Join co-hosts Esther, Chris, and Mel as they discuss available advanced therapies, what they've tried, what their doctors have said, and how they chose to move forward with their care.

~~~ HOSTS ~~~ Melissa Livingston | @missmliv

Esther Labib-Kiyarash | @shakinginmyboots1

Chris Sutphin | @cesutphin

with support from hosting organization, Parkinson & Movement Disorder Alliance

~~~ LEARN MORE ~~~

TREATMENTS OVERVIEW | PMD Alliance Treatments Hub

DEEP BRAIN STIMULATION (DBS):

• Michael J. Fox Foundation's Comprehensive DBS Guide
• American Parkinson's Disease Association's DBS Blog
• Ask the MD (Rachel Dolhun) on Adaptive DBS
• “It’s Worth It”: Tiffany’s Deep Brain Stimulation Journey
• “It Was Life-Changing” – Roger’s DBS Story
• Insights from DBS: Benjamin's Story

FOCUSED ULTRASOUND (FUS):

• Michael J. Fox Foundation's Focused Ultrasound page
• Focused Ultrasound Foundation
• Parkinson's Foundation page on Focused Ultrasound & Other Lesion Therapies

INFUSION THERAPY:

• Cleveland Clinic Infusion Therapy Page
• FDA Approves First Subcutaneous Apomorphine Device for Parkinson’s Disease

JOIN YOPN | PMD Alliance's Free Membership Program for People with YOPD & Care Partners

• Members can join the monthly community gathering held live on Zoom every 4th Tuesday/month, and you'll likely see our co-hosts there!

GET IN-PERSON SUPPORT | PMD Alliance's Directory for Groups, Providers, & Events

Don't forget to follow, subscribe, and share! Because the conversation continues in the comments on Podbean, across social media, and in YOPN's Monthly Community Gatherings. Tell us what you think!

Disclaimer: The views and opinions expressed in this program are those of the authors/producers/guest speakers and do not necessarily reflect the views or opinions of YOPN or PMD Alliance.

Could Parkinson's be the result of an evolutionary adaptation that provides short-term protection from environmental triggers, but results in long-term consequences? Researcher Matthew Farrer, PhD introduced a compelling model for understanding the mechanism behind Parkinson's in his recent paper, and we're diving into all the details with him.

~~~ HOSTS ~~~ Melissa Livingston | @missmliv

Esther Labib-Kiyarash | @shakinginmyboots1

Chris Sutphin | @cesutphin

with support from hosting organization, Parkinson & Movement Disorder Alliance

~~~ GUEST ~~~

Matthew Farrer, PhD

Professor of Neurology (Molecular Neuroscience and Neurogenetics) at the University of Florida | Find his full bio here.

READ HIS PAPER | A unified evolutionary explanation of Parkinson's disease

~~~ LEARN MORE ~~~

PD & LRRK2 GENE | Video explanation from Parkinson's UK

ALPHA-SYNUCLEIN | Article from Cure Parkinson's

JOIN YOPN | PMD Alliance's Free Membership Program for People with YOPD & Care Partners

• Members can join the monthly community gathering held live on Zoom every 4th Tuesday/month, and you'll likely see our co-hosts there!

GET IN-PERSON SUPPORT | PMD Alliance's Directory for Groups, Providers, & Events

Don't forget to follow, subscribe, and share! Because the conversation continues in the comments on Podbean, across social media, and in YOPN's Monthly Community Gatherings. Tell us what you think!

Disclaimer: The views and opinions expressed in this program are those of the authors/producers/guest speakers and do not necessarily reflect the views or opinions of YOPN or PMD Alliance.

Sit down with co-hosts Mel and Chris to learn what their Deep Brain Stimulation (DBS) procedures were like, the realities of recovering from brain surgery, and how they feel now, 2 years after. This episode does not shy away from the visceral parts of their experiences, including Chris' unique impressions from being awake during his DBS placement.

~~~ HOSTS ~~~ Melissa Livingston | @missmliv

Esther Labib-Kiyarash | @shakinginmyboots1

Chris Sutphin | @cesutphin

with support from hosting organization, Parkinson & Movement Disorder Alliance ~~~ LEARN MORE ~~~

READ EARLY ONSET PARKINSON'S DBS STORIES

• “It’s Worth It”: Tiffany’s Deep Brain Stimulation Journey | PMD Alliance Blog
• Insights from DBS | PMD Alliance Blog
• "It Was Life-Changing" - Roger's DBS Story | PMD Alliance Blog

RECOMMENDED DBS RESOURCES

• Monthly DBS Corner Zoom Meeting for Q&A with Peers & Specialists | Parkinson's Orange County Group
• Deep Brain Stimulation and Parkinson’s From Decision-Making to Daily Life with DBS | Comprehensive Guide from the Michael J. Fox Foundation

JOIN YOPN | PMD Alliance's Free Membership Program for People with YOPD & Care Partners

• Members can join the monthly community gathering held live on Zoom every 4th Tuesday/month, and you'll likely see our co-hosts there!

GET IN-PERSON SUPPORT | PMD Alliance's Directory for Groups, Providers, & Events

Don't forget to follow, subscribe, and share! Because the conversation continues in the comments on Podbean, across social media, and in YOPN's Monthly Community Gatherings. Tell us what you think!

Disclaimer: The views and opinions expressed in this program are those of the authors/producers/guest speakers and do not necessarily reflect the views or opinions of YOPN or PMD Alliance.