Couverture de Ramblin' Rare by ACD

Ramblin' Rare by ACD

Ramblin' Rare by ACD

De : Randy Allen
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 A podcast about rare diseases, the families they impact and scientists aiming to change their world through their work. Sponsored by the Association for Creatine Deficiencies. Learn more @ CreatineInfo.orgACD 2022 Hygiène et vie saine Maladie et pathologies physiques Médecine alternative et complémentaire
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    Épisodes
    • Siblings!

      Siblings!
      Sep 2 2022

      Opportunities, Challenges and Strategies for Siblings of Rare Disease Children

      On this episode, Randy and Nathan will discuss siblings of our rare disease kiddos.

      Three main takeaways..

      1. Siblings will naturally grow into their roles as an exceptional needs brothers or sisters, however that does not remove our responsibility as parents to help equip them for the task.

      2. Rare disease siblings seem to mature quicker, gain more perspective earlier in life but we as parents need to go out of our way to ensure that they can still be kids and have typical childhood experiences.

      3. Siblings will be siblings - they will bother one another regardless of rare disorder or not! Allow our neuro-typical siblings to be real, get annoyed, upset, etc.

      www.creatineinfo.org
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      35 min
    • Travel Tips & Making Memories

      Travel Tips & Making Memories
      Jun 14 2022

      Traveling this summer?

      Tune in for some tips & strategies to help create some memories with your family!
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      22 min
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