Hey there Earthlings!

Today we are beaming up rare disease warrior and advocate Jay Trivedi. In this episode, Jay shares his story of living with a rare disease called Congenital Central Hypoventilation Syndrome (CCHS). Jay's story sheds light on the financial implications of being disabled, the struggles of government benefits, and how social issues impact those with disabilities.

Jay's Bio:

My name is Jay, and I am currently 30 years old. I was diagnosed at birth with Congenital Central Hypoventilation Syndrome (CCHS). CCHS impacts our respiratory system and requires a mechanical ventilator when we sleep since we can't breathe normally. I have Bachelors's and an Associate degree in Business Administration. I work as Front End Team Member at Walmart. Also, I advocate for CCHS Family Network Inc.

Jay's Information

Facebook: Jay Trivedi

Instagram: Jt.trivedi

LinkedIn: Jay Trivedi

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Episode Transcript: Coming Soon

*This podcast is for educational and entertainment purposes only. NeoBilities LLC.

Hey there Earthlings!

Today we are beaming up the Rebel Ninja, Nick Smit. In this episode, Nick and Tessa explore empowerment, entrepreneurship, and creating your own destiny through purposeful action.

Imagine a world in which people are self-motivated to achieve what they are truly capable of; A world where people don't hide behind masks but rather embrace authenticity; A world that is not only capable of change but grows from it. A world that can dance to its destiny. Our next speaker is definitely a rebel ninja with many titles – A teacher and mentor; A professional speaker and entrepreneur and even a dancer. He has presented a variety of workshops and alike, to an array of audiences, including universities and local and international companies. Most relate to disability advocacy, awareness and inclusion; the power of the mind and overcoming challenges. Joining us today is an award-winning speaker who activates, impacts and moves people to make these imaginings a reality.

Nick's Information

Website https://www.therebelninja.com

Instagram: the.rebel.ninja

Facebook: https://www.facebook.com/therebelninja

Youtube: Coming Soon

Keep track of our intergalactic

explorations by following us on The DANI. Project & NeoBilities Socials:

Patreon: https://www.patreon.com/thedaniproject

Instagram: neobilities

Twitter: BilitiesNeo

Facebook: NeoBilities

Episode Transcript: Coming Soon

*This podcast is for educational and entertainment purposes only. NeoBilities LLC.

Hey there Earthlings!

Today we are beaming up the chronic illness warrior Shabnam Rakhiba, GMBPsS, ACT.Accred.(AAAC). Shabnam is an empowerment and resilience coach for women with chronic illness, pain, and disability. Founder of Thorns & Roses coaching. Masters in Psychology. Qualified Life Coach, an Accredited practitioner of Acceptance and commitment therapy (third-wave CBT).

This episode explores what it's like to live with chronic illness and disabilities. We dive into tricky subjects including: toxic positivity, navigating relationships with chronic illness, and honoring the emotional journey of living with chronic illness and disabilities.

Shabnam's Bio:

For 13 years (since my early twenties), I have lived with idiopathic chronic pain, with the latest plausible diagnoses being endometriosis and fibromyalgia. Throughout much of my adult life, I have been through it all – misdiagnoses, failed treatments and surgery, health-related anxiety, suicidal thoughts, being bed-ridden, and losing career prospects. Despite it all, I fought – and today I have expanded my understanding of wellness beyond the physical aspect to include emotional, psychosocial and spiritual healing. Wellness – feeling good in my skin, in body and spirit – is now my priority. Even though I still live with incomprehensible chronic pain after trying a plethora of allopathic and naturopathic protocols, I am now at peace, happy and successful. I thrive despite the pain, using a variety of psychological and practical strategies. As an empowerment and resilience coach, I help other women living with chronic pain and illness look beyond physical symptoms and take a holistic view of their healing. My practice is grounded in mindfulness, compassion, and Acceptance. I have worked with women with cancer, reproductive health challenges, autoimmune disease as well as congenital disorders. I am a co-author of the upcoming book 'Healing Chronic Pain.' My research manuscript on the lived experience of British South Asian women with endometriosis is also currently being prepared for publication in a peer-reviewed medical journal.

Shabnam's Information

Website: www.thornsandrosescoaching.com

Instagram: Shabnam_Rakhiba

Facebook: Unapologetic Women Collective-Chronic Illness Support

Keep track of our intergalactic

explorations by following us on The DANI. Project & NeoBilities Socials:

Website: neobilities.com

Instagram: neobilities

Facebook: NeoBilities

Twitter: BilitiesNeo

Patreon: https://www.patreon.com/thedaniproject

Episode Transcript: Coming Soon

*This podcast is for educational and entertainment purposes only. NeoBilities LLC.