Couverture de The Fine, But Not Fine Podcast

The Fine, But Not Fine Podcast

The Fine, But Not Fine Podcast

De : Fine But Not Fine
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Fine, But Not Fine is a podcast for anyone navigating the messy, frustrating, and often invisible challenges of rare diseases, chronic illness, and the healthcare system. Hosted by Kelly Paul, who has lived with Mycosis Fungoides (a rare form of Cutaneous T-Cell Lymphoma) since 2015, this podcast dives into the real-life struggles of managing an incurable condition while still trying to live a full, meaningful life. Resources: Cutaneous Lymphoma Foundation (https://www.clfoundation.org), International Society for Cutaneous Lymphoma (https://cutaneouslymphoma.org), Lymphoma Research Foundation (lymphoma.org), National Organization for Rare Diseases (rarediseases.org).Copyright 2025 All rights reserved. Sciences sociales
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    Épisodes
    • The First Time Cancer Interrupted My Job - Ep. 26
      Jan 13 2026

      In this episode, I share a day that looked fine on the outside—but quietly changed something in me. A cancer treatment and a work crisis collided, and for the first time in ten years, I couldn’t keep my illness and my job in separate lanes. Nothing broke, but the fear did. This is an honest reflection on capacity versus commitment, the invisible stakes of health and work, and what it feels like when the margin you depend on suddenly disappears. There’s no takeaway—just the truth of sitting with it.

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      10 min
    • Managing Multiple Doctors - Ep. 25
      Nov 25 2025

      Managing multiple doctors with a rare disease or chronic illness is complicated, confusing, and honestly, exhausting. In this episode, I talk about what it’s really like to juggle doctors who don’t talk to each other — from conflicting advice and duplicate lab tests to the emotional toll of telling your story over and over again. I share the strategies that help me stay (somewhat) sane, like keeping my own records, maintaining a master medication list, and advocating out loud — even when it feels pushy.

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      17 min
    • Redefining Holiday Joy with a Rare Disease - Ep. 24
      Nov 11 2025

      The holidays don’t have to be perfect to be joyful, especially when you're living with a rare disease or chronic illness. In this episode, I share how I’ve learned to let go of stress, overspending, and obligation — from going out for Thanksgiving dinner to skipping holiday travel — and focus instead on peace, connection, and real joy.

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      17 min
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