Cover of Living With Lung Cancer: Ask Me Anything

Living With Lung Cancer: Ask Me Anything

Living With Lung Cancer: Ask Me Anything

By: Lung Cancer Foundation of America
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Living with lung cancer isn't just about treatment plans and statistics—it's about the raw, real, messy truth of what it means to survive.

No topic is off-limits. No question is too uncomfortable. No experience is too raw to share.

Copyright 2026 All rights reserved.
Hygiene & Healthy Living Physical Illness & Disease
Episodes
  • Small Cell Lung Cancer Subtypes: What Patients Should Ask Now
    22 Oct 2026

    For years, small cell lung cancer (SCLC) had far fewer treatment options than other lung cancers. That is changing. Host James Hiter talks with Montessa Lee, a long-term SCLC survivor diagnosed at 28 in 2006, about the research she has waited nearly 20 years to see.

    They discuss what SCLC subtypes are and how to ask your doctor about them, why SCLC can change over time, and the questions every newly diagnosed patient should ask. Montessa also shares how she manages long-term side effects, why quality of life belongs at the center of research, and why outdated online statistics don't tell today's story.

    If there's any time to be diagnosed, Montessa says, it's now. And you're not in it alone.

    Guests:

    • James Hiter: Host, patient advocate living with lung cancer; founder, Streak For a Cure; LCFA Speakers Bureau
    • Montessa Lee, EdD: Long-term SCLC survivor, special educator, patient advocate; LCFA Speakers Bureau

    Show Notes - https://lcfamerica.org/wp-content/uploads/2026/09/AMA-2026-Fall-SCLC-Subtypes-Show-Notes.pdf

    Transcript - https://lcfamerica.org/wp-content/uploads/2026/09/AMA-2026-Fall-SCLC-Subtypes-Transcript.pdf

    Watch Video - https://youtu.be/RS2mwBbrrWg

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    25 min
  • The PD-L1 Biomarker: A Lung Cancer Survivor's Guide | LCFA
    8 Oct 2026

    What is PD-L1, and what does it mean for your lung cancer treatment? Host James Hiter, who is living with lung cancer, talks with fellow LCFA Speakers Bureau member and longtime survivor Jane Perlmutter about the PD-L1 biomarker. What it is, how it fits into complete biomarker testing, and why your score is a guide, not a guarantee.

    Jane shares how she responded to immunotherapy with a PD-L1 score of just 20%, why it is worth waiting for full test results before starting treatment, and the must-ask questions every newly diagnosed patient should bring to their care team.

    In this episode:

    What PD-L1 is, explained in plain language How PD-L1 fits alongside other biomarkers like EGFR, ALK, and ROS1 What next-generation sequencing (NGS) is and why complete testing matters What your PD-L1 score can and cannot tell you How to speak up with your doctor, bring an advocate, and seek a second opinion

    Learn more about PD-L1: https://lcfamerica.org/about-lung-cancer/diagnosis/understand-pd-l1/

    Guests: James Hiter (Host) – Patient Advocate, LCFA Speakers Bureau; founder of Streak For a Cure Jane Perlmutter – Lung cancer survivor, patient advocate, LCFA Speakers Bureau member

    Subscribe to Living With Lung Cancer: Ask Me Anything for future episodes on your favorite listening platform.

    Show Notes - https://lcfamerica.org/wp-content/uploads/2026/10/AMA-Fall-PD-L1-Biomarker-Show-Notes.pdf

    Transcript - https://lcfamerica.org/wp-content/uploads/2026/10/AMA-Fall-PD-L1-Biomarker-Transcript.pdf

    Watch Video - https://youtu.be/uEaRpiLKUkA

    Content shared in this episode reflects personal experiences and should not substitute for professional medical guidance. Please consult your healthcare provider for personalized medical advice.

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    26 min
  • IV vs. Subcutaneous Cancer Treatment: What Patients Should Ask
    24 Sep 2026

    What's it really like to trade an IV infusion chair for a quick injection under the skin? Host James Hiter talks with fellow patient advocate Stephanie Williams — a former registered nurse now living with ALK+ lung cancer — about subcutaneous (SubQ) drug delivery. Stephanie draws on both her nursing background and her own treatment journey to explain how SubQ compares to IV and intramuscular delivery, why it's gaining ground in lung cancer care, and how to bring it up with your own oncologist.

    Guests:

    James Hiter (Host) is a lung cancer patient advocate, LCFA board member, and member of LCFA's Speakers Bureau. He is living with KRAS G12D-driven lung cancer.

    Stephanie Williams (Guest) is a longtime LCFA volunteer and Speakers Bureau member. Diagnosed with stage 2 non-small cell lung cancer (ALK+) at age 37, she is a former registered nurse and mother who underwent surgery and chemotherapy before transitioning to oral targeted therapy. She now advocates for patients navigating treatment options and biomarker testing.

    Show Notes - https://lcfamerica.org/wp-content/uploads/2026/09/AMA-2026-Fall-Subcutaneous-Treatment-Show-Notes.pdf

    Transcript - https://lcfamerica.org/wp-content/uploads/2026/09/AMA-2026-Fall-Subcutaneous-Treatment-Transcript.pdf

    Watch Video - https://youtu.be/DMWtaCmEFio

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    21 min
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