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Life's a Polyp

Life's a Polyp

De : Jenny Jones
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 Jenny is a Rare Disease Advocate for Familial Adenomatous Polyposis (FAP) and Short Bowel Syndrome (SBS) and uses her platform of Life's a Polyp (blog, vlog, and shop) focused on raising awareness about FAP, SBS, and patient empowerment. She started the NORD FAP Research Fund in 2015 and donates profits from Life's a Polyp Shop and her FAP Children's Book - Life's a Polyp with Zeke and Katie. Her FAP related surgeries (8 total) started at age 9. She's experienced life-threatening complications resulting in medical PTSD and lived with an ileostomy for 6 years before having it reversed.Jenny Jones Sciences sociales
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    Épisodes
    • Cognitive Behavioral Therapy for Chronic Pain

      Cognitive Behavioral Therapy for Chronic Pain
      Jun 1 2025

      Jenny shares what she learned in a CBT-CP Seminar for improving quality of life with chronic pain.
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      20 min
    • Caregiving for Mom - The Last Years

      Caregiving for Mom - The Last Years
      Apr 10 2025

      Jenny shares how her understanding of her mom changes when she became a caregiver to her mother and what the last years were like.
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      18 min
    • Post Concussion Syndrome

      Post Concussion Syndrome
      Mar 28 2024

      Jenny shares about her experience developing and living with Post Concussion Syndrome
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      17 min
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