Épisodes

  • Episode 4: Assisted living experiences with Cathy Vaden
    1 h et 10 min
  • Episode 3: Creating Lasting Connections with Kimber Tucker
    42 min
  • Episode 2: Family Conference with Jolene Towers
    Jun 3 2025

    In this special episode of the BREATHE Podcast, Janie is joined by Jolene Towers to discuss one of the most anticipated events of the year for the 5p- community—the upcoming 5p- Society National Conference in Salt Lake City, Utah. Jolene shares exciting details about the location, planned sessions, family activities, and the unique opportunities for connection, support, and celebration.

    Whether you're a longtime attendee or considering your first trip, this episode gives you an inside look at what makes this conference so impactful. From expert speakers to unforgettable family moments, find out why you won’t want to miss joining us in Salt Lake City this summer.

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    33 min
  • Episode 1: the BREATHE Podcast
    May 1 2025

    Episode 1: 5p- Society is Bigger Than Just a Membership
    Host: Janie Guy
    Guests: Robert Brookman, Laura Castillo, Nick Wallace

    Welcome to the debut episode of The Breathe Series—a new podcast by the 5p- Society designed to bring real conversations and meaningful connection right to your earbuds.

    In this first episode, host Janie Guy sits down with 5p- Society Board Member Robert Brookman to explore his family’s journey, from the moment they received their daughter’s diagnosis to the unexpected ways community and support have helped them breathe a little easier.

    You’ll also hear from 5p- Society President Nick Wallace and Executive Director Laura Castillo as they share what makes the upcoming 5k for 5p- so powerful—not just for raising awareness, but for bringing families together from across the globe.

    This episode is full of honesty, hope, and insight—and it’s just the beginning.
    Press play and see why 5p- Society is more than a membership... it’s a movement.

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    1 h et 18 min
  • 5p- Society: BREATHE Series Intro
    Apr 26 2025

    Welcome to the BREATHE Series — a heartfelt journey of hope, resilience, and community for families impacted by 5p- syndrome and other rare diagnoses. In this introduction, discover how every story shared here reminds us to pause, breathe, and find strength in connection. Join us as we lift each other up through real conversations and shared experiences.

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    2 min