Cover of Life's a Polyp Foundation

Life's a Polyp Foundation

Life's a Polyp Foundation

By: Jenny Jones
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Summary
Life's a Polyp Foundation is a 501(c)(3) nonprofit organization with a mission to empower individuals living with Familial Adenomatous Polyposis through education, mental health advocacy, and community building, ensuring every patient has the tools to navigate their health with confidence and pushes research for new treatments and a vision to create a world where a rare disease diagnosis is met with immediate support and specialized resources, ultimately funding the research necessary to improve the quality of life for future generations.Jenny Jones Economics Management Management & Leadership
Episodes
  • Wound Ostomy Care with Dr. Amaka Akinade
    7 Nov 2026

    Dr. Amaka Akinade shared with us her wealth of knowledge and love for ostomy care.

    Dr. Amaka Akinade, DNP, FNP-C, CWON-AP, is a doctorally prepared nurse practitioner and advanced practice wound and ostomy specialist with more than 15 years of experience in wound and ostomy care. She is a clinician, educator, consultant, and entrepreneur passionate about improving patient outcomes, expanding access to specialty care, and empowering healthcare professionals through practical, evidence-based education. As founder of Prodigy Wound & Specialty Care Consulting, she is working to expand access to specialized wound and ostomy care through clinical services, telehealth, education, and strategic healthcare partnerships.

    Find Dr. Akinade at:

    Instagram: https://www.instagram.com/dr.wounderful/

    Tiktok: https://www.tiktok.com/@dr.wounderful

    LinkedIn: https://www.linkedin.com/in/amaka-akinade-60118b43/


    Resource Links Discussed:

    WOCN: https://www.wocn.org/

    UOAA: https://www.ostomy.org/

    Ostomy Canada Society: https://www.ostomycanada.ca/

    WebWoc: https://webwocnurse.com/

    Wound Care Certification Prep Course — WoundCare University https://woundcareuniversity.com/woundcare-certification-courses/

    Wound Care Education Institute: https://www.wcei.net/courses/skin-wound-management

    Emory University: https://www.nursing.emory.edu/degrees-programs/continuing-education/wound-ostomy-and-continence-nursing-education-center


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    54 min
  • Advocates Panel Talking Familial Adenomatous Polyposis Advocacy
    15 Jun 2026

    Jenny talks with 5 other FAP advocates about their advocacy efforts for FAP range from ages 9 to 60s, what led them into advocacy, and how it's impacted their lives.

    Advocates featured with Jenny: Kevin Myers, Michael Caprio, Rebecca and Ryan Baker, Ann Lamphere

    Michael Caprio's FAP Experience Book A Bump in the Road: My Medical Journey over Potholes, Detours and the Bridge to Gratitudehttps://a.co/d/0aAgefYI

    Ann Lamphere's Rare Disease Children's Book:

    Pebbles' Golden Stripes: A Story of Uniqueness, Friendship, and Rare Disease Dayhttps://a.co/d/0677lJ3c

    Jenny's FAP Children's Book

    Life's a Polyp: with Zeke and Katie https://a.co/d/02eetaHy

    Life's a Polyp Foundation is a nonprofit 501(c)3 that works to empower individuals living with Familial Adenomatous Polyposis through education, advocacy, and community building, ensuring every patient has the tools to navigate their health with confidence and support research for new treatment options.

    Through this we aim to create a world where a rare disease diagnosis is met with immediate support and specialized resources, ultimately funding the research necessary to improve the quality of life for future generations.

    A Daughter's Love Podcast is housed under Life's a Polyp Foundation. In it, Jenny and Amy heal grief through storytelling and exploring cancer, caregiving, and more.

    Find more at www.LifesaPolyp.org and @LifesaPolyp across Social Media Platforms

    #LifesaPolyp #FamilialAdenomatousPolyposis #RareDisease #ShortBowelSyndrome #FamilialPolyposis #Coloncancer #ColorectalCancer #HereditaryCancer #AttenuatedFAP #FAP #AFAP #Nonprofit #Podcast #Chronicillness #Cancer #Panel #Advocacy

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    1 hr and 34 min
  • Cognitive Behavioral Therapy for Chronic Pain
    1 Jun 2025

    Jenny shares what she learned in a CBT-CP Seminar for improving quality of life with chronic pain.

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    20 min
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