Today I share my conversation with pediatric nurse practitioner Erin Fecske about epilepsy and hydrocephalus. We discuss what epilepsy is, how to diagnosis and treat it, how to tell the difference between a seizure and shunt malfunction and much more.

Resources on epilepsy from the Hydrocephalus Association:

• Essential Facts About Epilepsy and Hydrocephalus - this is the article Erin referenced that she reviewed for HA.
• Ask the Expert: Hydrocephalus and Epilepsy
• Webinar: Understanding Seizures and Epilepsy in Hydrocephalus: Risks, Triggers, and First Aid
• Related Health Conditions
• Types and Causes of Hydrocephalus
• Complications of Shunt Systems
• Empowering Your Child to Be Their Own Advocate: Navigating Healthcare with Confidence
• Maximizing Your Doctor Appointments: Tips, Tools, and Insights
• Epilepsy Foundation Seizure First Aid Training

Learn more about hydrocephalus: https://www.hydroassoc.org
Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform

Follow on Instagram: @taishaycameron, @hydroassoc

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In this episode, I had the wonderful opportunity to sit down with my daughter, Angelica, and talk about her life with hydrocephalus. I tried to keep the conversation focused on her experiences with surgery after a shunt malfunction and all things hydrocephalus — but she had other plans. Angelica spoke about what matters most to her: standing up for yourself, being your unique self, and respecting people’s differences. She absolutely blew me away with the insight and honesty she shared. I’m honored to share parts of our conversation with the community and with anyone who dares to be their unique self.

Resources provided by the Hydrocephalus Association:

Hydrocephalus in Infants and Children
Shunt Systems
Complications of Shunt Systems
What to Expect with Shunt Surgery
Shunt Revision Surgery: What to Expect During Surgery and Recovery
WALK to End Hydrocephalus
How to Explain Hydrocephalus to Your Teachers and Friends
Bullying and Hydrocephalus
Empowering Your Child to Be Their Own Advocate: Navigating Healthcare with Confidence
School and Hydrocephalus

Learn more about hydrocephalus: https://www.hydroassoc.org
Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform

Follow on Instagram: @taishaycameron, @hydroassoc

Send us Fan Mail

Today I share parts of my conversation with twin brothers, Josh and Jake. Josh has hydrocephalus and Jake doesn't. We talk about what can be challenging, what brings them joy and being brave. I also got the opportunity to speak with their mom, Emily, about things she's learned caring for a loved one with hydrocephalus.

Resources connected to today's episode:

Hydrocephalus Awareness Month

Shunt System

Complications of Shunt Systems

Shunt Revision Surgery: What to Expect During Surgery and Recovery

Shunt Malfunction: Frequently Asked Questions School and Hydrocephalus

Newly Diagnosed

Hydrocephalus Resource Library

RAISE Resilience Program

Community Networks (Support Groups)

HydrocephalusCONNECT (Peer Support Program)

WALK to End Hydrocephalus

Learn more about hydrocephalus: https://www.hydroassoc.org
Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform

Follow on Instagram: @taishaycameron, @hydroassoc