What is it really like growing up with a rare disability, and why are accessibility and inclusion still such significant challenges?

In this Bite Size episode of Tales to Inspire, host Krish Patel speaks with Harvey Goodinson and his mum, Kim, about living with spinal segmental dysgenesis, a rare condition affecting the development of Harvey's spine.

Harvey shares his experiences of growing up as a wheelchair user, navigating everyday barriers and maintaining his independence. Together, Harvey and Kim discuss the challenges of inaccessible buildings, public transport, blocked pavements and the frustration of living in a society that doesn't always consider disabled people's needs.

Kim also shares her experiences as a parent advocating for her son, highlighting the importance of greater understanding, patience and practical changes that can make communities more inclusive.

Key themes explored:

• Living with spinal segmental dysgenesis, a rare spinal condition

• Disability awareness and wheelchair accessibility

• The challenges of using public transport

• Independence, inclusion and everyday barriers

• The importance of family support and advocacy

• Creating more accessible and inclusive communities

Harvey and Kim's story reminds us that accessibility is about more than ramps and lifts. It's about giving everyone the freedom, dignity and opportunity to participate fully in society.