt conversations about the changing needs of their loved ones aging with Down syndrome. You will hear from leading experts about insights and advances in the field. You will meet professionals who are supporting individuals with Down syndrome through their senior years, and hear first-hand accounts from families who have navigated this caregiving journey. They will talk candidly about the unique challenges and joys found in this aging process, issues related to Alzheimer’s dementia, and give practical tips from lived experience.

Historically speaking, resources on this topic have been limited. Thankfully—as people with Down syndrome are living longer—more information is starting to coalesce. We hope this podcast will be a helpful resource for families and caregivers.

© 2026 Aging with Down Syndrome
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    Épisodes
    • "Home is a Place of Love"

      "Home is a Place of Love"
      Feb 10 2026

      As Jadene wrestles with planning for Matt’s future with Alzheimer’s, where he should live is top of mind. Molly and Kristin talk about where their loved ones lived, and how the onset of dementia changed those plans.


      LADD https://laddinc.org/



      We want to hear from you! Get in touch at: podcast@agingwithdownsyndrome.com
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      31 min
    • What the NDSS & LuMind Merger Means for Alzheimer’s Disease Research

      What the NDSS & LuMind Merger Means for Alzheimer’s Disease Research
      Jan 27 2026
      The leaders of NDSS and LuMind discuss their recent merger and its implications for the Down syndrome community, particularly in relation to Alzheimer's disease research.

      About NDSS and Lumind: The merger combines NDSS’ deep advocacy roots, community leadership, resources, and policy influence with LuMind’s expertise in accelerating research and health equity. It allows NDSS to add research as a key pillar of their work, and increase those resources to families. Moving forward, NDSS now has the expertise and structure to accelerate treatment options and innovation for the entire Down syndrome community, especially in tackling our seniors' greatest current health challenge: Alzheimer’s disease. The vision for the newly combined organization is to advance a more equitable future where every person with Down syndrome has the opportunities and supports they need to thrive throughout their lifetime. More information: https://ndss.org/lumind-joins-ndss

      More about Kandi Pickard, CEO of NDSS and Hampus Hillerstrom, President of NDSS (formerly CEO of LuMind): https://ndss.org/meet-our-staff

      LuMind https://lumindidsc.org/down-syndrome-research-in-action

      ABC-DS Study https://abc-ds.org/


      We want to hear from you! Get in touch at: podcast@agingwithdownsyndrome.com
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      27 min
    • Jadene’s Advocacy Journey: How Her Son’s Undiagnosed Autism Shaped Her Lifelong Advocacy

      Jadene’s Advocacy Journey: How Her Son’s Undiagnosed Autism Shaped Her Lifelong Advocacy
      Jan 13 2026

      Jadene talks with Kristin and Molly about events in Matt’s life that led her to be the advocate she is today. This episode dives into her experiences as a mother navigating the complexities of raising a child with multiple disabilities, highlighting the resilience of mothers and the profound love that drives them to seek better lives for their children.


      About Jadene:

      Jadene Ransdell has spent the past 51 years advocating for her son Matt and creating support systems for other caregivers along the way. As a young mother she worked to increase awareness of the need for community support for military families in Germany and helped establish Parent to Parent groups in Florida. When Matt faced an Alzheimer’s diagnosis, she began online Down syndrome and Alzheimer’s support groups. Later, she created the National Down Syndrome Society’s Adult Summit. Jadene is also the author of Unwrapping the Gifts of Disability: A Mother's Reflections on Raising a Son with Down Syndrome and is currently writing her second book which is about Down syndrome and Alzheimer’s. Jadene is the recipient of many awards including the 2017 Spirit of the NTG, and the 2019 NDSS Stephen Beck Jr. Champion of Change.


      Unwrapping the Gifts of Disability: A Mother's Reflections on Raising a Son with Down Syndrome

      https://www.amazon.com/Unwrapping-Gifts-Disability-Reflections-Syndrome/dp/1922828955

      Jadene’s blog https://www.agingwithdownsyndrome.com/blog

      We want to hear from you! Get in touch at: podcast@agingwithdownsyndrome.com
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      30 min
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