Couverture de The Rare Remix

The Rare Remix

The Rare Remix

De : Rare Remix Team
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The Rare Remix is a podcast for families navigating rare disease, disability, caregiving, accessibility, developmental differences, and life after a diagnosis changes the rhythm of everything.

Hosted by Bryan and Lindsey, The Rare Remix features real conversations with parents, caregivers, advocates, experts, and anyone on a remixed journey.

Together, we explore the everyday realities that families quietly learn to navigate, and discuss potential solutions based on first-hand experiences.

This may not be the life you imagined. It’s a remix.

2026 Rare Remix Team Parentalité Relations Sciences sociales
Épisodes
  • Episode 03 - Au-Kline Syndrome: a Conversation with Dianne

    Episode 03 - Au-Kline Syndrome: a Conversation with Dianne
    Jun 21 2026

    Episode 3 features Dianne, mom to 8-year-old Dru, who lives with Au-Kline syndrome. We discuss the challenges of an ultra-rare diagnosis, navigating life with AAC, and the value of asking for help along the way.
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    34 min
  • Episode 02 - Rett Syndrome: a Conversation with Karen

    Episode 02 - Rett Syndrome: a Conversation with Karen
    Jun 21 2026

    Episode 2 features Karen, mom to 30-year-old Lynzie, who lives with Rett syndrome. We talk about the unique timing of Lynzie’s diagnosis, the challenges of making tough decisions in adulthood, and the importance of advocacy. Don’t miss this heartfelt conversation.
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    40 min
  • Welcome to The Rare Remix

    Welcome to The Rare Remix
    Jun 19 2026

    Bryan and Lindsey introduce The Rare Remix, share the story behind the podcast, and explain why they’re creating a space for real conversations, practical insight, and solutions for families navigating life with a new rhythm.
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    16 min
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